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Recently diagnosed with breast cancer

6 Apr 2019 12:13

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Recently diagnosed with breast cancer

6 Apr 2019 14:22 in response to BigJean

Hi Bigjean

I am sorry to hear about your diagnosis. This is my first post on This forum and I am responding as your story is similar to mine. I am 43, with 2 young children and was diagnosed with breast cancer 2 weeks ago and it’s in my nodes. I too had to go for a CT scan, bone scan and MRI and was absolutely terrified. 

The wait is horrible and I had pains appear where I didn’t know I could have pains and convinced myself it had spread.  

The only think I can recommend is to keep yourself distracted, and try not to worry about what you don’t know, push it to the back of your mind. 

Whatever those scans say you can deal with it, and there are loads of people on here who will support you. 

Keep in touch and let me know how you get on. 

Big hugs 

WL

 

Recently diagnosed with breast cancer

6 Apr 2019 15:26 in response to BigJean

Hi, sorry you find yourself on here. ( and you woollylamb) 

its entirely normal to feel pains everywhere and think the cancer is invading other parts .... sadly I think I will always be like this now as only this morning " the good boob" has been aching and has me wondering......

keep dipping in and out of the forum, I get a lot of comfort from the lovely peeps here, your amongst friends.....good luck with the scans.....xxxx

Recently diagnosed with breast cancer

6 Apr 2019 15:32 in response to Woollylamb

Hi Woollylamb , 

Thank you for your kind words . I think the waiting is the worst part . I’m trying to stay as positive as I can and keep doing normal things as I have 4 children . So have to fight for them . 

This may sound surreal to you but my Grandads pet name for me was Woolly lamb !! 

I hope all goes well for you too and I will keep in touch . 

Thanks again 

 

xxxx

Recently diagnosed with breast cancer

6 Apr 2019 15:35 in response to Marlyn

Hi Marlyn ,

thank you for your kind words also . I hope it could be something very simple with your good boob !! You are probably stressed out with worry . 

You have all reasssured me so much today . 

 I hope everyone has a lovely weekend . Will keep in touch xxxxxxx

Recently diagnosed with breast cancer

6 Apr 2019 19:02 in response to BigJean

 

 

Hi BigJean,

A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

Kind regards,

Jolamine xx

 

Recently diagnosed with breast cancer

6 Apr 2019 19:10 in response to Woollylamb

 

Hi Woolylamb,

A very warm welcome to our community, although I'm sorry to hear of your diagnosis. Waiting for results is always a scary time. Have you discussed your treatment options yet?

You have obviously already read other posts here advising you to distract yourself from the wait by keeping busy. It is never easy to put it to the back of your mind.

You are quite right, whatever we have to face, we can deal with it. I have had 2 bouts of breast cancer in the past 9 years. I had a lumpectomy the first time and a double mastectomy the second and, I'm pleased to say that I am still here to tell the tale.

Do please keep in touch and, let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

 

Recently diagnosed with breast cancer

6 Apr 2019 19:12 in response to Marlyn

 

Hi Marlyn,

Sorry to hear about the good boob. I hope that this is just a passing phase and nothing more.

Thinking of you.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

7 Apr 2019 13:31 in response to Jolamine

Hi Jolamine

Thanks your you kind message.  I have got my plan, had the results from my scans on Friday and it’s not spread anywhere else which is good news. Due to the size and where it is they want me to have chemo first, then mastectomy, then radiotherapy.  I feel much more in control now I have a plan.  My Mum breast cancer 17 years ago and is still here so I have a good role model to follow. 

My BC nurse is amazing, and has been fab while I’ve been waiting for results etc, worth her weight in gold.

thanks again.

 

WL

Recently diagnosed with breast cancer

7 Apr 2019 14:16 in response to Woollylamb


Hi Woolylamb,

I am glad to hear that you have your plan in place. You will feel more positive as you move forward with this now. It is indeed good news that it hasn't spread to your lymph nodes. When are you due to start chemo?

