HinClara 56

welcome tomthe ckub no one really wants to join I am Hazel 61 diagnosed last May with  tonsil cancer.Its a hard journey but I got the all clear last Monday I am cancer free just need to see ent everyb3 monthes and live my life. 

I have written a bow by blow honest account under 

www.radioactiveraz.wordpress.com

Dont know where you are but I was assigned a Macmillan nurse early does and they are an invaluable source of support somsuggest you do use them .Plus whilst at radiotherapy sessions you will probably a similar time every day talk to the others I made 3 really good contacts that we’ve shared experiences and tips  with all the way through.

sorry you have a sad set of circumstances losing your hubby and moving away ,but you may find your family will be supportive if you give them a chance 

do you have a treatment plan or full diagnosis yet .

i had 35 radiotherapy sessions and 2 cisplatin chemotherapy sessions  lostb2 stone in weight and am niw 21 weeks post radiotherapy still not eating fully but am getting there myndiagnosi

was T2 N2 NM hpv 16 +

keep in touch 

hazel

Hi Hazel.

Thank you for your reply.

I dont have much info yet as I have further tests to have. So far Ive been told tongue biopsies showed scc p16. Consultant said surgery followed by radiotherapy. MDT are meeting in two weeks after tests are completed.So I wont know anymore untill middle of Feb. Feels a long slow road so far.

When he mentioned the tonsil I thought hey ho been here before, they were adament my hubby had it in tonsil so they whipped them out and then said no its not. It turned out to be in the parotid gland.

Take care and keep well.

Hi Clara

keep in touch the h p v 16+ is usually a good indicator for a successful course if treatment m Hiw unlucky though thatbyiur hubby had parotid gland so so sorry yiuve obviously been down this path.

let us know after m d t meeting if yiu need anything just shout out if it’s only words. Or a ranr

hazel

Hi Hazel

Is that what P16 means? He didnt say + or -. I will ask when I go for biopsy next week.

I think I should make a note of questions to ask,my mind was a blank yesterday.

I was at neurology the day before and got bad news there too so in all its been alot to take this week.

Thanks again.

Sounds like it be to me abbreviated versions of h p v 16 + which is the cervical cancer virus that can attack the tonsils   Over 80% of population have it at any one time but if your immune system drops in it pops 90% male we as females are rare and seems like yiuve had enough in your plate recently . Read my blog it may help you 

hazel sorry about neurological problem as well , yes write down questions it’s the only way try and get someone to go with you as well

hazel

Hi Hazel,

I was in reading your blog weeks ago :-) Hmm mineworkers pension thats a sore subject for me I gave up fighting them on that one.

I was quite dismayed when I read about your experience at dental surgery. You should have put a complaint in writing to them.I would have!

I had my palate biopsy yesterday painful! Followed by CT scan later in evening,a long day!

I asked about p16 they were not very forthcoming though. Three of them all giving their opinion at same time losing it in the science of histopathlogy. The young dr said I will be given a full appraisal of my situation at my next appointment with the consultant. Its what I expected, they cannot really tell you anything thats the domain of the consultant.

Hope you are continuing to improve keep up the good fight.xx

Hi Clara

i did put a formal complaint in theybtook 16 weeks to answer me with platitude that points had been noted and passed on ! Bybthatcstage I was in the throws of treatment n felt yuck so thought not going to get any further. 

Mps ? Sorry if you’ve had bad experience 

please keep me up to date about your progress

hazel take care