Oesophagus cancer. Awaiting results and struggling to cope

Hi all, I am currently awaiting results on two biopsys taken from my oesophagus and am really struggling with the worry of the results. Time seems to have stood still since I had the endoscopy.

During the scope I heard the nurse say the words I was dreading. I just need to take a couple of biopsys. After a few minutes in recovery a nurse advised me I was free to go home and explained when I'll get my results. As she spoke to me I noticed on my notes 2 pictures, one of a schiatzi ring (narrowing of the gullet) and the 1st picture is what I assume the biopsys are from. I can only describe it as an angry purple brain looking thing attached to my food pipe. The stress and worry has consumed me to the level I've missed 2 days from work and it's all I think about just now.

Im only 32 at the moment but my doctor said I was showing red flag symptoms for cancer. Problems swallowing. I guess I've ended up here seeking some wise words of people in the same boat. 

Help!

  • Hi, 

    I don't know if it is done the same everywhere but, when my dad had an endoscopy, they called me in and told us both together about the cancerous tumour they had found. They seemed to be in a rush to get the ball rolling.

    So maybe the fact that you're waiting for results is a good thing? 

    Like I said, I don't know how the news is necessarily given everywhere.

     

    I wish you all the best x

  • Hi Weerambo!

    Welcome to the forum, I hope you find the support and information that you are looking for.

    First of all please don't panic and secondly please DON'T use Google to look for information, as there is so much misinformation and out of date information out there.

    Waiting for results, especially before you've had a formal diagnosis, is about the hardest part of this rollercoaster ride. 

    Best wishes

    Dave

     

  • Hi not been through this but looking on here as I was diagnosed with stage 2 melanoma Sept last year now have lesions on liver repeat mri in 3 months which if there are changes means the worse a long wait. Going back to your situation my dad was diagnosed 12 years ago oesophagus cancer had never had day of being unwe'll before then he was told 6 months unless he had an operation which he did and he's just turned 70!! it's worrying you can't switch off from the not knowing but just stay positive we never thought my dad would still be here and he is !! Thinking off you
  • Don't think you have anything to worry about. I am an Endoscopy nurse and if it was a Cancer you would have been told there was a cause for concern following your procedure and things would have moved on pretty quickly. 

     

  • Hi Lana, thanks for your kind words, I was informed it's standard to wait between a week or 2 for results. I think the bank holiday yesterday will have an effect too.

     

    just a waiting game at the moment.

     

    ryan

  • Thanks Dave,

    unfortunately ive already done the google thing. A bit daft I know and this is part of my worry.

    hopefully I won't need to wait much longer. If I could switch this worry off for a day and get a good sleep I'd be fine. Exhausted is an understatement.

     

    ryan

  • Thanks Libbylu

    the nurse I spoke to seemed to spend too much time reassuring me everything was ok. Maybe paranoia but when I asked about the 1st pic that looked like a lump of some sort I got fobbed off and told aw that's just this shiatzi flap we're looking at. Looked nothing like the schiatzi ring though. If i never saw the pics I'd not be worried I don't think.

     

    hopefully you are right. Today will be a week and a day since my tests. Hopefully I get the results soon.

     

    thanks everyone for sharing your advice and stories. I'll be sure to update u when I get news.

    ryan

  • Like someone mentioned before. When my husband had his endoscopy they called me in with him after. To tell him that there was a tumour within his oesophagus. They took biopsies too. But these people know what they are looking for. So fingers crossed Hun x

  • I'm sorry but I have to disagree with you. My fella had a misdiagnosis of cancer to his stomach after many many times of being told it wasn't cancer after what feels like a thousand endoscopic procedures and biopsies He is now facing a terminal diagnosis, even a PET scan didn't raise concerns back in January, so how, after all the tests is it at this stage??
  • Hi Gemini,

    That sounds awful, has no-one explained why the PET scan didn't pick this up? The scan is only ever as good as the human being who interprets it and writes the report. 

    In my own case, I was looking at the screen when I had my endoscopy and my cancer (at the junction of my Oesophagus and Stomach) was very very easy to see even to my untrained eye. The irony was that I wasn't on a cancer pathway as everyone (including me) thought I had a peptic ulcer. The symptoms are very similar, I hadn't had any weight loss and was otherwise as fit as a fiddle.


    Best wishes
    Dave