New Year, New Decade . . . . and a cancer diagnosis

Hello

Well, this is not the way I wanted to spend Christmas or start a New Year/New Decade ! 

 

But I got my full diagnosis yesterday afternoon. 
 

I have a grade 3, triple negative, 35mm ish (seriously that is what it says in my little book, as its an odd shape & hard to size, but the MRI will confirm it more accurately) ductal breast cancer in my right boobie. 
 

I'm expecting a phone call on Friday to schedule me in for my MRI and oncologist meet next week. With the plan being to do 6-9 rounds of 3 weekly chemo, then surgery, then radiotherapy.

It all seems to be happening incredibly fast. From finding a lump (whilst having a coughing fit) to diagnosis in just 9 days. It certainly seems that Leeds, is a great place to get cancer, as the team have been phenomenal in how they have cared for & supported me. I feel humbled to have received such high quality care. 

Aside from having Mr Custard (my name for my cancer) I'm just a middle aged momma, trying to live and love her life as much as she can :)

So, hi to everyone and I wish you all health & hope 

M x 
 

 

  • Hello, this time last year I was facing the same unbelievable scenario. I found my lump quite by accident ( whilst leaning over to pick my knitting up) Christmas was ruined and I was going into the new year facing surgery and treatments. 

    I just wanted to say ( although you won't think so) the year will fly, I've done surgery, chemo, rads, herceptin and now on meds...

    you will get through this, it will be tough but if I can do it anyone can....

    here if you need a chat xx

  • Hi wickedangel.

    Happy new year!!!!! 

    Our stories are very similar! Love the fact you have named your cancer, what was your inspiration for 'Mr custard'? Lol.  I too was diagnosed on the 19th with a 48mm ductal invasive carcinoma. I have had my MRI and seeing the oncologist on the 10th. The wait is excruciating. I will have chemo x4   then a lumpectomy, another chemo x4 (if needed) then radiotherapy. Then hormonal treatment as its ER positive.  I will be on what's called the ROSCO study.  My lymph nodes looked clear with the ultra sound.  How about yours?.  How are you coping. I'm 52 and up until now perfectly healthy.   I'm here if you need to talk

    Big hugs   stef x

  • I'm gladdened to hear you have come through your intensive treatment and it is reassuring to hear that the year will pass quickly, as at the moment it seems incredibly long x 

  • Hi Stef

     

    I decided on Mr Custard because well custard is lovely n squishy n tasty n moreish, like good boobs should be. And lumpy custard, like lumpy boobs is just plain poop lol plus I thought it made it all a little less scary :)

     

    Funnily enough I'm 52 too 

    Sorry to hear you are going through this, as lets face it, you wouldn't wish it on your worst enemy, would you ?

     

    How are you feeling ?

     

    sending hugs

    m x

  • Ok most the time. Telling my daughters tomorrow they are 30 and 16   not looking forward to it!!! Didnt tell them earlier as did want to ruin xmas. 

    Need to get my head round going back to work!!! 

    How are you coping? Do you have family? Xxx

  • Hi S800TEF

     

    I hope it went well telling your girls and that you found the right words to support them. It is so hard, telling people you love, something that is going to hurt & frighten them. But tell them we must. It is all part of being a loving family. 
     

    I have a son, who is 25 and telling him and my 82yr old mum, was hard. My mum has gone into full on 'fussing' mode, which I'm finding surprisingly hard to cope with. I just want to be treated as 'normal' and for conversations to be about stuff other than cancer. Does that make sense ? 
     

    You are in my thoughts & prayers

    M x
     

     

     

     

  • Hi all

    Same here just today heard high grade dcis and mastectomy needed.  How can pre cancer need such drastic surgery. 

    Head in a turmoil you all sound so brave and upbeat.  

    Has anyone asked for a second opinion or requested lumpectomy instead. 

    Any advice would be gratefully received. 

    X

     

  • Hi

    I am Kirsty and I’ve been diagnosed with breast cancer in my left boob on 30th Dec and had the lump and lymph nodes x 2 removed yesterday. I go back on 13th to see if it’s spread.  1 cm diameter level 2 Estrogen positive.  And my god I want to get off this terrifying ride. I am 50 this year and I wanted it to be a fun time and now I just want to be well. I have a 14 year old girl and 12 year old boy. Single parent. 

     

    I am am with you every step of the way. It’s horrible, it’s yuck and how the hell did this happen... I seriously wish you absolutely the very very best and love in the world. I am down in Exeter and the care and support is great here too and it is humbling.  

    Lots of love x

     

  • Hi kirstyjane

    Hope you are recovering from your op. How amazingly quick they have been.  I am  seeing my oncologist on the 10th but was diagnosed on the 12th dec  told my 16yr old last night so had lots of tears.

     I have everything crossed that it's great results for you  I'm only in bridgwater so not far from you  

    Lots of hugs x

     

  • Hi

     

    Thank you for your lovely message. I got in quicker because there was a cancellation and it couldnt have happened quick enough. I havent told my two children 14 and 12 until.i get my results on 13rh. This is to see if its spread or contained. 

     

    We both have the  roller coaster waiting game but ive got my head around this thinking right i am in the system, they are the experts and they know what they are doing. I dont. Let them worry about the treatment. I am eating copious amounts of veg and fish no alcohol to get myself as healthy snd as well as i can for further treatments. Its the most awful thing to deal with  and i hope youre getting lots of support. I am a single parent so rely heavily on family and friends. 

     

    I dont know what else to say apart ftom.i am with you every step. And my thoughts are with you..

     

    Lots 9f my mums family live in bridgwater xxxx 

    Lots and lots of hugs xxxxxxx