It must be encouraging to see that your mum is still here after 17 years - long may she remain! It makes all the difference in the world to have a good breast care nurse and a surgeon who you can put your trust in.

I hope that it all goes well for you. Don't forget to keep us updated when you can. We are always here for you.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

7 Apr 2019 14:25 in response to Jolamine

Jolamine

Apols, I wasn’t clear in my previous message, it is in my nodes, but it hasn’t spread anywhere else in my body.  

I have an appointment with my oncologist in a week then I guess within 2 weeks after that.  I haven’t told my children yet as I want to be specific about what’s going to happen and when. 

I will keep in touch as things progress. 

 

Xxx

Recently diagnosed with breast cancer

7 Apr 2019 14:33 in response to Woollylamb

 

Hi Woolylamb,

I'm sorry to hear that it is in your nodes - do you know how many it is in? It is however good news that it hasn't spread elsewhere.

You will probably discuss the way forward with your oncologist next week. Most people leave telling family until they know exactly what they are facing.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

7 Apr 2019 14:35 in response to Jolamine

Hi Jolamine

 

its in 2 nodes, I don’t know whether that’s good or bad. 

 

WL

Recently diagnosed with breast cancer

7 Apr 2019 14:41 in response to BigJean

Hi BigJean,

Welcome to the forum, but sorry for the reasons you've joined us.

I was diagnosed last year with stage 3C breast cancer (at 41).  It is very easy to consider every other pain and twinge to be spread of the cancer but the reality is when you get bad news like cancer you do tense up, you don't sleep as well, you get anxious and all these things will lead to pain in your back, neck etc. so best try not to overthink them.  You are in good hands now and will be starting treatment so best to leave aside any unecessary anxiety.

Like you I was healthy, never smoked, not a great drinker, but the fact is we don't give ourselves breast cancer.  Knowing that there are numerous variables that can (very) slightly increase or decrease risk of getting breast cancer isn't the same as causation.  As it turns out mine is genetic, but for most it's just bad luck.

We'll all be here for support as you go through treatment.  Ask any questions you want, I hope you fnd this place as invaluable as I have.

LJx

Recently diagnosed with breast cancer

7 Apr 2019 14:52 in response to Jolamine

Hi Jolamine ,

thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

I’ll let you know how I get on on Tuesday but I am ready to fight 

talk soon xx

Recently diagnosed with breast cancer

7 Apr 2019 14:58 in response to TwinTwo

Hi Twintwo, 

thank you so much for your words of encouragement . I’m in really great form today am being very positive and am ready to fight .  Sorry to hear about your diagnosis . I’m so thankful for all the support I have gotten on here , I’m just going to focus on what the dr told me when he said I had BC he said it’s treatable and I said I didn’t want to die and he said I wasn’t going to .

thanks again 

talk soon xxx

Recently diagnosed with breast cancer

7 Apr 2019 17:46 in response to BigJean

 

Hi BigJean,

This is just the attitude you need. Keep it up.  Many of us don't feel sick or feel any pain when we first attend the breast clinic. Cancer is often found by chance rather than symptoms.

I'm keeping my fingers crossed for you on Tuesday.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

7 Apr 2019 17:49 in response to Woollylamb

 

Hi Woolylamb,

That's not too bad if they have only found it in 2 nodes, especially when they know that it hasn't spread elsewhere. Your treatment should zap this.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

7 Apr 2019 19:17 in response to Jolamine

Thank you Jolamine ,

i will keep in touch and let you know how I get on . 

Thanks again xxxxx

Recently diagnosed with breast cancer

16 Apr 2019 19:17 in response to BigJean

hi Big Jean

 

just checking in to see how you are?

