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Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 10:30

Hi there. I'm new to the site. I'm really anxious and nervous, and I just don't know how to cope currently. I feel like I'm in limbo. Late last year I started getting flair ups, which included indigestion and feeling sick, constipation and bad pain in my middle tummy which went over the my right hand side. It would then go back to normal, and I'd be fine. I had about 4 of these flair ups from late last year up until today. The last flair up was really intense and lasted 4 days, the same thing happened constipation, sickness, middle tummy pain and then left side pain around hip area. Last couple of days of the flair up, my stool was yellow diarreah. I went to drs and had numerous tests, and the drs suspected I had gallstones. When I was initally tested for inflammation my placelets were a little high, but my last blood tests my placelets were normal and upper abdmoninal scan came back fine. I went back to the dr, because since my last flair up, for a month I kept getting this niggling pressure pain on the right hand side of my belly button, and also pain on my upper right hand side . I also had the tinyest little bit of blood in my stool on about 4 occasions since last year. The dr decided to take another full blood count, stool sample (which came back fine) and she decided to check on my overy, just incase. Last week I had a call from my dr, and she sounded pretty serious and explained that my CA125 test came back abnormal. I was really shocked, because I just didn't even think it could be to do with my ovary, I thought it was more to do with my bowel/ gastro. Since last friday I've been unable to hardly eat, I'm losing weight mainly because I've been eating so much healthier since I was suspected gallstones, but I'm really hardly eating anything the last couple of days since my results currently cause of the stress. Last couple of days I've been having yellow diarreah again, similar to what I get at the end of the flair ups and I feel like I'm getting indigestion more often the last month, and weeing a bit more. I'm also getting pains on the bottom right, but really bad sharp pains at times on my upper right abdomen. Today I woke up and had diarreah, and I felt so nausious, and more pains especially top right abddomen, but I'm also feeling like a pressure on the right hand side of belly button that I've had since my last flair up a month ago. I don't know if it's stress that's making it all worse etc, but I'd really appreciate some advice. My Dr has sent an urgent referall for an abdominal scan the week after next, and I'm a mess. I'm so scared of what they'll find. I'm 36, and I just didn't think that ovarian cancer could strike, especially with these types of symptoms. I feel weak currently, probably because I'm not eating but I feel like every symptom I'm getting makes me feel worse, like they're going to find something bad. I am ovrweight, and I wadn't eating healthy before all this started last year, so I'm worried I haven't helped matters, but the last 1-2 months I've been eating really healthy, so I can explain the weight loss, but I just can't understand what's going on within my body. I'd be grateful if I could get a response, and anyone who's possibly been in the same kind of situation. 

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 10:37 in response to nica00

Hi there, going through the same as you, I always had ibs and stomach troubles, recently new pains and developed a lump, my platelet level was high and my CA125 was raised so I have a scan on the 1st and awaiting urgent referral to gyn. 

Sorry I can't answer your question but I'm in the middle of a similar situation to you and also terrified x

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 11:05 in response to Anonymous

I can completely relate, I know it's not helping but I'm struggling to each much with the stress, which seems to make my tummy worse. Yes, I have IBS too but I've never had anything like this before. Where did you develop the lump can I ask? I really hope it all goes okay for you, it's horrible cause I think if they find something in the scan, this will automatically mean it's problably cancer cause of the raised CA125 levels.

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 11:22 in response to nica00

Hi, no problem sharing, it is above my pubic bone, had a fair bit of bloating and sharp pains. 

If it helps, the CA125 test is not always accurate and can be raised for many reasons, we just need to hope for the best. The waiting is so so hard

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 11:24 in response to Anonymous

Yeah, that's what I'm hoping. I've been reading up about it, and it says this. I just have preying it's something less serious that they can fix. I wish you the best, it would be great to get an update to see how it all goes for you Happy

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 11:27 in response to nica00

I will update you and you can let me know how it goes for you x

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 11:43 in response to Anonymous

I will do, I wish you all the best! Positive thoughts Happy

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 12:15 in response to nica00

Oh nica I sent you a friend request in here in case we need to chat or support each other, also, what level was your CA125 at? If you don't mind me asking 

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 12:33 in response to Anonymous

That's great, thank you. I know it sounds silly but I didn't even ask, I didn't even know I was being tested for CA125 and didn't even know what it was, so when the dr called me it was a lot to take in and she didn't mention what it was, and I didn't ask. Do you mind me asking what yours was? I'll accept your request now Happy

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 13:17 in response to nica00

Hi, I sent you a message. Just got a call to attend the Consultant tomorrow, keep everything crossed for me x

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 14:32 in response to Anonymous

I hope you don’t mind me following this thread, I’m having symptoms and I need to book a gp appointment tomorrow. Been looking up what everyone else has experienced and it’s looking very similar to mine

 

praying for the best for you both x

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 14:37 in response to joanne3146

And for you Joanne, how are you doing? 

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 15:41 in response to joanne3146

I wish you the best Joanne too, it's horrible circumtances but it helps to speak to someone going through the same kind of thing.

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 16:41 in response to Anonymous

I’m really scared tbh Sad I’ve got 5 kids and I’m petrified of leaving them behind. I keep getting on and off ear pain too which is strange do you get that?

Raised CA125 tests - unusual symptoms - ultrasound booked

24 Jun 2019 16:43 in response to nica00

Usually I’m really open with talking about my issues but for some reason I’m struggling to even talk to my husband about it 

took a lot of lurking before I decided to post here even. I’m glad I did!