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My mum has multiple myeloma

20 Sep 2021 13:50

Hi was just after some advice and to hear other peoples stories. 

My mum was diagnosed with multiple myeloma November 2019, she started chemo in the January on velcade and Dexamethasone and was in complete remission in June 2020, she didn't have the stem transplant. In March 2021 we was told she was relapsing and was to start chemo again she was on lenalidomide at first it was working amazing, she had a couple of hospital stays because of her kidneys then an infection but has been OK, then 3 weeks ago we was told its not working no more, she will start a new chemo which will be next week but we don't know which one yet, so my question it's has any1 else had a chemo not work and then the next one has?? Any idea which chemo she might be on next? Thanks for reading and I'll look forward to your replies x

My mum has multiple myeloma

22 Sep 2021 15:19 in response to Louisemay

Hello Louisemay and welcome to Cancer Chat.

I'm sorry to hear your mum has had a relapse and that the lenalidomide has stopped working but I and the rest of the community will have our fingers and toes crossed that the next chemo is more successful. 

We have some information on our website on what chemotherapy she may have next but for more information and advice it may be worth getting in touch with Myeloma UK.

Hopefully some of our members will share their thoughts, experiences and advice with you soon but if you'd like to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5pm.

Best wishes to you both,

Steph, Cancer Chat Moderator

My mum has multiple myeloma

22 Sep 2021 22:01 in response to Moderator Steph

Thank you so much for your reply ❤️