Pls help

Morning,

My friends mum has just been diagnosed with brain cancer. They have also found it in her lungs and lymphs. She is totally aware that there's nothing much they can do to cure the brain tumour due to its location but they haven't even mentioned palliative care. Although she hasn't had many symptoms yet except a few words she forgot... She thought she was suffering form dementia at first, she understands that the effects the tumour will have as it increases in size. The specialist has been very dismissive and just said there's not treatment that can be offered and left it at that.

Should she have had palliative care discussed at her consultations? 

My fiend is at a loss and doesn't understand why.

Pls can you offer some help?

  • Hi there ... so sad for you , going through this time ... if you phone McMillan free phone number , I’m pretty sure they will help with palative care .. they were there to help wash , dress, and chat for my brother in law , those last precious weeks ... when you need it ... and there’s a number on here to phone too ... so sending you all a big hug ... Chrisie xx

  • Hi it might be a idea to get in touch with overgate there amazing and offer so much support my mum passed this year and we didn't want anyone for mum as I'm trained in palitive care but unfourtunlty mum got rushed to hospital and I never got her home my best advice is talk to the person who is ill it's really important to know there wishes as it's the last thing we can try do x

  • Hi

    So sorry for your difficulties in getting information.  Some very good advice already given.When my husband's diagnosis was given as terminal we were advised at follow up checks as to where and when to go for assistance.  It actually all filtered through to our GP and this was always our first port of call when his symptoms changed (it was a three year journey though we were never given a firm timeline as each patient responds differently).  He was given access to a palliative care nurse when 'holding' treatment had to be stopped.

    I do hope you can get some answers/support for your friend's Mum.  Jules54