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Radiotherapy for Throat Cancer

16 Nov 2018 10:31 in response to Anchor1707

Hi all,

Just finished week 5 treatment this morning and one more week to go.

They have upped the morphine and am now on Fluconazole for oral thrush they found yesterday.

Feel like a chemist here with all these meds/mouthwashes but its all fine and would say genrally still ok and not experiencing anything I was not expecting.

Little more tired and quite bit mucus comes up during night, but get back to sleep quite easily.
Not been on solids all week as they taste gross and metallic and have been sticking to liquid/soft meals.
On Ensure drinks that they gave me and was told equivalent of a small meal plus I can eat chicken soup/ambrosia rice/custard and full fat yoghurt which I enjoy.
Got weighed yesterday and surprisingly had put on a little weight, which they were please with as was I.

All in all not really complaining and on the home stratight for treatments next week with only  5 more to go, although I know the side effects will continue, at least no more daily treatments.

Was also given a nebuliser yesterday and have used a few times, but not really sure if making any difference. Does anyone know if I can put a couple drops eucalyptus in with the saline as love the smell and alwasys thinks helps clear head.

Thank you to all that reply as its helpful to share my experience as not only do I find it therpeutic, i really do hope that it can help at last one person. Treatment/side effects etc are not brilliant but you get through it and am still trying to stay positive.

kind regards

ian

Radiotherapy for Throat Cancer

16 Nov 2018 20:36 in response to Anchor1707

NHi Ian congratulations on week 5 I had 7 weeks radiotherapy n 2 sessions of chemotherapy.i burn eucalyptus oil in an oil burner my MacMillan nurse advised ninto putting in nebuliser for fear of it burning the throat ,suppose up to  you but wouldn’t put too much in. 

Weight wise I started loosing after radiotherapy but everyone is different just keep doing what you are doing. I am sat here dipping a walkers shortbread into a latte if yiu would have told me that 2 weeks ago I wouldn’t believe yiu things change daily. For tea u managed mash with lashings of lurpack a smallmyorkshire pudding cabbbage and stew gravy but meat is a hit and miss .for lunch 1/2 a steak pie with soup as gravy went down .

tablet wise still on ibuprofen for swelling cocodomol 2 tabs and have reduced ora morph to 2.5 ml from 5 daily  .

good luck for next week ,ps started reading at night time this week plus been shopping baby steps  just taking a day at a time ,some people get little side effects some like me get longer side effects  git my scan late December with results early January aren’t worrying about them as can’t  worry about something I can’t influence  

just a word be careful of people who have had flu jab or git cold as live  vaccines exposure isn’t good for us  at the min

enjoy weekend 

hazel

 

 

Radiotherapy for Throat Cancer

16 Nov 2018 21:12 in response to RadioactiveRaz

Thank you Hazel and like the sound of how well you are progressing with baby steps and on the right road.

My den looks like a chemists and on so many meds for different things but not too bad. Would say just bit washed out just now.
I agree re cold/flu and one of the things I have little concern over as would really struggle with mask and flu!

I know still quite a journey ahead but will be glad when the treatment stops next Friday and then take it from there.
I am trying hard to keep weight on during treatment and forcing down liquids as muc has I can .Struggle with any solids as tastes so awful.

At least reading your steps does give me hope for my first tasty fish and chips or chicken korma and rice..mmmmmmm

Think your right and will just keep to saline in the nebuliser

kind regards

ian

Radiotherapy for Throat Cancer

16 Nov 2018 21:53 in response to Anchor1707

Hi Ian 

at some point you will feel dried out with saline tip u can use just plain water still effective but doesn’t dry your mouth .

luckily my taste buds never went but that works against u as well if h can taste everything sometimes u just can’t eat it. Met a guy 3 weeks behind me and he was eating everything fish j chips curry’s chillies he was lucky didn’t get muscosis although lidtvradrlodt taste d buds good luck with flucozole I ended uo  with nystatin as flucozle didn’t clear the oral thrush. Tonsil cancer I call it the cancer that just keeps giving us problems. People can’t understand  why we can’t eat get comments my friend had breast or / bowl cancer and  could eat!! Umm mouth radiation stops u eating not all cancers are the same !!

one tipfor trying to get food down is pretend u are a chicken and throw you head forward like u are pecking not a pretty sight but can work !!!

night night hazel ps am also a branch of boots the chemist !

Radiotherapy for Throat Cancer

16 Nov 2018 21:54 in response to Anchor1707

Hello there.Just came across this site this week whilst trying to find out about squamous cell carcinoma of tonsil after being diagnosed with it in June this year.I intentionally avoided googling anything whatsoever to do with cancer and indeed was warned not to by oncology staff.Glad I did as it left my vision clearer and helped me focus on my recovery.Anyhow,today is the 12 week anniversary post treatment and after reading a thread started by gamma ray Gary (vatch) it struck me that  everyone has had chemotherapy.I opted for an alternative called Cetuximab,one of the so called targeted therapies.I just wondered if anyone else had been offered this course too.

 

John.

Radiotherapy for Throat Cancer

16 Nov 2018 21:58 in response to Johny7

Hi john I am also 12 week post radiotherapy todsy I gad cisplatin. How are u feeling are u eating yet ? I am just starting hsve read vatch v goofd I also have a blog l

 

www. Radioactiveraz.wordpress.com last blig is first do scroll down if u want to read from beginning  

hazel

Radiotherapy for Throat Cancer

16 Nov 2018 22:11 in response to RadioactiveRaz

Hi Hazel,yes I'm eating in a fashion.As you probably know,it's 2 steps forward and 1 back at this stage,slowly slowly catchee monkey! Some days you can eat with relative ease and the next it doesn't feel too good.I had the peg fitted before any treatment and I still have it thank good as I didn't eat for weeks.I was back at Weston Park hospital last week after 4 really good days followed by 2 worse and 1 much worse only to find the dreaded thrush is back (3rd time),so another fortnight of flucanazone.I put it down to loading up on all the sugary **** like biscuits and deserts I've had to try and gain weight back.

