Together we will beat cancer


Really anxious

23 Jun 2022 06:24

Hi everyone,

I am new to this, no formal diagnosis but still worrying  and scared. 

Following some blood tests it was found I have paraprotein IgG Kappa. My liver levels are significantly raised and I am constantly exhausted, despite good sleep. My joints, most especially my right hip, are constantly painful and my movements are stiff. 
My consultant has referred me to a haematologist, although I have heard nothing about an appointment, referred for a liver scan and for a scan of my neck (a painful lump is increasing). 
I was seen in May this year and still haven't had any further appointments or scans. The longer it takes the more I am worrying, I understood these are suppose to be done within 2 weeks. 
I am not really sure what my question is but I would appreciate any help with not going mad while waiting. 

thanks in advance for your support. 

Really anxious

25 Jun 2022 10:35 in response to KEJ36

Hello KEJ36 and a warm welcome to Cancer Chat, 

just wanted to welcome you to our forum. Many on this forum will relate to this feeling you describe of going mad while waiting for results. I can imagine it must be a very stressful time for you while waiting to find out more especially as you have been waiting a while now to have further scans. I hope that you will get an appointment date soon to see the haematologist. 

I know it is really hard but try not to worry too much or anticipate what it might be while you are waiting for a formal diagnosis. The best thing to do to avoid thinking too much about this is to keep busy and distracted if you can and avoid looking things up online. I can imagine it is hard for you to do this at the moment but it will help you feel a little less anxious. I thought I would also share with you these useful tips to help you cope while waiting for important news. 

I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

Keeping everything crossed for you that everything turns out fine. 

Best wishes, 

Lucie, Cancer Chat Moderator

Really anxious

25 Jun 2022 12:05 in response to Moderator Lucie

Many thanks for your reply. It was helpful to look through all the advice. 

Really anxious

25 Jun 2022 12:39 in response to KEJ36


I completely understand your anxiety. 

I'm still waiting on scan results.. 3.5 week's ago.

Left 2 messages with his secretary.. Not reply!

Really anxious

26 Jun 2022 08:39 in response to Fallmare

Thank you for responding. I am sorry to hear you are playing the waiting game too. I hope they get back to you first thing Monday with a date. let us know how it goes.

Really anxious

26 Jun 2022 10:19 in response to KEJ36

Good morning 

I hope you receive yours soon too. 

I'm really worried 

Really anxious

26 Jun 2022 10:49 in response to Fallmare