Possible Nasopharyngeal/Oesophageal cancer Young Mum 31

Hi everyone, 

I’ve been going through a lot over the last few weeks and I need somewhere to come for some coping mechanisms. 

I’ve been suffering from chest pain and back pain since last October, with occasional numbness in my left arm & leg. It was palmed off as anxiety by several GP’s. I then started spitting up blood, had chest X-rays, told nothing to worry about. One night in January I woke up with water brash & felt nauseous all weekend, chest pain worse than ever and began to spit up pure blood (not mixed with phlegm) Also had occasional night sweats and lost a stone in weight. My shins are also hurting me especially in the left leg and I’m having occasional muscle spasms. I also have tingling in the back of my head, a weird pressure behind my eye and my tongue feels tingly & I have a funny taste in my mouth. After several trips to A&E they eventually did a nasal endoscopy & found a bleeding area which the first doc called an ulcer. I’ve had an MRI, no results yet and an endoscopy booked in for Tuesday. 

Im only 31 with 2 beautiful children aged 2 & 5. I’m an absolute mess, I’m trying my hardest every day to stay strong but I’m not sleeping, I’m crying on & off every day (not in front of kids) My bloods are normal and I’ve had a ct of my abdomen which is normal so my husband is purely focused on those 2 positives & flat out refusing to accept any possibility of it being cancer. 

After significant research online I’ve come to the conclusion that it is inevitable I have nasopharyngeal and or oesophageal cancer. I literally have all of the symptoms. 

Has anyone else been in this situation and if so how did you get through it all? The thought of not being here to see my kids growing up tears me up inside.

Thank you for reading

Becky x

 

 

  • Oh my ...

    Your getting into a right overwhelming tizzy ... we all panic when we have tests ... and l know yours are hightened because of your little ones ... but hold on till you get your M R I   results ... everyone who googles symptoms get worse case sinarios... far from putting your mind at rest ... it does summersalts .. and there may be another reason at the end of the day .. you could be loosing weight because your so anxious ...

    We've all been where you are now ... we know how scary it is ... but no amount of panic or doing "what ifs" will change anything ... if it's a good result, you'll be mentally worn out ... if anything comes back positive ... at least you'll know what your dealing with ...

    Your hubby is trying to stay positive, because if he panics too ...  you'd both not cope ... so he's doing the right thing ... trust me, when someone close to you panics, it makes things far worse ... so hold on to him .. he's just trying to get you through ... 

    Good luck for a good result ... but wer always here... no mater which way .. lots of us on here, all kicking cancers butt ... big vertual hug. . Chrissie xx

  • Hi Chrissie, 

    Thank you so much for your response. What you’ve said about my husband makes sense, I just worry that if he’s not prepared for bad news then it’s going to completely floor him. My parents are being the same. But you’re right, if he was the same as me then we just wouldn’t function as a family. 

    Im terrified, I find the days the hardest as my little boy is just beginning to string sentences together and my little girl is my best friend, I get so upset thinking of me not being there for them growing up. I don’t want this to come across as being insensitive as I know I haven’t had a formal diagnosis. 

    I’ve read numerous threads on here and I know people say that the waiting is horrendous. I’m just a mess. 

    I hope everything is okay with you. Thank you again for responding xxx

     

     

  • Hi there ..

    We just have to get things in a bit of order ... I did the same as you ... my granddaughter Emily in pic is my world and she was only 5 when l got diagnosed ... wer just best little soul mates who just get each other ... my son went into panic mode ...  which made me worse ... then one day my daughter in law sat us down, and said no more panicking. . No more "what ifs" no looking ahead at what may be ..  well take every problem as and when it comes up... and well do it together ... 

    True to her word ... they were with me every step of the way ... and once we all stopped panicking , l coped and never looked back ... it was the advice we all needed ... so l thought right I'll get a pair of pink vertual boxing gloves ... and get in the ring ... little did l know there's loads of us in there ... think we got cancer a little frightened ... I've got a tea shirt that says cancer touched my boob so I kicked it's *** ...

