Petrified of chemo

Hello,

I've been diagnosed with IDC, Stage 1, grade 2. I am grateful it's been caught early & that there is a route for treatment. I am 41, otherwise a healthy woman. am also aware that others have much worse to deal with. But I'm so so very frightened. I feel like a little girl. I am a single mum to two girls aged 6 & 8 and we've already been through so much trauma as a family. I'm worried how I will cope and how they will. I want to be their mummy and, be able to look after them. I don't know what I'm doing writing this at 4am, but I guess I thought I would put it out there x 

  • Hi lucyb12 I just wanted to send you a big virtual hug I was diagnosed with Invasive Lobular breast cancer on Thursday and this whole process is pretty overwhelming, although I feel a lot lighter now I know what it is and what the plan is. I'm also a single mum and have a 17 year old son who is amazing but I feel for you very much having younger ones and having to cope with this. As parents we just want to protect them don't we. I think the best thing is to be as honest as possible. My son knows everything and I've promised him that will continue regardless of the news but obviously with a six and eight year old that would need to be delivered in an age appropriate way. I think as long as they are showered with love they will cope and so will you my friend. This group seems full of very caring people and I think you should always talk about your concerns, please don't feel that you are alone in this because you aren't. Do you have a supportive circle of people around you? Hope you've managed to get some sleep Xx 

  • Do get in touch with the Macmillen nurses they are wonderful stay positive stay strong x

  • Thank you so much, I have done that today x

  • Hi Lucy

    I know you must be feeling very frightened right now but please be assured you will be OK.  I was diagnosed with IDC almost 4 years ago, literally 2 weeks after losing my mum to breast cancer.   I was only 47 at the time, I've always been fit and healthy,  I run 3 times a week, never smoked and honestly I was asking why me? I'm also a single mum and was petrified that I wouldn't be around to see my kids grow up.  And I'm still here.  Has your consultant told you if you're having surgery first or chemo first? Don't be afraid to ask LOTS of questions.  Yes it sounds scary buy your oncologist will give you a treatment plan and discuss your options of a cold cap or a wig.  I decided against the cold cap as my friend used one and it gave her a lot of headaches.  My lovely hairdresser cut my hair, I donated it to the little princess trust and then she shaved my head.  I embraced being bald over the summer and loved wearing pretty scarves.  You'll need a lot.of support from family and friends to help you with your children, especially on the days when you feel exhausted from the chemo and you want to stay in bed.  If you need any tips, advice or generally just want to chat then please message me.  Take care and good luck xxxx

  • Lucy I had chemo 10 years ago now.  Once you start the treatment the support offered is excellent. That was my experience. You are told who to contact if necessary and indeed the MacMillan nurse maintains contact with you at all stages of treatment. It's hard that there is no doubt but you will get there. Time passes quickly and before you know it chemo will finish. 
    my very best wishes to you. Kind regards. X

  • Thank you for your kind and encouraging words. I really appreciate your message x

  • Thank you so much for your kind message. I'm very sorry to hear about your mum. 
     

    I've been told 6 months chemo, operation, then radiotherapy xx 

  • Please don't be scared, you will have a great team to take care of you and you will have a macmillan nurse too. Anything you need to ask or just for advice please don't hesitate to ask 

    Take care and good luck

    Sue xxx

     

     

     

     

     

     

  • I really appreciate your kind supportive words. They have helped me tonight xx

  • Dear Lucy,

    My situation is so similar to yours. I'm 41 with a 4 year old son and I was diagnosed with IDC, stage one grade two, lumpectomy in Nov and about to embark on 4 rounds of EC chemo, 3 weeks apart (first infusion on Friday 3rd Feb) and then radio in May. 

    Like you, I'm utterly petrified of chemo. I feel more scared now then when I was first diagnosed. 

    So I don't know how much help I can be! But I wanted to let you know I hear you and I'm with you. We can do this together. 

    Michelle x