hi I am 51 . No period in 3 years then stared to bleed heavily . Doctor admitted me for scan . Scan showed 6mm womb lining . Ovaries fine cervix fine have been referred for hysterectomy and biopsy . I am so worried .bleeding stopped after about 4 to 5 days . Has anyone been through this I am so worried at the moment thanks
I'm in a similar boat. I am 52. Hadn't had a period for 18 months, then had bleeding. Went for an ultrasound and also had a hysteroscopy at the same appointment. The ultrasound detected the thickness of my uterine lining was at 8mm. The hysteroscopy showed fibroids. They took a biopsy and I was told I would get the results in 1-2 weeks time. It's 2 weeks today and after ringing I was told they have a backlog of typing and so no letter has gone out and they can't give me any information as yet. My bleeding stopped just under a week ago so I'm pleased about that but the waiting game is tough. Without having the bleeding, I have been able to forget about things a bit but on the whole have had a pretty rubbish few first weeks with dark thoughts and lots of crying. I'm now trying to carry on with a positive attitude as there's not much I can do until I get some results. It is very worrying but in the meantime I keep trying to keep myself informed so that when I get to talk to someone medical, I will at least understand what they're talking about. I have also started to eat better and tried to lose weight - have lost half a stone in the last two weeks - as I understand that oestrogen excess can be caused by being overweight. Have you had a hysteroscopy? Not a pleasant experience! If you haven't yet, and you have to have one, I only read after having had mine that it helps to take a couple of paracetemol before you have it! And make sure you have someone who can drive you home afterwards! I'm presuming that if my biopsy shows that it's got abnormal cells, then I'll be heading for a hysterectomy but if they're not abnormal, it'll be hormone treatment first. Seems like you've had a different suggestion as to what happens next with your treatment but I would have thought they'd have to see the results of your biopsy before recommending a hysterectomy. Or maybe they mean a hysteroscopy (the camera) first rather than a hysterectomy? Anyway, I wish you all the best and to hear from you again.
I've been down this route and believe me the waiting is by far the worst. Once you know what you’re dealing with, whatever that is, it is much easier. I was diagnosed with endometrial cancer in April 2018, had a hysterectomy, further surgery for removal of lymph nodes and three sessions of internal radiotherapy. I got my all clear in April of this year and am on regular checks now.
Just to say if you have any questions now or in the future just ask and I’ll be happy to answer them based on my experience.
Sending a virtual squeeze from my hand to yours.
Thank you Sundial. Much appreciated words of wisdom and reassurances.
I wish I had found this forum before! Have been feeling rather alone with my thoughts and worries despite friends' and family support.
You’re welcome. Everyone on here is really supportive. Stay with us. There is always someone to talk to. Family and friends are great support but we sometimes don’t want to worry them with our fears. People on here just know what it’s like.
Hi thank you for sharing this with week . I had the hysterectomy done yesterday and biopsy . Waiting a week for results . The doctor said in his opinion all looked good inside when he went in in with the camera . He had to scrape a lot of black blood away but that may have been from the recent bleeding I had . You are the right the waiting is the worst I know I won’t settle till I know what I am dealing with . He also said my womb was really small of it was something sinister in the lining then it could be removed very easily . I hope your results come back ok I am trying to occupy my mind this week easier said than done sometimes x
Hi thank you for the reply . I am just waiting for the results after biopsy and hysterectomy. What were your symptoms sis they say anything to you after the hysterectomy. Consultant told me as far as he was concerned all looked fine in there bar black blood he had to scrape away probably due to the recent bleeding . Obviously that can’t know till they get the results from the womb lining but he said there were no build up of tissue etc or anything that looked sinister in his opinion . Obviously I am still a bit worried till I get those results .
I had a hysterectomy. My surgeon said everything looked as he expected but they’d got it all out. I had already been told at my hysteroscopy that there was something suspicious in the lining. It was a shock however when they upgraded the original biopsy grade from 1 to 3 after histology. Surgeon says it sometimes happens.
I had no other obvious symptoms apart from four bouts of post menopausal bleeding. In retrospect I did have a sore left hip and years of severe constipation. However they told me I had a large cyst on the ovary they removed from that side and that was probably the cause. Those symptoms have now disappeared.
