Together we will beat cancer

Donate
  1. Home
  2. About Cancer
  3. Cancer Chat
  4. Post A Discussion
  5. Newly diagnosed
  6. Oncotype DX worry

Oncotype DX worry

Post to forum
Search

Oncotype DX worry

11 Apr 2022 21:26

When I was diagnosed I was told it would be very unlikely that I'd need chemotherapy. Now here I am waiting for oncotype dx score and so worried of what will be. I know in the grand scheme of things I'm lucky my cancer was caught at an early stage but I have learned early doesn't always mean straight forward. I had to have biopsies on more than one occasion and then more surgery than first thought and I have a gut feeling I'll need chemotherapy. My appointment isn't until the 21st. 

Oncotype DX worry

11 Apr 2022 21:47 in response to Twinmum81

Hi,

My name is Sarah I am 38, your post is the mirror image of my post back in December. I have since had a lumpectomy and went back to clear the margins, stage 1, IDC Grade 3 and high grade DCIS Oestrogen Fed HER2-.

I actually found waiting for my Onco score seemed worse than the Diagnosis, I didn't sleep and was so worried. 
I actually decided that I didn't want to know, so when I went to my Oncologist I explained I didn't want too know my score, mainly because I knew due to my age and Grade 3 I was having Chemo anyway. Initially when they sent my T away it was because it was a grade 2 unfortunately it increased after Surgery.

I actually did find out a few weeks later from my nurse as it was a low risk score. 
 

I have had 6 rounds of FEC-t and am on my last one on Thursday, it is very Do-able and not as scary as I thought.  Yes it's not plesent but side effects effects only last a week after treatment and side effects are well managed. I used the cold cap which has been a success. 

I hope you get a positive Onco score. Best wishes Sarah 

Oncotype DX worry

12 Apr 2022 09:08 in response to Twinmum81

Hope you get a low score, I’m in the same situation. 

Told unlikely to need chemo but when I saw the surgeon she told me they had requested the Oncotype test. Me results are on the 20th. I have everything crossed for us both x

Oncotype DX worry

12 Apr 2022 21:39 in response to snow-drop

Hi Sarah! Thanks for your reply.

Mine is stage 0, grade 2. I had various small tumors and had them removed and SNB. Margins were clear so I've since had a breast reduction. Node status classed as negative but micrometastasis found in one. 

Glad you're managing to get through chemotherapy and cold cap has been a success. 

Thanks, hopefully it will go in my favour. 

Take care x

Oncotype DX worry

12 Apr 2022 21:41 in response to Bettyjayne

Hope you get a low score too. 

That's exactly what happened with me.

I'll hear how you get on and I'll have mine the day after you. I've got everything crossed for us. Xx

15
30
50