Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx
I am sorry to hear about your diagnosis. This is my first post on This forum and I am responding as your story is similar to mine. I am 43, with 2 young children and was diagnosed with breast cancer 2 weeks ago and it’s in my nodes. I too had to go for a CT scan, bone scan and MRI and was absolutely terrified.
The wait is horrible and I had pains appear where I didn’t know I could have pains and convinced myself it had spread.
The only think I can recommend is to keep yourself distracted, and try not to worry about what you don’t know, push it to the back of your mind.
Whatever those scans say you can deal with it, and there are loads of people on here who will support you.
Keep in touch and let me know how you get on.
Hi, sorry you find yourself on here. ( and you woollylamb)
its entirely normal to feel pains everywhere and think the cancer is invading other parts .... sadly I think I will always be like this now as only this morning " the good boob" has been aching and has me wondering......
keep dipping in and out of the forum, I get a lot of comfort from the lovely peeps here, your amongst friends.....good luck with the scans.....xxxx
Hi Woollylamb ,
Thank you for your kind words . I think the waiting is the worst part . I’m trying to stay as positive as I can and keep doing normal things as I have 4 children . So have to fight for them .
This may sound surreal to you but my Grandads pet name for me was Woolly lamb !!
I hope all goes well for you too and I will keep in touch .
Hi Marlyn ,
thank you for your kind words also . I hope it could be something very simple with your good boob !! You are probably stressed out with worry .
You have all reasssured me so much today .
I hope everyone has a lovely weekend . Will keep in touch xxxxxxx
A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.
I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.
I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.
Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.
A very warm welcome to our community, although I'm sorry to hear of your diagnosis. Waiting for results is always a scary time. Have you discussed your treatment options yet?
You have obviously already read other posts here advising you to distract yourself from the wait by keeping busy. It is never easy to put it to the back of your mind.
You are quite right, whatever we have to face, we can deal with it. I have had 2 bouts of breast cancer in the past 9 years. I had a lumpectomy the first time and a double mastectomy the second and, I'm pleased to say that I am still here to tell the tale.
Do please keep in touch and, let us know how you get on. We are always here for you.
Thanks your you kind message. I have got my plan, had the results from my scans on Friday and it’s not spread anywhere else which is good news. Due to the size and where it is they want me to have chemo first, then mastectomy, then radiotherapy. I feel much more in control now I have a plan. My Mum breast cancer 17 years ago and is still here so I have a good role model to follow.
My BC nurse is amazing, and has been fab while I’ve been waiting for results etc, worth her weight in gold.
I am glad to hear that you have your plan in place. You will feel more positive as you move forward with this now. It is indeed good news that it hasn't spread to your lymph nodes. When are you due to start chemo?
It must be encouraging to see that your mum is still here after 17 years - long may she remain! It makes all the difference in the world to have a good breast care nurse and a surgeon who you can put your trust in.
I hope that it all goes well for you. Don't forget to keep us updated when you can. We are always here for you.
Apols, I wasn’t clear in my previous message, it is in my nodes, but it hasn’t spread anywhere else in my body.
I have an appointment with my oncologist in a week then I guess within 2 weeks after that. I haven’t told my children yet as I want to be specific about what’s going to happen and when.
I will keep in touch as things progress.
I'm sorry to hear that it is in your nodes - do you know how many it is in? It is however good news that it hasn't spread elsewhere.
You will probably discuss the way forward with your oncologist next week. Most people leave telling family until they know exactly what they are facing.
Welcome to the forum, but sorry for the reasons you've joined us.
I was diagnosed last year with stage 3C breast cancer (at 41). It is very easy to consider every other pain and twinge to be spread of the cancer but the reality is when you get bad news like cancer you do tense up, you don't sleep as well, you get anxious and all these things will lead to pain in your back, neck etc. so best try not to overthink them. You are in good hands now and will be starting treatment so best to leave aside any unecessary anxiety.
Like you I was healthy, never smoked, not a great drinker, but the fact is we don't give ourselves breast cancer. Knowing that there are numerous variables that can (very) slightly increase or decrease risk of getting breast cancer isn't the same as causation. As it turns out mine is genetic, but for most it's just bad luck.
We'll all be here for support as you go through treatment. Ask any questions you want, I hope you fnd this place as invaluable as I have.
Hi Jolamine ,
thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all .