The bleeding was misdiagnosed three times and it was eighteen months after the first time that I was referred to the hospital. That probably explains the upgrading. However I was lucky it hadn’t reached the lymph nodes and I only had three sessions of internal radiotherapy to reduce the risk of reoccurrence.
Hoping that your results come through soon and are good.
May I ask whether your post menopausal bleeding felt like a period or was it just bleeding with no other symptoms? I'm nearly 53, last had a period in 2017 and yesterday started with brown discharge, a vague period pain feeling and a headache which won't shift - I always got these type of headaches with a period. I am thinking it is just a very, very late and hopefully last period.
Prior to this I had been having phantom period pains for months, including pain down the front of my legs which I used to get prior to my periods. I had an ultrasound scan on my womb last year with no evidence of any abnormality. The phantom period pains eventually went away.
Thanks for reading.
I am nearly sure mine is just a very late period. They don't mention pain as a symptom for uterine cancer, just unexplained bleeding. I'm wondering whether to bother going to the GP. It is the period headache which has more or less convinced me it's nothing to worry about.
Hi my post menopausal bleeding felt just like a period . I had stomach cramps and sore back lasted 4 to 5 days just like my normal period did even though I had not had a period for three years . Hysterectomy showed up everything looked ok no masses no build up off cells . My uterus lining was six mm should be 4. I am awaiting results from byopsy for this and trying to remain positive get them in a weeks time .
Hi Luc50, your symptoms sound like mine at the moment. I do hope you have a positive result in a week's time. It certainly looks very promising from what the doctor said but I'm sure the waiting is awful.
I do have a family history. My mum's only sister had womb cancer and her dad's only sister also had womb cancer. Neither had had children which is a risk factor I have read (neither do I).
In fact my auntie only found out she needed a hysterectomy after being admitted to a trial - she was given an internal ultrasound whereas others were given blood tests or no preemptive treatment. She was very lucky to have been offered to take part in the trial, and to be given the ultrasound.
I've now decided to definitely go to the GP.
Looks like I'm playing the waiting game again. I was expecting my biopsy results within 1-2 weeks of my appointment but have received a letter over the weekend (so nearly 3 weeks) with just another appointment date which isn't until the 14th June - no information about the results, nothing. I was kind of expecting that the letter would give me some indication of what is going on and what might happen next. Do they prefer to let you know things face to face rather than by letter? Is it normal that I have to wait over 5 weeks until I am actually told what's happening - ie,whether I have cancerous cells or not and do I need a hysterectomy? I will ring and check with the clinic tomorrow but I think they will just tell me again that they can't say anything over the phone.
This waiting must be awfull for you . I know how I feel and I am getting results a week later for edimetrial byopsy and hydroscopy for post menopausal bleeding . I went private as waiting was so long . I find the waiting torture as everything goes through you’re mind . I really hope you get your results soon thinking of you . X
Hi I was just wondering how you got on if you were any further forward after calling them . I go for results soon at 540 today and yeah I am very nervous even though he said all looked ok I still have that nagging doubt in my head that he can only see with the naked eye and a biopsy willl show more . Thinking of you .
Wishing you the absolute very best of luck for today.
I called the clinic this morning - a letter with more information has been authorised to go out but they still can't give me any information over the phone so have to wait until the letter turns up over the next few days.
Thank you for your message. It's so good to know you're out there!
HI just to let you know my byopsies were clear . I am so relieved . My thoughts are with you and thank you for chatting with me it has really helped please let me no How you get on x
Yay! I am so very pleased for you, Luc50. That is brilliant news! So chuffed. Wow! Bet you feel amazing! Time to celebrate. I guess these things make us appreciate what we have even more xx
I was out today but got home tonight to find the letter. I am so relieved and so happy to be able to tell you that it says that only polypoid tissue has been found and my sample is normal. I go to have the polyp(s) removed on the 14th with another hysteroscopy-type thing. So so happy. Thank you for being there for me. xx
I Am so happy for you that is amazing news . Enjoy life every day and live it to the full . I am so glad I have been able to chat with you throughout this waiting time for us both it has really helped . Take Care x
I am 64. I had a small bit of brown spotting a few days ago and burning sensation in lower abdomen, pelvic floor. No bleeding since and pain going away as relaxing. I overdid exercise last few weeks and I have a groin hernia and fibroids and osteoporosis. Could it be this or more serious?
Here's my recent experience...
