Potential Throat cancer and scared, throat ultrasound on mon

Hi, 

I am really looking for advice/support. Iv not long turned 30 and a mummy to two small boys. 

About 18 months ago is when all my symptoms begun- 

18 months ago I started getting a persistent sore throat, 5 days out of 7 I would have this chronic sore throat and feels almost identical to tonsillitis, after around 40 trips to the doctors over these past 18 months  with these persistent sore throats I was always given antibiotics (never worked), told it was probably viral and to wait (18 months on still here ) , iv had blood tests (no infections indicated),  throat swabs (always negative) - infact the more I went the more the doctors made me feel like it was all in my head as I’m “ too young for it to be anything more” , anyway about 7 months ago I started feeling really really tired, not just a normal tired but exhausted even after an 8 hour sleep a tiredness I know is not normal, then more and more symptoms have been coming- hoarseness ontop of this persistent sore throat, painful swallowing, loosing my voice after a long conversation. Most worryingly 6 months ago a lump on the right side of my neck it feels like a very enlarged lymph node that has been enlarged for 6 months and has not gone down ontop of that I have lost 1 stone 4 pounds in 3 months with no change to my diet and actually less excercise as iv been so very tired. Now the lump has been there I’m finally being taken... slightly ... more seriously. I have an ultrasound on my neck booked for March the 18th with a possible biopsy depending on what’s found. I also have been diagnosed with hpv 16 and 18 and I know this as there is a lesion on my cervix (really hard time at the moment) anyway from my research the type of hpv I have is connected with oral as well as cervical cancer. I feel alone, scared, no one understands me or really what I’m dealing with. I’m a young mum and have so much fear and the fact I’m young doctors have just ignored me for 18 months until I’m 7stone with a lump coming from my neck. Please can anyone tell me how they felt with throat cancer? Will the neck ultrasound help diagnose this? If not which route do I go down. My gp sent me for an endoscopy but the surgeon said that this would not diagnose throat cancer because it goes straight down the esophegus and to the stomach. So I’m not sure how this gets diagnosed. I know it’s their- the pain, the lump, the weight loss, hoarse voice. I’m textbook yet no one is taking me seriously because I’m young.  If anyone has had this journey please give me advice, I want to be there for my children and I’m wondering how far it’s got if I have it as I have been trying to get an answer for 18 months. 

  • For me Amy the ultrasound FNA biopsy on my swolen node did confirm I had likely HPV16, followed by a PET/CT scan that showed up the hot spots in my tonsil and two nodes. Next week I will have biopsy of tonsil site (I have no tonsils) and a MRI scan and following that hospital will decide on my treatment plan.

    I was worried and scared about the ultrasound FNA biopsy but it wasnt too bad just about the same as the dentist numming your gum for a filling.

    Hang in there you will get diagnosed...

  • Thank you so much for your reply, can I ask did you have any other symptoms apart from swollen lymph node?? X

  • No not really, I was walking a friends dog a couple of time a week about four/five miles a week and felt I was sweating a lot also I had a bit of body ache, of course once I got seen by Max Fax guy I felt I had every thing under the sun going wrong every time I had a cough or sneeze.

    Yesterday I had a biopsy on my tonsil site and the Doctor said he also took a sample from the base of my tongue (that didnt show on my PET/CT scan) so now scared about that. I also had three teeth removed got home at 10.30 last night feeling a bit uncomfortable. This morning I had to get up and go for a MRI scan which was very unpleasant because I needed to keep sipping water, I was swallowing in a bit of pain and felt a bit claustrophobic in it but got through it. As I go through the system I feel less panic about the treatments, yesterday I was quite calm about the surgery, yet I admit I cried like a baby sat in the cubical watching the drip go into my arm while waiting for the PET/CT scan at the start of this process just over two weeks ago.

    So looking for a couple of days treatment free to recover as I feel drained...

  • I’m so sorry to hear what your going through too and the process of everything is so scary and lonely. 

     

    I prey all the best for you and prey for me and my family also . Xx

  • Hi you sound exactly the same as me been going through the same thing been 14 months now my throat is raw so sore 5 or 6 days a week when I have a good day I think maybe I'm fine but it don't last long it's soon back again. I also go to the doctors at least 3 times a month in terrible pain iv had endoscopy down into tummy by gastro consultant was clear, 2 ent scopes up nose they say its clear, berium swallow normall, chest x-ray and ultrasound all clear, apart from hypothyroidism it hurts more when I eat been told all the pain is in my head and put on lots of different antidepressants and acid tablet it feels raw like someone's poured acid in my throat the pain has ruined my life so i know what you are going through it's horrible hope you get some answers soon. Everyone seems so nice on this chat I can't mention the c word in my house I get told to shut up and you will fine so I can't even talk about it they all think I'm stupid I know what pain is I have suffered from pain syndrome most my life but carry on as normal had both my arms tattooed which was painfull but the pain in my throat is something eles it gets me down a lot i can't live a normal life any way this chat site clams me just being able to talk to people and not keeping it all to myself for a change take care joe