Radiotherapy

I was diagnosed with triple negative in February

Had the chemo treatment then op now I have to have radiotherapy, I've already put it off and I have to decide within the next two weeks

Throughout my treatment i never received any support from my medical team or my family and friends , I've cried every single day throughout my care.Now it's time to have radiotherapy and I feel I just want to stick two fingers up to everyone for not supporting me and just want the cancer to come back and take me.

I know it's sounds sad but it's just how I feel.

Cannot see GP but they have been crap through my treatment also, never been in touch once

 

  • Hi

     

    i totally understand your thought process but I wouldn't say stick it out of anger and hurt, at least try the treatment and hopefully it will help.  
    I recently got diagnosed with stage 3 brain tumour, no signs nothing until one morning seizures and taken into a&e and waking up in icu.  Bit of a shock being told I needed surgery or won't last too long.  I'm now waiting for treatment to start but tbh I'm apprehensive about it all.  
    but again it's your choice about the treatment.  Have you contacted your family and what about your Macmillan nurse?? They are there to support us.  
    it's horrible hearing you so upset and no support have you told your family how you feel, your mum siblings? 
    I have a partner and I'm not sure what I would do without him here as he listens in all the appointments as I can't take it all in at the moment.  And deals with my medication.  I hope you find some support and your treatment goes well all the best xxx

  • Hello daughtrey78.

    Thank you for your reply so soon.

    So sorry to hear about your diagnosis,it must be really tough for you .You will be apprehensive, thought it was bad enough to have triple negative breast cancer,but to have a brain tumor.

    Some people don't understand what you go through when you get cancer.

    I genuinely hope your treatment goes well, please keep in touch flower ️

    My mum has dementia,and my Mcmillan nurse is always busy when you leave a message.

    I've called 4 times and even the nurse who gave me my chemo tried to call the Mcmillan.

    And for rest of family my brother is dealing with the Loss of his daughter.(sudden death syndrome)

    I understand where your coming from,but I'm just so mad.Like friends only called in March to say good luck with treatment..Suppose they will be calling me in December though because it's Christmas.xx

     

  • Hello Laney,

    it sounds like life has been pretty grim for you for most of this year. Cancer is bad enough but then to feel isolated and alone on top of that is just the pits. I am really sad to hear this. 
     

    My own experience had been different, but at times I felt as I think you do. No one truly 'gets it' do they? Hearing those words 'you have cancer' fills us all with a dread. Immediately life feels very threatened. Perhaps we will never again be the carefree people we likely were before this scary news? I found some people were less willing to meet up. Some 'friends' drifted away. I have lost some people who I felt sure would have been there to support me. Equally some people have surprised me. 
     

    What I am trying to say is that many people are not able to support something like cancer. Had you had the flu I expect the response would have been much better/warmer. More like what one might expect. 
    Even with good friends and family I find the best support normally comes from places like this site plus people at cancer drop-in centres for those having treatment and those who have completed their treatments. It's there I can just BE. Say how it is without making it sound less harsh or less real.  
     

    Anyway just saying I can recognise what you are saying to some extent. I think most of us will to be honest. Cancer is a hell of a disease to try and identify with if it isn't actually YOU who is going through it. Don't give up though. We all need to lean into something or someone. Cancer support centres (Ie. Maggies) are really good. Please try one. 
     

    I wish you well. 
     

    Kebbs. 

  • Hi kebbs 

    Thank you for the kind words

    No people are in their own bubbles and laughing and getting on with their lives and theses are so called best friends.

    Best wishes

    Laney

     

  • Hi moonpuddle

    Thank you for your advice

    Best wishes

  • Hi Laney_
     

    i am so sorry that nobody has been there for you, have you tried Macmillan nurses, please don't give up, you have gone through the worst of times, your nearly there now, you can do this you must be a strong brave person to have got this far, hats off to you :) 

    you can do it, on this site there are lots of people that will give you support and guidance.

    take  care all the best x

    Don't give up 

  • Hello Hily1

    Thank you for your kind words and yes I have tried to call the Mcmillan many a time for help but to no avail.

    Best wishes

    Laney x

  • Morning 

    I am having radiotherapy starting on the 28th September, when are you starting? If it's before me you could keep me updated and vise versa , it would help me if you don't mind ️
    Hilly1

  • Hi Hily1.

    Was supposed to start it four weeks ago,I have to see the oncologist on Thursday 17th September,I think I have to make my mind up then because apparently I've only 8 weeks to decide and I've had 4 already.

    Hily1 you sound like a lovely person and I'm glad you have been in touch

    What type was yours if you don't mind me asking....

    You don't have to say if you don't want to,I do understand.

    Mine was triple negative

  • Hi

    i had stage 2 invasive in my breast, I was lucky they caught it early, they decided on a lumpectomy ten years on tablets and 3 weeks of radiotherapy, I was very lucky, it was caught early, and you, if you don't want to Say that's ok xx