I'm 53 and after almost 2 years with no period and all the usual menopause symptoms I had what seemed to be a completely normal period. The doctor & the first gynaecologist both found this worrying so referred me for a scan. This showed that I actually had ovulated and really did have a normal period. 28 days later, I have just started another one.
I am sharing this to let women know that, although unusual, it is quite possible to have a period well after 1 year without. I could not find examples of this anywhere on the web, but in fact it does happen, according to the second gynaecologist I spoke to.
So if you get a period after 1 year without, please do get checked, but don't panic.
If it feels like a normal period, it might well be just that!
Hi, I’m so reassured to read this as this has just happened to me. I’m 52, had my last period 2 years ago. About 2 weeks ago, I felt tenderness in my pelvic region, and my breasts were sore and swollen. 10 days later, I had a period lasting 5 days. My GP has referred me for ultrasound which I will have on Monday. It feels just like a normal period so I’m hoping that is all it is
Hi. I just found your messages, and appreciate a year ago so maybe I'm a little late joining the group. I had my scan this week and just waiting to hear date for biopsy and camera. It was nice to read your message. I know whatever the outcome of results, life will return to happier feelings, but stomach in permanent knot at the moment! I'm 53 x
Welcome! I hope you get news of the date for your biopsy soon and don't have to wait too long for your appointment. The waiting game is not nice - been there, done that! It becomes difficult to concentrate on anything else but I tried really hard to find things to do that would distract me and allow me to forget about the negative thoughts. Hope all goes well xx
I'm nearly 53, not had a period in 2.5 years, and this week I'm bleeding lightly and cramping badly. My GP has referred me to the cancer elinimation clinic... Now terrified because the hospital rang me back the same day with an appointment this week... Gulp. I feel like I'm having a period, I even thought I'd ovulated a couple of weeks back, but I also have fibroids and have had fibroids removed in the past. I can't find anything about periods this late into menopause, so you've reassured me it's possible. Just hope I get the all clear for cancer as quickly as possible.
My bleeding turned out to be a very late period, but right up until I spoke with a great gunaecologist to discuss the test results, I was treated as a priority potential cancer patient, with quick appointments. Makes you scared, but it doesn't really mean anything at this stage.
Good luck and let us know your results!
Hi, thank you for posting this message. I'm 55 and not had a period for over 2 years. Started bleeding last Tuesday and has been heavy for 6 days now. Called GP on Friday and she said it's treated as a red flag so should get appointment for tests within 2 weeks. I'm due to go away this Wednesday (birthday surprise with my daughters) and booked a cottage for a week from 1st August. So unless I get an appointment today or tomorrow it won't be until after the 2 weeks. I'm trying not to panic about possible outcomes but it's very scary and I don't want to worry my daughters.
Had the scan, and lining is normal, if a little scarred by c-sections. Still got small fibroids. Doctor couldn't confirm what had caused the bleed, nor could he say it was a period. No evidence of cancer, so discharged but it if happens again, then I'll be fast tracked for a biopsy to double check. Relieved if a little confused since I thought I was well done with periods!
I didn't tell my daughters (11 and 15). I'm convinced being in lockdown with them all day for over 3 months has triggered a return of my periods.
I hope everything goes okay. It's very hard not to worry, but the consultant reassured me most cases aren't due to cancer.
There are lots of possibilities for the bleeding, including very late period and "just don't know". Cancer is probably the least likely. You've done the right thing by checking with the doctor, since even if it is potential cancer you will catch it early. So I hope you can enjoy your break. Maybe you can call the hospital to push for an appointment before you leave? (The hospital I went to was VERY quiet). Let us know how you get on!
That's great news Raej!
Gyno thought my bleeding was almost certainly a period (since the scan showed I ovulated). Plus I got another period 28 days later. The scan turned up all sorts of other stuff mind you, though none of it particularly worrying.
Now I'm back to hot flushes again, luckily the weather is keeping me cool.
Hi, thanks for your reply. It is helpful to share my worries with someone who understands. My daughters are older, 20 and 22. I have told the eldest, but not what it could mean. The youngest has anxiety & depression so don't want to say anything to her unless I need to. We all went for a Covid test at a drive through facility today as we're in an area with a spike of cases and that was bad enough with her as she had a panic attack. I keep swaying between thinking it will be ok & it's just a very late final period and then thinking the worst. I lost my mum to breast cancer when she was 48 so she never got to be a grandmother and that doesn't help my feelings now. Glad your results came back ok X
Hi Raej- I'm glad you got your results back and they're ok. I'm trying not to worry too much but it's difficult to try to forget about it and bad timing with it being my birthday this week and planning to go away so don't think I can get checked out until after 10th August. Thanks for replying to my message, it really helps to know there are others in this situation.
