Hi Chris1969,

Welcome to Cancer Chat. I'm sorry you haven't received a reply yet - it may be that no one who has seen your post has similar experience to share. My reply here will boost your post so more people will see it.

Do make sure you ask any questions to your doctor so you can be as informed as possible about what to expect.

And do continue to use this forum for support from others, if you would like to of course - it is a very welcoming community of people.

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi Chris,

Welcome to the club no one wants to be a member of.

I think you haven't had any replies yet because it sounds as though what you have is quite unusual. I have never heard of it before so I can't give you any helpful information but I wish you well and hope someone does get in touch.

Try to keep a positive attitude, it helps a lot!

Good luck

Christine