Our story

Hi....

Never knowing what to do??

I'm still awake its 5am and thought it be a good idea to take some wait off my shoulders!!!

my partner who's 42 my world found out he has bowel cancer and secondary liver cancer....

Their first approach was to fit a stoma as his tumour was narrowing the bowel. they didn't want to remove tumour because it would mean 8 weeks recovery without treatment, they didn't want him to wait that long, that was 1st august, I'm now 14 september, when we met oncologist last week they told us it was not a cure he would  have palliative treatment which obviously to my ear was heartbreaking and to find out he wont be starting treatment until 23rd sept...

I'm just struggling with the give up attitude from the oncologist ....

Im 31 years old we hadn't yet had children so that was discussed to which they said they would refer him to store, when I rang yesterday to say it been a week I hadnt heard his reply he forgot and that i needed to do it myself, 

My point is that my post says more about what I'm battling against with hospitals and doctors than I am battling the cancer with him.....

I just want to thank each one of you for taking the time to post your stories because until now we've had no support...

And fight to find another way 

All my love xx

  • Hello 

    I’m so sorry you find yourself here but this forum is a great source of support. I’ve had issues myself trying to get information from hospitals and doctors and know how frustrating it can be. 

    My advice is to just chase everything up. If your told you’ll have something by a certain date and you don’t then ring up. I know you feel you shouldn’t have to but I’ve found it’s the best way. I also suggest taking along a notebook to appointments as I often forget important things when you have so much information thrown at you. It’s also good to write your questions in and can keep you focussed. 

    I hope this helps xx