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Recently diagnosed with breast cancer

25 Apr 2019 01:53 in response to BigJean

 

HI BigJean,

I just want to wish you all the best for your meeting with the oncologist tomorrow.

Have you written down a list of questions to take with you? This is always a good idea, as it is so easy to forget some things.

Fingers crossed for you.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

25 Apr 2019 20:22 in response to Jolamine

Hi Jolamine, 

thank you for your kind words. 

I met with the oncologist today he was lovely . He told me it is curable. 

I’ve to have an Eco done on my heart then will start AC chemo for 4 sessions. Then on to another type can’t remember the name but it will be given with herceptin that will be every week for 12 weeks. 

Still a bit freaked as he said this chemo will kill the cancer even if it is anywhere else and even though they can’t see it .

The breast surgeon told me last week that it hadn’t spread and all scans and tests were clear . 

Tough road ahead but just want to get started now . 

Xxxxxxx 

 

 

Recently diagnosed with breast cancer

26 Apr 2019 01:25 in response to BigJean

 

Hi BigJean,

I'm glad to hear that your appointmet went well today and that your oncologist was able to reassure you that it is curable.

Don't worry about what he said about the chemo killing cancer, even if it is elsewhere and cannot be detected. This doesn't disagree with the breast surgeon, when he said that it hadn't spread and all scans and tests were clear. This sounds as if the oncologist was just trying to assure you that, even if something was at such an early stage that it hasn't shown up, it would still be killed by the chemo.

Have you any idea when you are going to start your chemo?  I'm sure that you are just keen to get on with it now.

Don't forget to let us know how you get on. I hope that it all goes well.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

26 Apr 2019 19:25 in response to Jolamine

Hi Jolamine, 

thank you so much for your reply and reassurance. 

Not having a good day today , I keep thinking the worst. He did say something about a mass and that the surgeon would like it to shrink more before they do surgery. He never said anything about size or grading ?? 

I don’t want to google anything about DCIS . 

I was very positive the last few weeks but today I’m just terrified. I don’t know why I’m feeling like this as I was doing so well , especially when the breast surgeon said it was treatable and the oncologist said it was curable. 

I just feel very overwhelmed today . 

Sorry to rant on . 

J xxx

 

Recently diagnosed with breast cancer

27 Apr 2019 02:32 in response to BigJean

 

Hi BigJean,

You have been so positive throughout all the time you've waited to get a diagnosis that you had to have a 'black day' sometime.

I'm sorry to hear that today has been a bad day for you. Nearly all of us fear the worst at this stage, but fortunately this seldom turns out to be the case. If there is a mass present and, it is fairly large, it is common to use chemo prior to surgery to try and reduce the size of the tumour.

The oncologist wouldn't have told you that it was curable if it isn't, so please try not to worry. Try not to consult 'Dr Google' as much of the information is out of date, poorly researched or sensationalist.

Just remember that we are always here for you.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

27 Apr 2019 11:14 in response to Jolamine

Hi Jolamine, 

thank you so much for your kind words and support. 

The last few days have just been all over the place. I know that he wouldn’t have said it was curable if it wasn’t.  Think the reality of it all is starting to hit me now and I’m just terrified of what’s ahead of me . 

I’m trying to be as normal as I can in front of my family and not let them see I’m worried sick on the inside. 

I’ve to go on AC chemo first for 4 sessions, then another one beginning with T can’t remember! And herceptin for 12 weeks. 

Just an awful lot to take in . 

Sorry for all the negative thoughts . 

J xx

Recently diagnosed with breast cancer

27 Apr 2019 14:26 in response to BigJean

 

Hi BigJean,

Don't be sorry for the negativity. We all have thoughts like these and it is just not possible to keep upbeat all of the time.

Try to hold on to what the surgeon and oncologist have told you - this is curable. If it wasn't, they wouldn't give you false hope.

There is an awful lot to take in. You have a hard few months a you, but you will get through it. You will feel better emotionally once you actually start your chemo and, know that you are at long last fighting the disease.

It is hard to try and protect the family from what you are going through. What ages are your children? Children have big ears and often overhear conversations that they are not supposed to hear. They will know that something is amiss when you are away for treatment. What you tell them will be dependent upon their ages, but younger children don't need chapter and verse, just a simple explanation will suffice.

It is better that you tell them yourself, rather than waiting for them to hear it from another source. This way they will feel involved in helping you to fight this.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

27 Apr 2019 19:10 in response to Jolamine

Hi Jolamine, 

thank you for all your support and advice. I’m feeling a bit better now .

would you have any idea why they want to do an echo on my heart before chemo ?? 

