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Next Step with Dad

Forwards76
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My Dad has been diagnosed with a Malignant Primary Brain Tumour and we’ve been advised ‘months’.

He’s now been in hospital for 6 weeks and it’s been a rollercoaster. He flutchuates in himself and as he is on  a Liver ward and I haven’t got that one medical professional that I can throw questions at. 

My Mum passed away February ‘17 and we weren’t expecting to hear this news with Dad. 

He wants to return home and has expressed this when asked by Dr’s in hospital.

I’ve been supported nonstop with the occupational health therapist and others in making Dads choice happen and yesterday I spoke to the Discharge Nurse who put three options to us

Care Home

My Home that I share with my Husband and two teenage sons

Dads Home - she was was reluctant but understanding and assured me of a network of support.

I want Dad to return home and am willing to stay with him day and night but just wondering how many people out there do what I’m doing?

Is a Care Home more better? 

Im willing to give it a try and will throw my hands up if it doesn’t work out.x

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    Hello Forwards76,

    I noticed you'd not received a reply to your post yet so I wanted to stop by, first of all, to wish you a warm welcome to the forum. 

    I'm very sorry to hear about your dad's prognosis. It's heartening that you've had good support from the occupational therapists and others who are working with your dad. Have you made a decision yet about where your dad will live, based on the options outlined by his discharge nurse? 

    Everyone's experiences of end-of-life care will be different and it's not an easy decision to make without support and guidance. Have you had a chance to look at the Macmillan website, or spoken to their advisors? They have some excellent information on Practical help - including guidance on care at home, as well as hospices and care homes.

    Hopefully, one of our members who's been through something similar will be along soon to share their experiences. I do hope you're able to get the support you need for your dad, and yourself. Feel free to keep posting here and let us know how you get on.

    Wishing you all the best,

    Helen
    Cancer Chat moderator

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