I’ll let you know how I get on on Tuesday but I am ready to fight
talk soon xx
thank you so much for your words of encouragement . I’m in really great form today am being very positive and am ready to fight . Sorry to hear about your diagnosis . I’m so thankful for all the support I have gotten on here , I’m just going to focus on what the dr told me when he said I had BC he said it’s treatable and I said I didn’t want to die and he said I wasn’t going to .
talk soon xxx
This is just the attitude you need. Keep it up. Many of us don't feel sick or feel any pain when we first attend the breast clinic. Cancer is often found by chance rather than symptoms.
I'm keeping my fingers crossed for you on Tuesday.
That's not too bad if they have only found it in 2 nodes, especially when they know that it hasn't spread elsewhere. Your treatment should zap this.
Hi WL ,
sorry haven’t been on in a while . Had meeting with dr last week for results and was delighted all scans came back clear . Huge relief , my husband and I actually cried with relief that it hadn’t spread .
I have to meet with the oncologist in a couple of weeks then will start chemo for 4-6 months , then surgery after that .
Hipe all going well with you . Thanks so much for getting in touch I really appreciate it . Talk soon
hi Big Jean
Thats the best possible news, I’m so pleased it hasn’t spread. I know what that sense of relief feels like.
i had a meeting with the oncologist today; when they did my scans they picked up I had an inflamed appendix, so have referred me to have it looked at before I start chemo. So not a great start as I was mentally geared up to start chemo in the next couple of weeks, but it’s the right thing to do. So another two weeks wait.
Sounds like we are on similar treatment paths, it would be good to keep connected throughout our journeys.
This is great news. I'm not at all surprized that it drove both you and your hubby to tears.
You're now ready to move on to treatment and, will feel better once you start that and, feel that you are beginning to move forward.
Don't forget to keep in touch as you move along your cancer journey.
We are always here for you.
I am so sorry to hear about your inflamed appendix. It is always disappointing when your chemo is delayed, but it is certainly the right thing to investigate this problem first.
I hope that you can find answers soon and move back to your chemo.
sorry to hear about your appendix but it will be better to get it sorted before you start chemo .
It does sound like we are on very similar paths .
I just want to get started as now I know what’s ahead of me .
Keep in touch and let me know how you get on .
it was a huge relief to get that news as we were expecting the worst .
I’m so grateful for everyone’s kind words and advice .
i just want to get started now as I’m ready to fight and face what’s ahead of me .
Will keep in touch .
Talk soon xxxxx
I am so glad that things weren't as bad as you suspected and, can understand your need to get on with treatment now as soon as possible.
I sincerely hope that it all goes well.
i forgot to mention that I have been told I have to go on Herceptin every 3 weeks . Didnt really ask anything about it was just given a leaflet about it ! Does anyone have any advice on this ??
thank you all so much . Xx
I'm on Herceptin and Perjeta every 3 weeks for 10 years. At the moment it's given with my chemo but once chemo stops I'll still be going in every 3 weeks.
I am allergic to it so am given an IV antihistamine too but hopefully you won't be allergic anyway. Nothing really to advise you, I get no side effects from the H or P, my mum was on Herceptin too and she never had any side effects from it.
They'll monitor your heart closely as it can cause damage to your heart. One way to help protect against that or minimise it is to follow the usual rules for improving your 'ejection fraction', you can Google these. They include obvious things like cardio exercise and monitoring your sodium intake (and, therefore, fluid retention). But obviously speak to your oncologist before starting or changing anything.
Hi thanks for getting back to me . It was the nurse that told me I would be going on it . She just gave me a leaflet and said I would be on it every 3 weeks with chemo .
Bit worried now as there are heart problems on my Dads side of the family .
I’ll say this to the oncologist when I see him on Thursday.
Thanks for your advice
Twintwo, I was thinking I hadn't seen you and you pop up! How are things going?
