Rare lymphoma

hi everyone, I was just wondering if anyone has had NMZL, I've been diagnosed with it. Starting R-CVP in a few weeks, bit anxious about the first course of treatment, any advice would be grateful. 

  • Hi scones, 

    I can see you've been chatting to others who have experience of NMZL already which is great to see but I just wanted to put you in touch with [@MarkyT]‍ as they were diagnosed last year, had chemo as part of their treatment plan and were recently told they are in remission. I'm not sure if it they had R-CVP but hopefully they'll pop by when they can to clear that up and share their advice and experiences with you. 

    We also have some information about R-CVP on our website just here if you'd like to find out more about it and you may like to have a look at the lymphoma action website for more possible connections and support from others with the same diagnosis. 

    Good luck with your first course of chemo scones. I hope it goes well and you don't experience too many side effects. If you have any other questions you're more than welcome to give our cancer nurses a call next week. Their freephone number is 0808 800 4040 and are available Monday - Friday between 9a.m - 5p.m.

    Kind regards, 

    Steph, Cancer Chat Moderator