Sarcoma

Am very recently widowed, husband was very fit and healthy ( or so we thought),non-smoker, very occasional drinker, loved running, going to the gym, cycling to work 12 miles and had done a couple of marathons, so to suddenly get a diagnosis of a retroperitoneal sarcoma with metastases of liver and lung.....our world just fell apart !! He lived for just 7 weeks from diagnosis. Am on bereavement leave from work at the moment, having some counselling, but I'm not sure how I get through this. I feel lost without him, everything feels scary, am having panic attacks if I do venture out the front door, so most of the time I stay home, I try to stay busy but am always in floods of tears, I know he's gone, but it still feels like a bad dream. Sleep has become an escape for me, I do it a lot in the daytime, so I don't have to think. Feeling also that he was failed badly by some medical professionals, basically just given an option to either stay in hospital or go home, and once home, nothing.....no support from anyone medically, no info on who to contact/turn to for help or support. Drs not sending referrals for chemo treatment after advising us they would. Only after chasing up discovered a referral hadn't been made after 2 weeks of waiting. So his 1st chemo was administered 6 weeks after diagnosis, nurses at the cancer hospital remarked on how poorly he looked when we wheeled him in.....the look of shock on their face when we told them it was his 1st treatment, they couldn't believe it!!  Just to add, we never saw an actual "cancer" Dr until 6 days before he passed away.....surely that can't be right  !!??  Just really struggling with life atm

  • Oh dear, you are really giving yourself a hard time.  I can understand that you are reliving your husband's last days and thinking this wasn't the way it should have happened.  I am by no means an expert on grief but it might be a good thing to get some counselling to get you through this.  I am hoping someone who knows better than me can guide you.  But cathy, I am guessing you would have lost him anyway.  Losing a loved one is horrible regardless of circumstances.  What would your husband want you to do do now?  Look after yourself, I am guessing.  I feel with every word I am getting into a "fools rush in" situation as I don't  know you but even to a know-nothing like me you are putting yourself through an unnecessarily hard time and need some help.  Someone with whom you can talk and put the horrors behind you.  Please love yourself a bit more now that your husband is not there to do it.

  • Oh Kathy,  words fail me ... my niece lost her husband suddenly, after upset stomach, and chocked on his vomit through the night ... he was only 28, and my niece had 3 year old, and 10 months old ... she, like you, was in total shock ... so I remember how devastated every one, especially her was ...

    Have you got family around you ... if so, please let them in, nothing anyone can say will ease it, but just lots of hugs and a hand to hold ... I wish with all my heart , you have ... when this initial shock has eased, find out those answers to your questions .. someone needs to explain why those things happened like they did ... and they need to hang their heads in shame ....

    Get some advice from mcmillan, on where to go from here ... "ask the nurses" hopefully will pick this post up and give you more info, on help with grieving as I know they have a page you can go to, and try everything hunny ... shutting down, is probably your bodies way of coping in the early days ...

    Bless your heart, be kind to your heart and know its all part of loosing those ones we love so much ... I'm sending you a big big hug.... hold on as much as you can ... chrisie xx

  • Welcome to the forum Cathy although I'm sorry to read about the sad circumstances under which you are posting and would like to offer my heartfelt condolences on the passing of your husband.

    I know you mentioned you've having some counselling already but I just wanted to stop by and make you aware of cruse bereavement who specialise in supporting people who have lost a loved one just in case you wanted to get in touch with them as well.

    Do also let your GP about your panic attacks as they may be able to help with this or if that isn't an option right now our cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you wanted to chat to them instead.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi Annieliz, thank you for your reply, i am having counselling, but i don't feel it's helping me, early days yet i know.....and yes, we kinda realised it would most probably be terminal, but i feel he suffered unnecessarily, ie chemo much earlier may have shrunk the large tumour in his abdomen, or at least stopped the fast growth of it. Because of no treatment of any kind (only painkillers), the tumour caused pressure on other organs, especially his diaphragm which couldn't couldn't move up or down normally, so he had terrible trouble breathing, the sarcoma caused massive fluid build-up in his lungs, and his legs & feet to swell. We had no visits from anyone medically, until he came home, the last week of his life, & then it seemed they threw everyone at us...too little too late in my mind. Thankfully, the night he passed, i had a lovely hospice lady sent to us, to stay overnight, for me to grab some sleep, i didn't sleep however as i was listening out for him all the time, early hours of the morning he became very agitated, even punching his head with frustration i think because he was having intense difficulty breathing, so harrowing for him & myself to see this...& it's those last images i can't get out of my head, people tell me " you have your memories, think of the good times" but i can't get to those yet, just the nightmare we both went through. Thank you again for your kind words xx
  • Than you Chrisie, for your kind words hun  xx