 

WL

Recently diagnosed with breast cancer

16 Apr 2019 19:26 in response to Woollylamb

Hi WL , 

sorry haven’t been on in a while . Had meeting with dr last week for results and was delighted all scans came back clear . Huge relief , my husband and I actually cried with relief that it hadn’t spread . 

I have to meet with the oncologist in a couple of weeks then will start chemo for 4-6 months , then surgery after that . 

Hipe all going well with you . Thanks so much for getting in touch I really appreciate it . Talk soon 

Xxxxxxx

Recently diagnosed with breast cancer

16 Apr 2019 21:53 in response to BigJean

hi Big Jean

Thats the best possible news, I’m so pleased it hasn’t spread. I know what that sense of relief feels like. 

i had a meeting with the oncologist today; when they did my scans they picked up I had an inflamed appendix, so have referred me to have it looked at before I start chemo.  So not a great start as I was mentally geared up to start chemo in the next couple of weeks, but it’s the right thing to do. So another two weeks wait.

Sounds like we are on similar treatment paths, it would be good to keep connected throughout our journeys.

 

take care 

WL

 

Recently diagnosed with breast cancer

16 Apr 2019 22:01 in response to BigJean

 

Hi BigJean,

This is great news. I'm not at all surprized that it drove both you and your hubby to tears.

You're now ready to move on to treatment and, will feel better once you start that and, feel that you are beginning to move forward.

Don't forget to keep in touch as you move along your cancer journey.

We are always here for you.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

16 Apr 2019 22:05 in response to Woollylamb

 

Hi Woolylamb,

I am so sorry to hear about your inflamed appendix. It is always disappointing when your chemo is delayed, but it is certainly the right thing to investigate this problem first.

I hope that you can find answers soon and move back to your chemo.

Kind regards,


Jolamine xx

Recently diagnosed with breast cancer

17 Apr 2019 17:46 in response to Woollylamb

Hi WL,

sorry to hear about your appendix but it will be better to get it sorted before you start chemo .

It does sound like we are on very similar paths . 

I just want to get started as now I know what’s ahead of me . 

Keep in touch and let me know how you get on . 

Take care

xxxxxx

Recently diagnosed with breast cancer

17 Apr 2019 17:49 in response to Jolamine

Hi Jolamine, 

it was a huge relief to get that news as we were expecting the worst . 

I’m so grateful for everyone’s kind words and advice .

i just want to get started now as I’m ready to fight and face what’s ahead of me . 

 

Will keep in touch . 

Talk soon xxxxx

Recently diagnosed with breast cancer

17 Apr 2019 18:06 in response to BigJean

 

Hi BigJean,

I am so glad that things weren't as bad as you suspected and, can understand your need to get on with treatment now as soon as possible.

I sincerely hope that it all goes well.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

17 Apr 2019 21:46 in response to Jolamine

 

 

Hi everyone,

i forgot to mention that I have been told I have to go on Herceptin every 3 weeks . Didnt really ask anything about it was just given a leaflet about it ! Does anyone have any advice on this ??

thank you all so much . Xx

Recently diagnosed with breast cancer

19 Apr 2019 10:49 in response to BigJean

Just read this, that's great news Jean, really pleased.

LJx

Recently diagnosed with breast cancer

19 Apr 2019 10:53 in response to BigJean

Hi there,

I'm on Herceptin and Perjeta every 3 weeks for 10 years.  At the moment it's given with my chemo but once chemo stops I'll still be going in every 3 weeks.

I am allergic to it so am given an IV antihistamine too but hopefully you won't be allergic anyway.  Nothing really to advise you, I get no side effects from the H or P, my mum was on Herceptin too and she never had any side effects from it.

They'll monitor your heart closely as it can cause damage to your heart.  One way to help protect against that or minimise it is to follow the usual rules for improving your 'ejection fraction', you can Google these.  They include obvious things like cardio exercise and monitoring your sodium intake (and, therefore, fluid retention).  But obviously speak to your oncologist before starting or changing anything.

LJx