Recovering after stem cell transplant

Hi all, i hope you're well considering eveything that's happening at the moment.

  So, I've recently been discharged follwing a stem cell transplant just before christmas. Can't honestly say that the whole experience was pleasant at all, but it's something that needed to happen. Although having to have a platelet and blood transfusion since being discharged I seem to be recovering quite well (touch wood) which is surprising as the consultants etc told me to expect to be poorly for between 2-6 months after. I'm hoping to have my Hickman line removed soon which will be so good and one step to some kind of normality. So far, a great start to the year.

 

Stay safe, stay strong

 

Tim 

  • Bless you seriously I just read your post. So my wife of 6yrs is waiting on blood work because she has had unexplained weight loss and a few other things that had her nutritionist worry enough to run blood work for cancer. I know she's scared and worried and me idk how im gonna live without her she is all I have left in this world and idk what to do. Ik im worrying before we even have news but my biggest fear is to lose my wife early and especially watch her suffer. I just wanted to ask how is stem cell treatment I've heard about it and read some things but exactly what type of cancer is it for and how does it work and what are the chances of remission? Also what is the average chance of remission? Im dying of stress and worry and just need to hear so.e advice and stories thank u so much for your story and God bless you and your family and hope things stay looking up for you have a wo derful day

  • Keep yer chin up bro. Its half the battle. Eat well n sleep well. Ive just came thru stage3 lung cancer they say im clear but im confused as theyre saying it was gone on the 7th jan. My treatment was from 21stdec-19th jan. So less than 12 days n i was tumour free? A 3 cm tumour just gone? Theyre iffering me immunotherapy not sure wether to take it or not trying to find sumone who has had it.  Hope you stay strong n kick cancer right in the testiculars bro.. increase the paece.

  • Hi there, thanks for your reply, I hope you're well.

      Firstly, legt me say how sad I am to hear of your wife's current situation and I hope that it is nothing to be worried about. I can totally understand how you're feeling, as 1 of the most difficult parts of my journey with cancer has definately been the not knowing and waiting to be told either way. Whilst we're not married, my girlfriend and I have been together 7yrs this year and she has been there by my side not just through this but through other problems and she will be feeling exactly the same as you are towards your wife. 

      The stem cell transplant I had was pretty much ok, but obviously it depends on the patient as people react differently to treatments. For mine I had a stem cell harvest, taking cells from my own blood which they treated. This was completley painless, it was kinda like giving blood in the sense that stick a tube into your arm, take out blood which goes through a machine to seperate the cells and you have another tube in your arm to give you back the blood. After that, I had (I think) 2 more sessions of chemo before having confirmation of my admission to hospital for the transplant. That's the easier part.

      Now for the bad part, but try not to worry about this as stem cell transplant I believe is something the Drs think about if chemo isn't succesful (I had 3 or 4 types of chemo before having the transplant). If a transplant is needed, your wife will be admitted to stay in hospital for 3-4 weeks. I had chemo for 5 days before the transplant, but having chemo is painless I don't think I saw anyone in pain during treatments other than having cannulas put in. Now for the gross part. The cells are stored in some kind of preservative that make them smell of something like pickled sweetcorn which as soon as the bag of cells was opened I could smell and taste, and it is pretty *** nasty. 

      As for chances of remission, that is something that God forebid you don't have to deal with, your oncolgy team will go through as it varies on type of cancer. Fortunately I was diagnosed with a cancer that although it's classed as stage 4, the success rate of curability is in the averages of 80%. If you need to, and again I hope you don't have to, you need to be in remission before having the transplant. 

    I hope that this has helped, and I just want to say that I'm just telling you of my experience with stem cell transplant and my cancer, so you might get some different info should you get the bad news that I hope you don't.

    Wishing you all the best, fingers crossed for you and your wife

    Stay safe, stay strong

    Tim    

    Ps, sorry if I waffeled on a bit  lol

  • Hi there, glad that you are doing well  :)

    Everything seems to be looking on the up so far, which is a good sign as on discharge I was pretty poorly, I was discharged 2 days before christmas and before I was discharged I developed severe mouth/tongue ulcers and was still suffering from mucositis so trying to eat christmas lunch was a challenge  :(

    How long had you had it before told you are clear? I was diagnosed with stage 4 Hodgkins Lymphoma toards end of 2019 and was in remission towards end of last year, allowing me to be admitted for the transplant. I had a consultation with my Dr this morning and my next PET scan is going to be at the end of the month, and I should be having the vaccine around March so all is looking good so far  :)

      Thanks for the reply and the positivty

    Stay safe, stay strong

    Tim