Petrous apex meningioma

I have had three MRI scans which show a abnormality in my Petrous apex of my brain which is getting larger. I have been told by letter this may be a meningioma but the neurologist can’t be sure just by scans. He is asking a neurosurgeon and radiologist to look at my scan and make a decision. What is worrying me is that he has also requested a lung and abdominal scan to look for other abnormalities with out explaining what and why he is looking for. I haven’t even met this consultant who has written to me basically telling me in a letter I may have a brain tumour. I have found this quite stressful as I have so many questions that I can’t ask until the next batch of scans are done. I’m 51 yrs old and can not talk to family as to not worry them until I know what I’m dealing with. The secretary has told me when I asked for an appointment to ask questions there are none until January.

if any body has had a similar experience I would love to hear from you. Thank you 

  • Hi phoenix, 

    I'm sorry to read of the frustrating situation you find yourself in at the moment. I've had a quick look around the forum and unfortunately I haven't been able to find anyone with the same diagnosis but I'm sure our members have experienced similiar difficulties when trying to get in touch with someone to ask questions and hopefully some of them will be along soon to offer their support and guidance.

    I know you've posted in our cancer nurses section of the forum before but if you'd like to discuss your questions with them in person then do give them a call. Their number is 0808 800 4040 and lines are open Monday - Friday between 9a.m - 5p.m.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Thank you for your response. I have already contacted the nurses but they can’t tell me anymore than I know myself at this stage. It’s not their fault as they can’t second guess what diagnosis I may have or not. I am pleased the Drs are being though but I can’t help feeling like I am being kept out of the loop of discussions with specialists about my own body. Lack of control I suppose. 

    I will just have to be “patient “ excuse the pun !

    thank you