Hi Twin Two,

I don't know how I have managed to miss the fact that you have had all this worry over Christmas, but I'm surprised to hear that your cancer has gone from HER2- to HER2+.

I am however glad to hear that your rash is not metastases after all. It certainly would have been so much better if you had known this beforehand, so that you could enjoy Christmas.

I shall be thinking of you next week and hope that all goes well with your Oncology appointment.

KInd regards,

Jolamine xx

Hi Twin,

Sorry to hear this though not sure what it means.

I hope it goes well next week.

Dragonfly

Gosh, didn’t know that could happen. Thankfully the stats look good now for HER2+ 

You certainly are going through the mill. Hopefully all of this means you are back on track and you can get on with treatment.

take care x

Thanks Jolamine,

You didn't miss it.  I didn't say anything cause it was Christmas, only told my husband Boxing Day night.

You are far from the only one surprised about the HER2 result, my surgeon looked like I could have knocked him down with a feather.  At the multi-disciplinary team meeting they had opened the results thinking it was just a formality, obviously it was going to be HER2- still.   They saw the results and apparently my oncologist said "Oh great, what do we do now?"  They've never had someone have all their chemotherapy finished, had their surgery and end up coming back in for a year of Herceptin.

Still, I know they'll be missing my amazing wit in the treatment bay so I'm sure they'll be delighted to have me back :D

My mum's concerned as the Herceptin caused a little damage to her heart but I'm a good bit younger.  Mind you, she also had a severe allergy to it so I might have that to look forward to.

Ah the wonders of cancer, the gift that keeps on giving.

Thanks for your thoughts.  I'm fine, just finding it all rather bemusing.  Not least cause my onco appointment has just come through on my phone for my first day back at work!

LJxx

Thanks Dragonfly,

It's just means that there is another protein encouraging cancer growth so they need to treat me with something to interrupt that process.  Being HER2+ raises the chance of recurrence (but then I still have cancer anyway) and tends to mean more aggressive cancers but time will tell.  They do at least have treatments for it and HER2 is an area being very well researched at the moment too so in the future there will likely be even more success with treating it.

LJx

:D

Seems nobody thought it could happen, well except me.  The minute he said "that never happens" I thought "yay, you've cursed me" :D

My body doesn't like to do things normally that's for sure.

It's all good.  Worries my mum, and I do have tiny concerns about my heart and the effect treatment could have on that, but mostly just annoyed at the time I'll need off work for treatment, wanted to be back properly.  They're going to love having to alter the roster to fit in 3-weekly appointments.

LJx

I know what you mean, minutes before surgery I was being told this is only DCIS. Cancer is a sneaky wee ***.

i guess we are all told of the possible complications of treatment but we need to have it anyway and just deal with the here and now.

I thought I’d be back at work in Oct, then Dec and now thinking it will be March. My work means travelling so can’t be away from home until treatment/consults are finished BUT I’m sooooo bored. 

Im sure your work will be delighted to have you back regardless of the amount of time you have to take off.

x

Gosh I have so much to learn about this disease. At the moment I just listen to the bits my doctor tells me.

apparently I could be on Anastrozole for 9 months before mastectomy.

x

Hi Twin Two,

This all seems so unfair, when you have done everything exactly by the book. I suppose that the only way to find out if Herceptin is going to impact on your heart is to try it. Like a lot of other treatments, there is no going back if it does though. I'm sure that the staff in the treatment bay will be glad to have you back for yourself, as much as for your wit. How is your seroma doing? You seem to have had it for quite a long time now.

Isn't it just typical that your Onco appointment is scheduled for your first day back at work? Still,I hope that it all goes well.

Kind regards,

Jolamine xx

I too am just learning all the cancer jargon, but I have bought the book "the complete guide to breast cancer" by dr Liz o riordan....so now have a good idea about what you're saying....I am constantly referring to it. It's cr*p that this is happening to you, the body is certainly a weird and sometimes wonderful thing.....

Thank goodness the rash was ok! I hope and pray it all turns out good, your wise words have given me comfort and when I see you have posted something I will always have a read....keep trucking lovely lady...

lyn xxxx