Parotidectomy & neck dissection

Well it's happening tomorrow, total parotidectomy and neck dissection so it really is cancer. The last few weeks have been surreal, first the guilt, shock, dealing with all the hospital visits, telling everyone, closing my business, sorting my affairs and now the time has come to deal with it but I still don't really believe it!!!!! I feel so well! Although I am beginning to feel a little wobbly now not really knowing how I am going to feel afterwards. I know the technical stuff but it's the emotions, feelings and the ot knowing that's really weird! So if anyone is out there and can give me a clue I would be most grateful but if not I will update you in a week or so!

  • Hi Liners,

    First let me wish u a  speedy recovery.

    I am not sure if this is what u were asking about regarding emotions but I said to myself what the h___.

    We all go thru changes in our lives differently. Some people are more verbal, some quieter than others, etc. It all depends on who we are & how we have handled other problems in the past. I have read, been taught, & told frequently about the 5 Stages of Grief or Loss by Elisabeth Kulber Ross. They are 1) Denial 2) Anger 3) Bargaining 4) Depression 5) Acceptance.

    They have the explanation of each on the computer & many books on them. These feelings enter our lives in different degrees & not necessarily in this order & we may not experience each of these 5 stages. We may only experience 3 or 4. It will explain there isn't a set pattern.

    I hope this helps a little & God Bless & accompany you through your journey.  Wishing u all the best, Elissa

  • Thank you Elissa, you have helped a lot. I feel ready now and leave for the hospital in a few minutes. Positive thoughts surround me.

    Liners xxx

  • Hi Liner,

    I am happy I could help.

    I wish you God's speed to total recovery & get you back to your activities of daily living sooner than soon.

    Keep in touch & let me know how you're doing.

    Take care & always think positive. Things will work out. Best & warmest wishes, Elissa

  • Liners, I wish I had seen this post sooner. I had parotidectomy and neck dissection (removing all 40 lymph glands) on 28th Feb and am now recovering. Had my stitches out today. Now I’m anxiously awaiting the histology from the tumour and lymph glands which will inform the strength and duration of the radiotherapy which will be the next step in my treatment. This seems to be a very rare cancer and apparently most parotid rumours are benign so it came as a real shock to me to find out about this shortly after the birth of my first baby. I’ve been through all the same emotions as you. Particularly regarding the facial nerve damage. I hope your surgery went well and that you’re recovering well. Make sure you get plenty of rest and eat well. Soft food is a good idea as chewing can be a problem post-surgery. Take care, Kate
  • Hi Kate

    i have only just seen your post and hope things are going well for you.

    my surgery went reasonably well (6hours!!!) the tumour was removed but not all nodes so I have to have another operation in a couple of weeks! I had my follow up on tuesday and they also told me I have a high grade aggressive mucoepidermoid carcinoma. This has come as another shock. So more surgery then radiotherapy and possibly chemo at same time. I have a planning meeting in just less than 2 weeks time so will know more about the next surgery and treatment. My facial nerve has been saved for now. I actually asked my consultant if the next treatment was to prolong my life or was he still hoping to cure me, he said at this point he was still aiming to rid me of the cancer but also said it would be difficult and there was a high possibility that it would come back. I feel that as long as he said he's aiming to cure me then that's good enough for me to continue treatment. I'm scared but positive.

    Let me know how you are doing,

    Liners xxxxx

  • Hi Liners

    Hope you are doing well following your operation. Do you mind me asking what your symptoms were for the MEC? Did you have a lump? Did it grow?

    Thanks

    Caryl

  • I am waiting for a date for parotidectomy but I am confident it will be beign and will only be a day procedure I also feel ok don't know if this helps have a great lump but trust my surgeon