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Ovarian cancer, granulosa cell tumour,(GCT)

jay52
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Hi I new to the forum and would be pleased to hear from anyone who has the same type of cancer as mine,

ovarian, granulosa cell tumour, (GCT). I know it is quite a rare type and i have had it over the last 3 years

with it recurring again in 2016. So would be pleased to chat with anyone that is familiar with this type. thank you x

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    Hi jay52, I just wanted to pop on to offer you a very warm welcome to Cancer Chat!

    I'm sorry you've not had any replies from our other members yet; it might well be that we don't currently have any other women on the forum with this rare type, but perhaps someone will be along soon to chat if they spot your post.  

    I don't know if you're already familiar with them, but there are a couple of other charities that deal specifically with ovarian cancer: Ovacome, Target ovarian cancer, and The Eve Appeal (which also has an online community). Perhaps also worth taking a look at too. 

    Wishing you well; do let us know how you get on. 

    Helen

    Cancer Chat Moderator

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    Hi Jay, I know you posted this over a year ago, but have just seen it. I too have GCT, initially diagnosed about the time you wrote your post. I started in A & E in pain & having filled with fluid, & was given a full hysterectomy to take away the cancerous ovary they found on 21st Feb 2017, and given the diagnosis shortly afterwards. I was told it had gone, there was no need for chemo or any treatment, with the slight chance of it recurring. I was staged 1c2. I have had something detected in my pelvic area now, after about a year, & so am about to go in for surgery next week to see better what has recurred & where. I have done my best to find out what I can about GCT & would love to chat if you are still watching this forum?!
  • Offline in reply to madmarilyn
    Hi I have recently had a diagnosis of cancer in my Fallopian tube after surgery to remove a cyst on my ovary. This was a total shock to my surgeon as the cyst was not an issue. I am now awaiting more surgery to complete my hysterectomy, take out the lymph nodes and the lining of the stomach area. I may then need chemotherapy. I would like to keep in touch and see if we can help each other through this? Thanks J
  • Offline in reply to joto

    Hi Joto, not sure How I didn't see your reply, so sorry! Came on the forum as someone else had GCT and found this today! 

    How are you doing? Would love to keep in touch. My situation is that since my surgery in Feb 2018 for the recurrence, I have waited....and waited...and am now about to be referred to a London hospital for potential treatment, which could well be chemo. 

    How did your surgery go? Or are you still waiting? What have they decided to do next? I find a good long walk helps me clear my head when I get frustrated. I hate waiting and I hate not being in control, but I am telling myself that time will give me the right treatment, 

     

    i have alsomstarted binge watching whole series of involved dramas, which stop me thinking too much! 

    I hope to hear from you soon, so sorry I didn't see this earlier! 

     

     

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