I had chemo 4 yesterday so feeling a bit grotty now. Was told I will be starting herceptin after chemo finishes, but hadn't realised I will be kept in for 6 hours incase of any reactions , then on the next one it will be 2 hours then all being well the others will be a 5 min job... I was also relieved to read you and your mum were ok on it...fingers crossed I will be xxxxx
Hi I’m sorry to jump on your post but i am similar to your situation, I think. I’m 47 found out few weeks ago grade two breast cancer after finding large mass and having biopsy but wasn’t given a stage yet. Biopsy done Thursday on lymph nodes as they are enlarged but was told if it has spread to lymph nodes then will need a body scan to see if it’s spread. Sending myself do lolly thinking I’ve got stage four and it’s spread with only weeks/months to live. Can’t understand why all this waiting. Cantbthey jyst take it out and then start treatment. I want to know what I’m facing and how we plan to fight it then I can start kicking it’s arse -hopefully
Hi Mejules ,
sorry to hear about all you are going through. The waiting is the worst part . Mine is in my lymph nodes but thankfully hasn’t spread anywhere else . I was given CT , Bone Scan and MRI . They are honestly not that bad . Try not to worry as the lovely ladies on here told me. I just kept thinking positive thoughts and put the negative out of my mind . I know it’s easier said than done . Fingers crossed all goes well for you . Keep in touch and let us know how you get on . Xxxx
I am so sorry to hear about you diagnosis. Waiting for the results of tests is always a worrying time. We all tend to think the worst at this stage, but fortunately, this doesn't often come to pass.
I sincerely hope that there is no spread to the lymph nodes. A lot happens behind the scenes whilst you are getting tests. They have to get the results back from the laboratory. When these come back, the consultant will attend a multidisciplinary team meeting (MDT) and here s/he will discuss with other members of your care team, the best form of treatment specifically for you.There are over 100 types of breast cancer and they need to know a number of factors before starting on treatment. They don't want to rush into treatment head first, without knowing exactly what they are up against.
Once your consultant knows what you are up against, s/he will not waste any time on commencing treatmnt, so please try not to worry too much.
Do please keep in touch and let us know how you get on. We are always here for you.
Hi thanks for replying. I’m having trouble as I’m fixating on it being stage four and no hope. The wording “large” is making me assume it’s bad and the fact they think it was hiding eight months ago when I last had a mammogram also making me think it’s really bad. Stage four meditate is causing me sleepless nights and bouts of me feeling low. I’ve got shoulder pain, sore throat, everything indicating it has spread. I know it’s so irrational but I just can’t stop. Be found out it’s oestrogen positive and reh2 negative so have stopped drinking cows milk but unsure if I should be drinking soya as that also contains elements of oestrogen. I could waffle on and on about what I’ve googled and know it’s the wrong thing to do. Just sonwant a treatment plan .
Sorry to be so negative and I do truly appreciate your reply. Will keep you updated x
What is making you think that you have grade 4 cancer, when it has already been diagnosed as grade 2? I know that most of us tend to think the worst before diagnosis, but you know that this is not the case now.
We all tend to suffer similar emotions to you whilst waiting on the results of tests, but fortunately, this seldom seems to be the case. Try your best to stay away from Dr Google, as many of these sites are out of date, poorly researched or printed for sensationalism. It never does anyone any good and only serves to scare us even more. Try your best to stay away from these sites. If you must search, try only the respected sites like this one.
I do hope that there is a simpler solution to all of your problems and that you don’t have much longer to wait before you start treatment.
im sorry I think I’ve waffled that much I’ve got myself confused haha it’s grade 2 but they haven’t given me a stage and it’s the stage 4 that I’m obsessing about. Irrational I know. Get my biopsy results from the lymph nodes today so hoping for some positive news but with them being enlarged I’m guessin the likelihood is it’s spread to them x
thank you for replying. I’m not normally such a negative nancy and most of the time I find myself upbeat and forgetting I’ve got breast cancer as in myself generally I feel no different but I do lapse into panick mode occasionally and google every ache and pain. Thanks for being supportive truly appreciate it x
I've been where you are. I've had 2 bouts of breast cancer in the past 9 years, but I've also had a number of false alarms. In both instances I've felt just as stressed as you are now. On the whole, I've had more good results than bad from my diagnoses. This is in line with the general results for breast cancer, where only 1 person in 10 is diagnosed with cancer when they attend the breast clinic.
You will get your staging after surgery, so no point in worrying about it until then. Try to keep yourself as busy as possible to take your mind off the wait.
