Process and pain of dying with esophagus cancer?

Hi guys my name is Katie and I'm 14 years old. My grandad has terminal esophagus cancer, aged 56. I was just wondering if anybody on here could tell me if it's a very painful death and the process of dying with it. Feel free too comment with any stories from family members ect.

Thanks.

  • Hi sweetie,

    My dad recently died from this cancer, he was 51, I am alot older than you but age dont make cancer any easier, I was caring for my dad and was always with him, the pain control was good, my dad had a driver which means the pain relief is constantly going into the blood stream so your grandad shouldn't be in any pain, i know my dad was happy with the pain relief he had. take care hunni be strong for your grandad.

    With Love Kim xxxx

  • Hi katie

    How are things.Have you managed to talk to anyone in your family about whats happening with your grandad?I am sorry i cannot tell you about his cancer but i do have a lot of experience of pain control and the main issue is that it works.Modern medicine cannot always save us but it can give us an easyer time of it .I came very close to dieing and the knowledge that it has left me with is that it is not nearly as frightening as it seems. It seemed to me like a gradual walking away.It will always be sad but the sadness is because he is loved.

  • I know, it's horrible isn't it. I've coped with cancer since the age of 4 because my mum passed away from it. Sorry too hear about your dad, I spend a lot of time with my grandad like you did with your dad. I'm just trying to have the best time with him possible! Hope you're okay.

    Thanks for the reply xxxxx

  • Hey grumpy. I stayed at my grandad's Sunday and Monday night, he cooked me dinner on the Monday and still likes too get around and go shopping ect.

    He is getting his scan results back tomorrow too see if his cancer has spread, just hoping for the best.

    Thanks for the reply and sorry too hear about your experience. I just wanted to know how bad it would be for him, but it doesn't seem too painful which I'm happy with! Thanks a lot, hope you're ok xx

  • hi katie my husband died from the same cancer, eight weeks after being diagnosed(6/12/10) aged 58 he had his pain under control with patches and morphine, lost alot of weight could not eat, had a stent put in but never worked, then had fluid on abobdoment, his liver was infected to and they thought it had spread to his stomach, but never got a chance to find out but it took him quickly,  it has been thirteen weeks since he passed, we have three girls aged 17.12.12 and we all miss him so much.

  • I'm really sorry too hear that. Hope you're feeling okay..

    Grandad got his test back today, chemotherapy has not worked!

  • Hi Katie and other readers

    i know exactly what you are feeling and going through, my dad has terminal esophageal cancer which has now spread to his liver and stomach amongst other places, he initially underwent breakthrough keyhole surgery however discovering this secondary cancer has made him become terminal. I spent the first few days living in a haze of crying and drifting along in existence before i managed to buck my ideas up and get a grip on reality again. He is now in a lot of constant pain living on morphine (both patches and orally) and they are already mentioning changing medication as it just isnt 'cutting it'. Unfortunately this sort of cancer (although i have no experience of other types really) is very painful. I too am unaware of the true timescale and have no idea just how little time i have left with him - it chokes me up just trying to think of my life ahead without him there. If anyone does have information on the timescaling i would be very interested to hear what they have to say.....i am very pragmatic and prefer to be aware of realistic aims rather than just "hoping for the best", i just wish i knew if it were days, or weeks - i no longer expect it to be months as he is deteriorating at what seems to me like an expenential rate.

  • Hello butterfly-baby, I know what you mean. My grandad had been in constant pain too, it's horrible to watch and especially when he's upset/depressed.

    I am like you, I'd rather know than wish for the best because it allows you to actually know how long you have left.

    Looking through the forum and on the Internet on this subject I have found out that apparently every single case is different time wise so it's hard to know! A bit annoying I know! Hope you and your dad are keeping well, thanks for the reply and good luck for the future x

  • Hi Butterfly-baby

    I've at last managed to find you - I have a job getting around the site.

    I hope your Dad is feeling comfortable and that they have managed to get his pain relief right for him.

    It's so upsetting thinking about timescale - especially as everyone is so different.  I've known several people with cancer of the gullet (including myself!) and they have lived for varying times after being diagnosed terminal.  My own Dad lived for 14 months, although was initially given 3 months to live.  You're right, it's a very painful, distressing cancer and not being able to eat is horrible.   I loved my Dad very dearly and like you, wondered how life would be without him.  However, in the end I was glad his suffering was over and it helped me to cope.

    I think of you often, as I know what a distressing time you're having.  Life can deal some very bitter blows but a lovely daughter like you will come through safely.

    Carrie xx

  • Ny husband died two werks ago with Esophagus and stomach cancer. He fought a long hard battle 17 mths. He put a stint in. Could  not swallow and vomiting alot. In the last two months had hospice. They kept him under  control from pain. Morphine and Lorazepam.  Fluid was taken off daily he lost 100 lbs. All the hospice stage kept him comfortable.  I am very sad. Losing  a wonderful husband we made alot of memories during this time. This teaches me to spread the word on living life to the fullest