Hi everyone. I'm 54, two years plus since my last period and been bleeding this weekend. Spoke to GP first thing today and she's referring me to the PMB clinic at the hospital. Supposed to be working from home but been Googling like crazy instead (sure I'm not the only one!) and think I more or less know what to expect at my appointment but just not clear on what happens if the scan shows the lining is normal but detects polyps/fibroids..........do they then do the hysteroscopy or is that done solely if the lining is thickened?
My lining was normal. I have a few small fibroids but nothing that warrants treatment. The doctor proposed that if I bled again he would do an urgent hysteroscopy to double check. In the meantime, I'm discharged. I don't know what they do about polpys. I'm now convinced that being stuck at home in lockdown for 4 months with teenage, hormonal daughters woke up my periods. I'm not so worried now that I've had my scan... My mum had ovarian cancer so always happy to find out mine are okay.
Good luck with you appointment, I'm sure you'll be well looked after.
My lining was a little thick so now on hrt for 6 months. If you have polyps I'm sure they would have seen them on the scan and told you. Why not have a chat with your doctor, which I did today, to ease your mind. X
I had the scan first and then was scheduled for a biopsy (hysteroscopy?) the week after. This may be because of covid restrictions, since apparently they normally do both on the same day.
The doctor discussed the scan with me - lining was thick but she though that might mean I would get another period (which happenened) and there were a couple of fibroids which she was not worried about.
She decided it was ok to skip the biopsy unless more unusual bleeding happened, in which case it would be done straight away.
Hi there, I think its just a case of "see how you go". I started HRT provera nearly two weeks ago and knew nothing of what may happen. My goodness, what a shock!!! Ive been bleeding for nearly all that time, horrific stomach cramps, and period poo. Nobody told me any of this so I went to the doctor who was also unaware. She investigated and I got a letter two days ago to say this was par for the course, but if symptoms didnt settle, to contact her again. Things have improved and Im hopeful that bleeding will stop. Im off work as I wouldnt be able to do my job, its quite a physical one, but just want to feel well again. Please keep in touch and hopefully all will resolve itself.
Thanks to all who replied to my earlier post, really appreciate it. Just a quick update, as much for future users as any, as I found it really useful to stumble across this forum and to hear about actual experiences.
I had the transvaginal ultrasound on Tuesday and just received a call to book me in for a hysteroscopy on Monday. All that I was told at the ultrasound was that I have fibroids and one is quite large. She said the fibroids are making it a bit difficult to measure the lining thickness of my uterus. I didn't ask more because I thought it best to try to be patient (hard!) and wait until my scan had been reviewed properly and I can speak to a Dr and they told me today that it will be a Dr doing the hysteroscopy and he/she will go through things with me then. Told to take 2 paracetomol and 2 ibuprofen and asked if I have someone to drive me home. Not looking forward to it (no surprise there I guess!) but glad that an investigation is being done. Will post an update once I know more.
Hi there, I had this done nearly two months ago and youre right it isnt pleasant. Pain relief before is a must and its very uncomfortable whilst in progress but as soon as its over, the discomfort is gone. Take sanitary wear with you. I was ok to drive myself home but everyione is diferent and its always good to have someone with you just in case. I wasnt allowed to have anyone with me at the procedure though. Good luck with it all. Im still off work for another two weeks and my dr is writing to the consultant as this is unusual to be bleeding after four weeks. Onwards and upwards.
Best wishes to you.
I had ultrasounds last week, thickness is 9mm (4 Is normal) and I have a fibroid but Dr said he's not worried about that. Also did a smear test as my gp surgery isn't booking them at the moment and was due - Dr was cross about that! Told me I need the hysteroscopy but my appointment has come through for 24th September which seems ages away. I'd rather get it over with asap and find out. The appointment is also with a different Dr which is disappointing as the one I saw was very experienced and I felt confident in him (the nurse also told me she'd choose him anytime). I don't know if it's worth phoning to see if I can get seen sooner and by him.