Recent Cancer Patient

Hello, my name is Kelly and I'm 15. I was diagnosed with a desmoplastic small round cell tumour (DSRCT) in October quite suddenly. I was diagnosed very suddenly as the doctors ordered and did lots of scans and I was diagnosed on that same day which came as a shock. Before the diagnosis my stomach blew up really big and I looked as though I was 9 months pregnant, but it was fluid that was being made by the two tumours. My stomach has gone right down now (thankfully) since they drained 12 litres of fluid from my belly out of a drain they fitted when I had a biopsy and bone marrow taken. My stomach was in incredible pain and no morphine could take the pain away. Now I'm undergoing chemotherapy and I'm finding it tough. I'm coming up for my 3rd round of chemo and every time I feel so sick and I get lots of phlegm. It's a nightmare... Sorry to go on, I would love to have someone to talk to who is understanding or in a similar situation as I'm struggling to go through it alone.. No one understands how I feel and I don't know who to turn to... Thanks

  • Hi Kelly,

    Welcome to the forum, but sorry to hear about your condition. I don't think anyone who hasn't been through chemo can understand how utterly awful it can make you feel. It can be worth it though, many of us on here would be dead by now if we'd not gone through with the chemo. 

    I'm sure you'll find many people on here who have gone through something similar. It might be worth posing something in Ask the Nurses or phoning them if you have any specific questions. 

    Best wishes
    Dave

     

  • Thank you Dave, that is very true.. I'm grateful for everything the nurses are doing for me and I'm even more grateful for my parents support through this. Chemo is nasty but it is essential, I don't want to die.

    Thanks for your advice, I might just do that. It would be nice to speak to someone.

    Thanks a lot Dave,

    Kelly

  • No worries - this is also a good place to have a rant or just to realise that there are hundreds of us of all ages and backgrounds going down the same scary path.