    I've had days where I shut myself away and cried untill I was all cryed out ... got it out of my system and got back in the ring ... it isn't about being brave ... it's about being scared witless but doing it anyway ...

    I've posted on here on low days, and got wonderful advice, that would pick me up again .. because others think they know .. but untill we go through this no one quite gets it .. we do .. it's like a safe place where we come to put feelings down, or vent .. or just chat ... so you can do this .. don't look at those babies and think down the line ... no one knows if anyone will be here tomorrow... so try and live in the day .. 

    And you know even though I had a grade 3 breast cancer and a masectomy in July 2017 ... I'm still here making memories with my Emily .. always here if you want a chat ... Chrissie

  • Aww Christie, reading this has me in tears. Your Emily is beautiful and it is so inspiring to hear your story. 

    Ive been reading posts here all week but I’m so glad I posted myself. I most definitely have been in panic mode, I’m going to take your advice and take a breath until I know more. 

    I’m normally so in control of things it’s hard that this is completely out of my control, but I know that worrying won’t change anything. 

    Thank you again for responding, it means a lot xxx 

  • YOUR VERY WELCOME .... keep in touch ...  your amazing ...really proud of you ...

  • You sound like your going through similar to me.

    im 30 mum to two boys.

    for me iv been getting persistent sore throats for 18 months always fobbed of by the doctors- told I’m two young, just a virus , anxiety etc. 

    Now I have tiredness, food gets stuck, 1 stone 5 pounds weight loss in 3 months and a lump on my neck .

     

    only now are the referring me to an ent which is not till 25th of April. I do have an ultrasound for the lump on Monday. 

    I feel like if your a young woman you get looked at like your crazy until you have so many symptoms and they finally take you seriously. I like you have googled everything and mine is pointing to oral cancer somewhere. You’d think after 18 months of a sore throat that didn’t get better with antibiotics and no infection they would have sent me to an ent long ago?!!! 

    I will probably be needing a camera up Nose and in throat also. 

    Dont have much advice but wanted you to know it’s not just you. And I know how frustrating it is when you KNOW in your gut something is wrong and just because you are young they make you feel mad!! 

    I bet like you no one understands and you feel so alone trying to stay positive in front of your kids, that’s how I feel. 

     

    Atleast hopefully you you will have some answers really soon. I hope it’s not as bad as you think it is. 

     

    Do do you have any swollen lymph nodes in your neck? 

  • Hi Amy, 

    so sorry to hear that you are going through the same thing. It’s awful isn’t it. No I don’t have any lumps but the left side of my neck feels fuller if that makes any sense.

    yes I too feel very alone, it’s nice to come on here to meet people in similar situations. I didn’t get any sleep last night, I feel like I’m deteriorating every day but there’s nothing I can do apart from wait for results and my endoscopy. 

    And yes it is very frustrating to be palmed off because you are young. I’ve been constantly told that it’s not cancer as I’m so young, it’s like no one believes me or is taking me seriously.

    Hope your ultrasound goes okay tomorrow, will be thinking of you, let me know how you get on xx

  • Hi young mum and Amy ...

    I've seen too many threads on here say they go to Drs only to be told they are too young .... and get fobbed off .. yes they are mainly right, the odds are slim .. but those Drs need to go to the children's cancer ward ... because it may be slim, but not impossible .... 

    I stay on here mainly for the young ones ... because they need someone to listen,  and often feel alone ... maybe after you both get results ... I'm preying are good .. but whichever way it goes, there must be something we can do to make Drs take everyone , no matter their age seriously ... 

    Amy, can you ask for the 2 week refural .. if not ask why not ... I'm glad you've both found each other .. and if you or anyone else has any ideas about how we can get this all changed .. please let us know .. this fobbing off has to stop ...  Chrissie