Our 11 month old grandson has an optic pathway glioma that was not spotted by the doctor for 2 months!
He now has sepsis as well and a really struggling on all levels to cope as this will be ongoing for a long time.
Nobody can understand just how hard it is trying to carry on with a normalish life. I so envy people going about their everyday lives and have healthy children thinking my you don't realise how lucky you are.
How are we supposed to keep it together, help!!!