Referral letter

I received a copy of my referral letter today and I was really unsettled with the contents. 
 

The dermatologist said that scc was probable or it could be porocarcinoma.   She did not mention this at all at our meeting.  Also she referred to my forearm in the letter and it is my foot. 

of course I looked it up and I am heartbroken I didn't see this coming after being told by my gp and nurses that it was common and nothing to worry about

I have an appointment with the specialist on Thursday but I'm not coping well and keep having breakdowns

I know it's not long to wait but after having breast cancer I just wanted to have some good times

thank you for letting me vent I feel like I'm bringing everyone down around me

 

Julie

 

 


 

 

  • Hi juile

    I hope your ok  (silly question I no) 

    I have also received my referral appointment today and I am beating myself up after having a scan and finding a massive cyst on my ovaries and getting all clear for ovarian cancer to be referred to a specialist gynaecological oncology on Wednesday I am so worried to what the outcome could be 

    Stay strong lovely im sure everything will be ok 

    I'm hear if you ever want to chat 

    Thankyou 

    Karen 

     

  • Hi Karen

    thank you for your reply.  I know I only have to wait until Thursday but it seems like an eternity. I never thought I would be in this position again especially when one of the options is rare.  
     

    Good luck for your appointment on Wednesday I hope it goes really well

    take care

     

    Julie

  • Oh Julie

     

    so sorry to hear this - it must be such a worry for you, I can understand that feeling of 'bringing everyone else down' but you have every right to feel worried or be upset if you want to be. I wish you the best of luck in your appointment and hope that it is indeed nothing serious and the doctors are just being extra careful due to your past medical history 

     

    with love

     

     

  • Thank you for your reply

    i have only got until tomorrow to wait until I see the surgeon and hopefully get a plan of action and a nights sleep
     

    will keep you updated.

    Julie x

  • Good luck Julie! I am waiting for an appointment at the breast clinic which isn't until the 29th and I understand how tiresome it can be when the anxiety and nerves are in over drive while waiting, please do update us and good luck again 
     

    keeks

  • Hi 

    I had my appointment yesterday and the surgeon who was lovely has decided to excise the growth as soon as possible. When I asked him he said it looked suspicious and needed to come out but the problem is due to the shape - it is about the size of a 10p he isn't sure how to close it.  Before I left he also said he has only seen one like it in the last two years.  So I am none the wiser.

     

    I stupidly looked it up on google and had a meltdown when I was in my own.  However I have decided that getting upset won't help anyone and I have to wait to get my biopsy results to see what I'm dealing with.  
     

    I just feel very angry that it was left so long and I was told it was a harmless wound that I should put a plaster on.

     

    Rant over. Back to the real world 

    Julie

  • I had the mass removed two weeks ago and spoke to my surgeon today.   He confirmed it was melanoma.

    I am heartbroken he said that there was other things on the pathology report that they need to discuss.  He told me that the dermatologist will be having a MDT meeting and would contact me in a couple of weeks 

    Where does this leave me?  I'm so afraid that it's spread and don't know what will happen next 

    Julie

  • I'm sorry about your diagnosis Julie but the good thing is that the cancer has been found and once the MDT meeting has taken place a treatment plan can be put in place.

    I'm sure you're contending with a lot of thoughts and feelings at the moment but I hope one of our resident members, [@AngieT]‍, can help. She was diagnosed with stage 3 melanoma back in 2009 so is very knowledgeable in this field and will hopefully stop by when she can to offer her support and advice.

    If you'd like to talk things through with one of our cancer nurses in the meantime, you're very welcome to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph

    Thank you for coming back to me

    I will just have to wait until they get back to me to find out what I am dealing with.  Having breast cancer 4 years ago hit me so hard I was hoping I could have a few more years respite. I hoped it wasn't melanoma as I was told that it mainly affected moles and not trauma as with my foot. 
     

    im also anxious as the surgeon said there were other things which I haven't got a clue what they could be

    Thanks again

     

    Julie

  • Hi Julie,

    I'm so sorry to hear that your diagnosis is melanoma rather than squamous cell and I know how worrying it is when you are given half the information and have to wait for the rest. It's unusual for melanoma to be due to trauma but it's not unknown - I'm sure that it's something that will be discussed with you. If it is trauma related, the delay in it being removed will probably not have given it time to progress but again, that's something they will address at your appointment. It's a real bummer when you get over one cancer diagnosis and then get another but I'm sure your clinical team will be on the ball with a treatment plan depending on the depth & Stage of the melanoma. The positive to hang on to is that it has now been removed.

    I know that many questions will be going through your mind & that you don't have enough information to know what will apply to you yet, but I will send you a friend request so we can chat if you find it helpful. I hope they get back to you quickly so you aren't left in limbo too long,

    Angie x