hello Kezsimo,

                      sorry to read your shattering news,nothing prepares you for the bombshell landing in your lap.Although its not the best news to hear of the spread l am not so sure of the word unsurvivable being used this early and by your GP.l suspect the word incurable might have been used,so its important to realise that does not mean it cannot be treated or controlled.Dependent on spread and position on the bowel and liver,,surgery may be an option,and chemo /radiotherapy would be employed to control/remove sites on the lungs.The results of the biopsies should identify the cancer type and its susceptability to the correct chemotherapy drugs.when all the results are gathered in ,your MDT team will decide upon the best course of treatment,which l have no doubt you will be offered.As a survivor with spread to liver from bowel seven years on, l can tell you its a hard road but not an impossible one in front of you,and if you are willing to take it there will be so many exceptional individuals within the NHS and support services that will help you along the way.There has been a recognition that Covid disrupted treatment for previous patients and a concerted determination appears to have taken place to ensure that a full treatment option is offered.

                                                                                                                    l fully understand all your fears and uncertainties and truly hope that you will shortly have news of your way forward ,and that it proves to be better news than you currently dread,

                                                                                         David

I'm so sorry. How terrifying for you. This is where you or someone for you needs to fight for answers. You should be involved in your treatment plan. In your situation I think you can ask for someone to go with you to appointments regardless of covid. 

Ask what stage you are

What treatments can be considered

Side effects

Ask the doctor how many people they have treated in your situation? 

Ask for second opinion

Demand immediate responses, by sounds of it they think you haven't time to spare. 

Contact macmillan or a Winston wish charity. They offer counselling to children who's parents have cancer. Or if they are right and you haven't a long life ahead they can support y oh children. 

Please do go back to them on Monday and ask for more information. 

Let me know xx 

Hi

thanks for your reply.  I get my biopsy on Monday so hopefully I’ll get some answers then.  My employer has requested a second opinion from his Private Doctors which I’m grateful for.  But you have given me some questions for my doctor and things to look into for the kids.

Thank you x

Thank you David, I feel so much better reading this and knowing your still here and going strong after 7 years!  I hope your feeling strong and doing well.

I think maybe it’s just fear of the unknown at the minute. Until I get the results of this biopsy.   It was my own fault I asked the consultant was I going to die and he said it was unsurvivable he did say he would throw everything he could at it but I had just focused on that first bit.

fingers crossed I get some light at the end of the tunnel next week for me and thank you for your kind words x