Hello Lorraine, 

I'm so sorry to hear about everything that's been happening for you recently. It sounds like a real rollercoaster and I'm not surprised that you feel upset and frustrated. 

I hope that since you posted that your original Consultant has been able to get in touch with the new hospital to expedite your appointment. If not then I wonder if getting in touch with your GP might be an idea. It's possible that they may be able to find out who your new Consultant is and explain the situation. 

It's far from ideal that you're having to deal with this on top of everything else. I really hope that you have some good news soon. Please keep in touch and let us know. 

Best wishes, 
Jenn
Cancer Chat moderator

Thank you Jen for replying to my post.

I managed to get hold of my the cology nurse who was in the meeting when I was told my diagnosis. She has been reaaly good and couldn't beleive it.

She has chased it up for me and the hospital called and emailed me yesterday to say they haved booked a new appointment for Tuesday 17th September.

Kind Regards

Lorraine

Hi LozraJ. I am really sorry to hear everything that you have been going through. That's brilliant that they have bought the operation forward, Blimey talk about stress. How have you slept at night with all that going on. As for your holiday, that is a real shame you had to cancel it. I had to cancel a holiday due to medical reasons years ago, and I believe it was last minute. Did you tell them it was due to having an unexpected operation for cancer ? I am pretty sure that if you ask your doctor for a letter explaining everything, you may be able to get your money back, or at least some of it. Good luck with everything Tina X

Thank you Tina.

Yes it has been very stressful, but hopefully we are getting somewhere now thank goodness.

I did tell the holiday company the circumstances and they contacted the owner of the aparment, but he said although he sympathised he was unable to refund at such a late stage before the holiday. I can understnd this as it may be his only income, so no hard feelings to him. I never took any insurance as it was only Devon, so a big lesson learnt there lol. 

I hope everything is well with you and your family, Lorraine xxx

Hi Lozra

Just read your post. It is so frustrating when what happens is different from what you’ve been told. And even more frustrating when you hit a brick wall when trying to resolve these issues. I’m glad that finally you’ve managed to get an earlier appointmapent. I hope you get your op soon and it all goes well.

i was diagnosed with endometrial cancer on April 13th last year after a long and stressful three week wait for biopsy results. I had to be referred to a different hospital for surgery too which was finally scheduled for May 17th. However they had a cancellation and it was brought forward to May 14th. That seemed very quick to me considering there is a much longer maximum time target laid down by the government. The cancer was graded 1 stage 1b so I was told that the op was not urgent. However after histology it was upgraded to 3 which I was told was more aggressive. I was offered 25 sessions of external radiotherapy, radiotherapy and chemo or further surgery to remove and test lymph nodes which they had not done in the first op as the cancer was low grade. I opted for further surgery so in July I had my second op. Thankfully there was no spread to the nodes so I had just three sessions of internal radiotherapy. I’ve had two follow up appointments both reporting all clear.

If you would like to talk to me about my experience or ask any questions feel free to do so. I would also suggest that you think about and write down any questions before your appointment and take someone with you to write down the answers, I would have forgotten what was said if I hadn’t,  especially at the traumatic follow up appointment where I was told they had upgraded the cancer. I was expecting a no further treatment report as that’s what they had suggested initially.  Another tip is when you have your op take loose fitting clothes especially underwear to wear afterwards. My abdomen whilst not painful was quite swollen and my journey home was very uncomfortable as I hadn’t thought about that.

Take care and I hope everything goes well.

Sundial