John.

Radiotherapy for Throat Cancer

17 Nov 2018 21:34 in response to Johny7

Hi 

western park Sheffield ? Ok was st james Leeds live half way between the 2 of them so 90 min journey when rush hour. 

Yes I am also on my 3 rd round if oral thrush if fact nystatin is in my repeat script !!

lol

yes suppose it’s the sugary stuff this week I discovered I can eat chocolate !!!!!!!!!! So 2 hero’s equals 98 calories! Nevertheless thought I would be counting calories to eat instead of diet. 

Do u have a scan date yet ? Mine hopefully between Xmas n news years  will find out on the 26 th 

keep trying to eat I am finding meat pies are edible as long a slice j dip the pastry in soup !!!! Weird but fresh meat is a big no no answer I miss fruit so much 

take care

hazel

Radiotherapy for Throat Cancer

17 Nov 2018 21:38 in response to RadioactiveRaz

No peg for me not given at Leeds ended up With feeding  tubes for 45 days lost 18lb in weight bulkedmup when diagnosed put nearly a half a stone  in was eating magnums morn8ng noon n night as u knew the weight would come off .

 

Radiotherapy for Throat Cancer

18 Nov 2018 09:33 in response to RadioactiveRaz

I lost 30lbs or 14kgs if you like.Have a hospital follow up on 20th December but they said scan will be before that.

Radiotherapy for Throat Cancer

18 Nov 2018 14:34 in response to Johny7

Hi Johnny

good luck for the 20th keep me posted. Strange how each hospital consultant does it differently guy who I went through treatment with has his scan next week but my consultant waits 4 months as long as results are what we all hope for fingers x. 30 lb ****** bet you’ve had to buy a new wardrobe of clothes !i am not too bad as am just under 10 stone n still get in my clothes MST have been a snug fit some if them prior to cancer visiting  me !,,,lol

 

kerp in touch just had half a pork pie warmed n dipped.  Soup strange how some things are easier to eat but last night chicken was a big no no even with gravy. 

Plus I am dunking biscuits in coffee which I have never ever done but needs must xx

 

take care

hazel 

Radiotherapy for Throat Cancer

18 Nov 2018 14:47 in response to RadioactiveRaz

Hi,Hazel I've found a nice small fish fillet done in foil to keep it moist and some tinned mushy peas goes down easy.Tried Smash and liver with onion gravy the other day and I managed half the liver but I braised it too long leaving it dry,still it went down which felt like an achievement! Seems to take forever to finish a tiny portion.Going to try some prawn pasta later.

 

Radiotherapy for Throat Cancer

18 Nov 2018 14:53 in response to RadioactiveRaz

Im try to keep the calories on as much as possible so it doesnt effect the mask having to get re made/ineruption of treatment etc and have found various things to do that without solids so far.

have home made soup that i blizt and puree and also blend a chicken breast though it as well to try and get some protein and  goodness in as well.
I have been given ensure drinks to take twice a day and also take full fat yoghurt and pots of fresh custard/ creamed rice/milkshakes.
tatstebuds not great but I manage the above ok.

I have my final week of radioatherapy starting tomorrow and wonder what that advice is regarding diet etc after the treatment stops?

Im just trying to get through this week re calories etc but does it matter so much after treatment as long as body has daily intake of something as well as plenty fluids

regards
ian

Radiotherapy for Throat Cancer

18 Nov 2018 15:53 in response to Anchor1707

Hi Ian 

you will be fine this week they use the mask won’t fit as an way of keeping you eating . My radiotherapy team said in last week I had lost 1 mum off my shoulder so I ssud what do U want me to do I could eat like a horse tonight no guarantee that it would go on my shoulder. ! They said fair comments we have to bully h to eat but they have ways of adjusting the masks if need be. 

I found the first few weeks after treatment was when my mouth was at its worst and didn’t get any solid food down at all . Although we look forward to treatment finishing its scsrybti loose the daily contact that we’ve had for weeks just keep going what you are doing experiment every day. Today plain mineral water has come back to me after 9 weeks if it bring like chalk! And only drinking soda water n occasionally peppermint tea. 

Good luck for next week remember make sure you have a decent supply of tablets as u found my drs pretty useless and left me 6 days without painkillers luckily I had a secret stash ! But they didn’t care I’ve unfortunately got a complaint in against the drs as they also ignored a request from hospital for  56 bottles of endure ie 2 a day fir s month changed it to 12 random ones doh!!!! Stress levels went through the roof.

sntest I’ve got good Macmillan nurse n dietician 

once sgsin good luck

hszel

Radiotherapy for Throat Cancer

18 Nov 2018 16:00 in response to Johny7

Hi Johnny 

mushy pea s I reslky can’t eat finding fish seems to stick although trying salmon tonight. Today plain mineral water has become drinkable who knows whether tomorrow will be the same! 

Akthough pork pie at lunch time was delightful cheesecin tiastbgir breakfast as well   Darent hsve orawns had some while having chemotherapy n made me do I’ll darrntvtry them not having much luck with pasta finding it sticks n anything with tomatoes is a no no too acidic . Keep in touch with tips we will get there in the end just didn’t think recovery would last this  long. 

Are u working I retired at 53 luckily n hubby worked underground and finished at 58 so we have personal pensions n he has his pit pension so we get by. I drive fir first time yesterday since treatment started frktvdo goof

take care

jsxrl