No more hospital appointments

Good evening 

My dad is 84 and he has had non small cell lung cancer for over 18 months. He has has radiopherapy with didnt shrink the tumour and last March he decided not to accept chemo. Today he was informed that the hospital no longer want to see him again and his doctor will now deal with his symptoms. Can anybody tell me what to expect now please.

  • Hello Barnet123; sorry to hear about your dad; I hope he has had a long and happy life and will enjoy the time that is left to him surrounded by loved ones and hopefully without pain.  I think you should contact your GP to find out how palliative care will be arranged to ensure your dad is comfortable and that any pain is controlled.  You can also talk to MacMillan Cancer Support; many people have their nurses come in to give help with caring for cancer patients and the few I have had contact with have been patient and kind. Talk this through when you speak with your GP.  You can ring Macmillan on Freefone 0808 808 0000 Mon-Fri 9am-8pm; they are happy to talk you through anything of which you are not sure.  I attach a link to the part of their website which tells you what they can do.

    www.macmillan.org.uk/.../additional-support-for-your-patients.html

    I know there are quite a few people who post on this forum who can give more detailed information; I have helped care for a few people with cancer but many are living with pallative care for family members at this time and can talk about their experiences.

    Best wishes.  Annie

  • Hello  Barnet 123. Sorry to hear about your dad. My late husband had NSCLC and like your dad was discharged from oncology, hospital and the rest of it with the help of a nominated palliative care nurse who arranged the discharge, hospital bed for home, 24/7 oxygen etc and coordinated this with gp practice. They then take over the care with district nurses and whoever else may be needed.

    As Annie has already said, your best option would be to contact your dad's gp.

    Sending best wishes to you and your dad at this difficult time.

    Lynne.