My children are 17, 14,13 and nearly 12 . 

We have been very honest with them and told them I will be going for treatment to make me better and any questions they have to ask us and not to look up the internet. 

I know it’s going to be a long road but I’m going to fight this for my family . 

Thank you again . 

Have a lovely weekend 

J xx

Recently diagnosed with breast cancer

28 Apr 2019 03:31 in response to BigJean

 

Hi BigJean,

I'm glad to hear that you are feeling a bit better now and back in fighting mode..

I haven't had chemo, but have heard of others having an ECG before they start. I am not a doctor, but I presume that this is to ensure that the heart is strong enough to withstand treatment. It seems to be a fairly common test. Never agree to any treatment or tests unless you know why you're getting them - always ask if you're not sure.

Your children are old enough to understand what is going on and, I'm glad that you have been honest with them. Have you mentioned anything about your diagnosis and treatment to the school and teachers? It is always a good idea to do this, so that they are aware of the situation and can keep an eye out for any upset at school.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

28 Apr 2019 21:21 in response to Jolamine

hi Jolamine

 

what a week!!!!  I had to return from holiday in Devon to see the surgeon about my appendix, he doesn’t believe it’s an issue, but requested another scan to be sure which I had on Friday, so just waiting for the results from that.  I’m scheduled to start Chemo next Thursday if all is ok.

 

i also told my children who are 7 and 9, the little one doesn’t really understand the older one is more aware and has a lot of questions, but also the kindest heart. We also met with the head teacher to make her aware so the school can provide support where needed. 

 

See my oncologist on Tuesday and hopefully all systems go.

 

WL

Recently diagnosed with breast cancer

28 Apr 2019 21:43 in response to BigJean

Hi BigJean

 

just catching up on your posts.  I too have been told I have a large mass, and that the chemo will shrink it.  It freaks me out, but I’ve got myself to a place of I can’t change it and I have to trust the experts. 

 

I told my children  yesterday and it broke my heart, But they have been very curious, asking lots of questions.  

 

Back to to the oncologist on Tuesday and scheduled to start chemo on Thursday if my appendix scan comes back ok.

 

we can do this, I’m with you all the way.

X

Recently diagnosed with breast cancer

29 Apr 2019 10:25 in response to Woollylamb

Hi WL , 

great to hear from you . Fingers crossed your scan was clear and you can start treatment. I’ve been quite down the past few days but am feeling a lot better now . It’s just so much to take in. I’ve to have an Echo done on my heart before I start chemo then hopefully i should be starting next week . 

Its very tough telling the kids but we have been honest with ours and told them I have to have treatment to make me better . 

I just want to get on with it now and fight it and yes I’m with you too all the way . 

Let me know how you get on tomorrow.

have everything crossed for you . 

J xxxxx

Recently diagnosed with breast cancer

29 Apr 2019 10:30 in response to Jolamine

Hi Jolamine, 

im back to myself today and in v good form. Thank you for all your advice and support. 

My 3 girls are in secondary school and I have spoken with the school they have been fantastic and have had the guidance counselor and chaplain speak to all the girls . 

My youngest is still in primary so I’ve spoken to the principal and his teacher and they too have been amazing.,

Ready to face what’s ahead of me now ! 

Hope all is well with you

take care 

J xx

Recently diagnosed with breast cancer

29 Apr 2019 23:00 in response to Woollylamb

 

Hi Woolylamb,

I'm glad to hear that your appendix doesn't seem to be an issue and hope that Friday's scan doesn't show up anything untoward. Have you been told when you will get the results?

You will probably get some very strange questions, but this is only natural from children. It is good that you have already told the children and spoken to their teachers.

I hope that you have drawn up a list of questions for your oncologist tomorrow and that you are taking someone with you to this appointment.

I have my fingers crossed for you tomorrow and hope that all is still ok with your appendix. I expect that you just want to get on with your chemo now and, hope that you can do so.

Kind regards,

Jolamine xx

 

 

Recently diagnosed with breast cancer

29 Apr 2019 23:11 in response to BigJean

 

Hi BigJean,

Well done you. You will find it better now that the children are in the know, but be prepared for some strange and searching questions from time to time! It's good to hear that both schools have been helpful.

Have you got a date for your ECG yet? I hope that it all goes well.

Kind regards,

Jolamine xx