Hello.
My Mum is 74 and was diagnosed with Mycosis Fungoides 12 months ago after being originally told her rash (that she had for a number of years) was ezcema. A definite diagnosis was only made after my Mum went to the doctors (3 times) complaining of lumps in her neck and a biopsy was carried out. Unfortunately the lymphoma has progressed into her lymph glands. She was originally prescribed with interferon injections but these didnt help at all. Mum then had 3 cycles of chemo but her immune system became so damaged and She kept getting infections so they stopped the course. The consultant then decided to try Bexarotene. However, after just 2 weeks, when Mum became unwell again, they decided this drug wasnt working and have now taken my Mum off it. My Mum is very poorly in hospital at the moment - the consultant has told us the cancer has spread to all of her glands and is also in her chest and stomach. The consultant has told us there is nothing else they can do for my Mum. Her prognosis is a matter of week/months. I know that this is quite a rare form of Lymphoma but wondered if anyone else had any experience of this awful cancer and can recommend any further treatments? My Mum doesnt get any sleep at all due to the constant itching. None of the creams prescribed seem to work. I just feel if my Mum could get some quality sleep this would help her recovery and build up her immune system. The Doctor prescribed sedatives to help her sleep but even these do not seem to help. We are absolutely desperate to find something to make her comfortable or an alternative form of medication to help her as time is running out and we feel that the Consultant has now given up on her. Many thanks Tessa.