I have so many regrets about my mums last few weeks.
when mum came out of hospital 5 weeks ago she was put on 4mg of dextamethazone for 2 weeks. She was great, although she was bedbound ahe was full of life, enjoying her food and got her sense of humour back.
The Macmillan nurse told us to reduce to 2mg after the 2 weeks. When I googled what the steroids did I questioned this as I just wondered why we couldn't keep her quality of life for a bit longer, I knew that if my mums appetite and energy levels dropped she would go down hill. I sled 2 other nurses and they both said we could keep her on them a while longer or even just reduce dosage to 3mg. Unfortunately the original nurse convinced both my siblings that reducing and weeding off was the right thing to do. Her energy levels and appetite slowly reduced and then 1 week after coming off the steroids completely my mum was so weak and passed away.
im completely wracked with guilt that I should have put my foot down and kept my mum on the steroids. I'm convinced she would still be with us.
has anyone got any similar experiences of this please? My mums only been gone 5 days and I'm really struggling.