Hello Dawn,

I hope you will meet others on our forum who have tried Palbociclib so that you can receive some feedback from other ladies here. Palbociclib is mentioned on our website in our section on research into treating breast cancer which you can read here. Our nurses may also be able to answer any questions you may have about this drug so don't hesitate to ring them on this free number 0808 800 4040, Monday to Friday from 9am to 5pm.

I hope your new treatment goes well and that you don't experience any of the difficult side effects. Let us know how it goes!

Best wishes,

Lucie, Cancer Chat Moderator

Hi Dawn,

hope your doing ok. I'm on exact same combo, been on it for 12 days and doing great, no side effects yet, so fingers crossed. Have bloods and see oncologist on Tuesday , I'm sure all will be ok though. Hubby full of a cold and cough so just hoping I don't catch that. 

babe x

Hi Dawn,

sorry I'm struggling to use this site...  I do just carry on like anyone else, I try and do what I can but rest if I get too tired. I just don't put myself in a situation that could compromise my health, so if someone has a cold or any illness then stay away but obviously if you live together, not much you can do. Why you going for surgery ? If you don't want to discuss I totally understand. X 

Sorry ha just realised you meant Theatre to see a show... I thought you meant for surgery... o god sorry, I'm not normally this dizzy honest.. ha. O get yourself out girl, live live live, remember your living the life they are saving...I have a spoon full of Manuka honey every day, I swear that helps to stay well. Xxx

Hi babe, how is it going? How many days is it now? Any side effects? I went for 2nd lot of Fulvestrant last Tuesday. Go back two weeks for another lot and maybe by then the US tablets will have arrived. Getting ready for Christmas and seeing my grandchildren, has kept me in the right frame of mind, although did have a 'down' day on Saturday, but different again today. Take care, love Dawn x

Hi Dawn, sorry because I use this site on my I phone I struggle with it. Anyway hope your feeling ok. I just had three weeks on the drug and a week off, I'm going tomorrow (Tuesday) to hopefully get the bum injections and three weeks worth of Palbociclib. I haven't had any side effects apart from onnthe day of fulvestrant. When they gave it me for second time I instantly got tightness in my chest and felt so so sick all day, was a bit breathless too and had funny heart flutter. I read online it's a rare side effect but when I spoke to oncologist she said just keep eye on it in case of blood clot from Palbociclib. Anyway I know it's not the tablets, it's deffo a little reaction to fulvestrant, however I can cope with it because obviously there isn't much else left for me. I'm really swollen because of the liver, things have got worse and worse and I haven't been told when to expect this drug to work. I tried looking up how long before it kicks in , but couldn't find anything. I'm hoping tomorrow I get the next lot, I'm sure it's gonna take more than one session before it starts to work, well that's what I hope anyway because otherwise it means it's not working. Vinoralbine (don't know how to spell ) is only thing left for me to try after this. Will probably know from bloods if it's doing anything but again don't know when to expect it to work. Have you been given any idea ? Why has it taken them so long to get your tablets ? Babe xxx

Hi Babe, you are just a baby, so young I don't know why but I assumed you were older which is very naive I am sorry I was diagnosed in 2008, just by chance, someone was looking out for me that day. Two years running I had been to my GP complaining of pain in the left nipple area. She examined me both times but couldn't feel any lumps or bumps, she told me you don't associate pain with breast cancer and both times sent me away telling me it was hormonal and to take more evening primrose oil. About 18 months later I was due to go for my regular screening and this may sound daft, but as soon as I put my foot on those steps to the mobile unit, I just knew it wasn't going to be good and I was right, got a letter to go to St Georges Hospital because the calcium in my breast had shown changes. I had a mammogram which didn't show anything, but because of the changes they did an ultrasound which revealed a nasty tumour tucked away nicely behind my left nipple. They told me I had breast cancer and everything became fuzzy, I could hear voices but they sounded in the distance. My beautiful surrogate daughter was with me and was listening to what was being said. I had some biopsies and was sent home to wait for the results. I immediately told work I was going to stay with my

family in Kent to get my head around it. I was a medical secretary at the time to the two lovliest