On December 17th 2014 I picked up a plate at work, pain ripped through my arm and collarbone and ended up in a & e the next day. I was told I'd popped the ligament between my breastbone and collarbone but because it was a weekend I couldn't have an ultrasound or X-Ray and to go to GPS on Monday to sort it.
Two months, three GPS, five X-Rays and countless bottles of morphine and injections into my shoulder joint was still being told it's a ligament popped, well finally got the ultrasound on February 4th 2015, was admitted within an hour of the scan, on the 7th February was diagnosed with Myeloma in my right clavicle. I was told it was a rare case as I'm a European woman aged 51 and that it's presented in the clavicle.
At the time it wasn't the cancer that scared me so much as the fact the doctors said it was incurable and that life expectancy is 8/10 years, with a stem cell transplant. I started chemo straight away for four months along side a drugs trial and the transplant which was done in October, I have my next bone marrow biopsy on the 11th Jan, results on the 21st. This last year has torn every emotion I have to shreds and if it was for the strength of my best friend holding myself, my husband and children together I wouldn't still be sane!!.
But with everything crossed by the end of this month I'm hoping to achieve the R word, and then the future scares me so much, i.e. when it comes back which we know it will, what if they miss it again for two months?, what if it comes back stronger?, why can't they cure these cancers?, the advert on the telly is true it can be a very lonely place mentally. Until that day in February I'd never heard of myeloma and don't know of anyone else that's got it or know of anyone who knows someone with it and that makes this journey even more lonely!!!! Is there anyone on here with Myeloma please???