Hi Jean, I to was diagnosed with breast cancer and affected lymph nodes when I was 45. As everyone says the waiting is definitely the worst bit. I had the same as you full scan and all fine, even though my back was really hurting me. This was 23 years ago. I think we get so stressed, so scared that the brain goes into overdrive. I could not sleep and felt I could not really talk to anyone, or at least not what I wanted to really say. My husband bought me a hard back notebook and told me to write down anything I wanted to and he said he would never ever read it (unless I wanted him to of course) Often at some ungodly hour in the morning, when the night terrors come, I would get up and write down exactly what I felt like, be sad, be angry, all emotions. it seemed that once I got it out of my system I was calmer and could sleep and it really helped. Being free to say what ever I wanted. It helped me so much I continued it on for a few years and after all these years, my husband has kept his word and has never read it.
Try it, could help you
Hi Gloverbee ,
thank you for sharing your story with me . Wow 23 years that’s amazing . I’m going to take your advice and write everything down . That’s a great idea . I’m trying to be as positive as I can .
im meeting with the oncologist tomorrow so am a little worried about that as don’t know what to expect.
Thank you again for your advice. Will let you know how I get on .
Just remember that what ever he says, there is always treatment . While no one wants cancer, it can and often is beaten by so many people. Let him/her do their job, you can then concentrate on your job which is to take back the control and start getting rid of thoes wonky cells. For me I started looking at what was out there, and was recommended to go to the Bristol Cancer Centre. I went with an open mind and booked in for a few days. They showed me how to be positive, taught me how to meditate, visulisation (which I used every day and while I was having treatment) and introduced me to other options. Some good, some just not for me, but I was back in the driving seat and it gave me the focus and the committment to beat this. Tomorrow will be one of thoes 'dreading' days but will be good to get done and know where you are going with all this. Then start your journey xx
The breast surgeon told me that all my scans were clear and that it hadn’t spread anywhere else which was a huge relief.
I’m ready to face and fight what’s ahead of me . I know it’s not going to be easy but I’ve a great support network and I’m very positive .
The dr told me it’s over 90% treatable and they know exactly where it is and how to treat it .
Just nervous about meeting the oncologist tomorrow.
Oh wow, thats fantastic. What great odds. Love it. Just great news to go to bed on
PS: The oncologist will be lovely, just wait and see. and......if he/she are not, find another.
I just want to wish you all the best for your meeting with the oncologist tomorrow.
Have you written down a list of questions to take with you? This is always a good idea, as it is so easy to forget some things.
Fingers crossed for you.
thank you for your kind words.
I met with the oncologist today he was lovely . He told me it is curable.
I’ve to have an Eco done on my heart then will start AC chemo for 4 sessions. Then on to another type can’t remember the name but it will be given with herceptin that will be every week for 12 weeks.
Still a bit freaked as he said this chemo will kill the cancer even if it is anywhere else and even though they can’t see it .
The breast surgeon told me last week that it hadn’t spread and all scans and tests were clear .
Tough road ahead but just want to get started now .
I'm glad to hear that your appointmet went well today and that your oncologist was able to reassure you that it is curable.
Don't worry about what he said about the chemo killing cancer, even if it is elsewhere and cannot be detected. This doesn't disagree with the breast surgeon, when he said that it hadn't spread and all scans and tests were clear. This sounds as if the oncologist was just trying to assure you that, even if something was at such an early stage that it hasn't shown up, it would still be killed by the chemo.
Have you any idea when you are going to start your chemo? I'm sure that you are just keen to get on with it now.
Don't forget to let us know how you get on. I hope that it all goes well.
thank you so much for your reply and reassurance.
Not having a good day today , I keep thinking the worst. He did say something about a mass and that the surgeon would like it to shrink more before they do surgery. He never said anything about size or grading ??
I don’t want to google anything about DCIS .
I was very positive the last few weeks but today I’m just terrified. I don’t know why I’m feeling like this as I was doing so well , especially when the breast surgeon said it was treatable and the oncologist said it was curable.
I just feel very overwhelmed today .
Sorry to rant on .
You have been so positive throughout all the time you've waited to get a diagnosis that you had to have a 'black day' sometime.
I'm sorry to hear that today has been a bad day for you. Nearly all of us fear the worst at this stage, but fortunately this seldom turns out to be the case. If there is a mass present and, it is fairly large, it is common to use chemo prior to surgery to try and reduce the size of the tumour.
The oncologist wouldn't have told you that it was curable if it isn't, so please try not to worry. Try not to consult 'Dr Google' as much of the information is out of date, poorly researched or sensationalist.
Just remember that we are always here for you.