My lovely mum has been diagnosed with terminal cancer

I don’t know where to begin. On the 9th October my mum who is my world was diagnosed with secondary cancer, primary being the stomach or pancreas still unknown. She had an endoscopy and they took from secondary and not primary but she became very distressed during procedure and went down hill rapidly. They wanted to perform another but she has been confined to bed and deemed too weak. Skip literally 3 months later after just family and no professional helping her at home she went jaundice on Wednesday. We took her to a&e where they did a ct scan found the cancer has spread and blocking her bile ducts, she was transferred to another hospital on Friday where she has been told she needs a procedure involving another endoscopy to drain bile ducts and implant a stent. She has been put on high antibiotics, codeine, paracetamol, piriton, senna and thinning blood agents.

skio to today, she was sleeping uncommunicative, can’t stand anymore as her legs give way, had to take her to toilet and wipe her. To watch her cry has broken my heart, her head is there and her body isn’t. There plan is put stent in and then palliative care.

i can’t breathe, my world is unfolding in front of me and I can’t stop it.

im scared if she has endoscopy she won’t cope, option 2 is drainage with thin needle but they are reluctant to do so.

ive beggeg to stay with her at hospital but they won’t let me, do she is there suffering alone not able to walk or move.

ihudt don’t know what to do or feel anymore, I can’t cope with it all, yet I’m here writing this and she’s alone and afraid.

  • I'm so so sorry to read your story. What a tragic circumstance for you mum to be in and for you, having to watch her go through it. 

    I know it's hard not being able to stay with her, but you both need your rest. Spend your days with her and love her like you always have 

    Sending you the biggest hug xxxxxxx

  • God my heart is breaking for you. How far do i live from hospital? Could u book in somewhere nearby while all rhis is going on? Thinking of u and ur mum x

  • Oh my hunny ...

    How terrible of the hospital .. I can't believe in this day and age they would stop you ... how crule, is an understatement ... if it were me, I'd stage a sit in ... and wouldn't leave ... can she be transferred to a hospice .. ring Marie Currie or McMillan or both .. ask their advice ... 

    I'm absolutely gob smacked ... how dare they ... I feel so angry for you ... do what you have to do ... and the thing is, if you were there helping your mum , that would ease their job too ... 

    Let us know how you go ... Chrissie ....

  • Thank you All. My dad and sister live round the corner from hospital, I live half hour away. We’re able to stay till 10pm and return at 8am. It’s the fact that yesterday she couldn’t stand anymore or even put her hands through her hair without her arm dropping. She’s lost all her independence and to watch her cry is breaking my heart .i don’t know if it’s the cancer that’s beating her down or the medication or just the weakness. She’s meant to have a stent in on Monday, I don’t even know if she’s strong enough for that. If she doesn’t the toxins are running round her body . If she’s ok after procedure she can come home, and that’s all I want is for her to come home where we can care for her. I’m praying she be able to stand and use her arms again for her dignity.

    i really appreciated all your kind words xx

  • I am so sorry to hear about your pain and everything you are going through. I know exactly how you feel as I lost my beautiful soul mate, my Mummy, a year ago. While I know you must feel helpless and extremely anxious with your Mum in the hospital, for the time you do spend with her, just talk to her and tell her how much you love her. It's so difficult to try and be strong and brave for her when you feel at your weakest but your positivity and energy will reach her I promise. I will pray for you and your beautiful Mum and I hope you get to take her home soon. Your Mum must be so proud of you right now, she might not be able to show it but she will be. Try and keep strong for her and look after yourself. 

    If you are able to, I would play her wholetones. It's music played at a healing frequency that really helps to relax and soothe the body and soul. I played it to my Mum and she really liked it.

    Sending you and your Mum the biggest hug. 

    Take care lovely xxx

    Marci

  • I am so saddened to read your posting. This is the first time I've posted on here. I am also devastated by a diagnosis Over  New Year for my mum and today hasn't been a good day. Reaching out to you and sending a big hug. I was also told I could not stay with my mum in the hospital... but eventually we came to a compromise. My mum is 81 and this is all so frightening... maybe point out to the matron or head of ward that your mum is alone and scared and you only have each other in the world. And more poignantly I would ask if that they would behave the same if your mum were a child, I bet they would be more sympathetic then. Maybe run this by them ? It's  no different . Your mum wanting you with her is no different than a child needing you - she needs you and you need her . Every patient needs an advocate. Try again. This is a horrific and frightening time . Everyone ian an individual though and your mum may rally... You are in our prayers and thoughts, sending you love and strength xx God bless, so sorry you are having to endure all this . I have empathy with how you are feeling. This couldn't hurt more if they put me on the rack. And I get irritated by people saying 'look after yourself ' etc. I just needn't my mummy , like you do yours... try again xx (apologies for typos and punctuation, typing in dark on very old small iPhone without glasses!) xx

  • ... continuing... if you were to be able to stay with her you would only be doing what the Daily Mail NHS volunteers are allowed to do ...just dedicated to your mum! Try point out how useful to them you'd be xx good luck and still in our prayers xx

  • Thank you Marci and Robin Red. The doctor spoke to sisters in ward and we are now able to stay. It destroys your soul to see the pain they are going through. It’s really hard when their older like our mums. They finally managed to put a stent in my mums bile duct on Wednesday after 2 endoscopy, was so hard for her. They have finally diagnosed her with pancreatic cancer and are having a meeting tomorrow morning to discuss next plan of action, but I’m so scared as she’s so weak as to whether they will even offer chemo. It’s such a frightening time. Sending hugs and love to you and your mum.

    xx

  •  

    so with a heavy heart my gorgeous beautiful mum lost her battle with pancreatic cancer. Diagnosed October 9th and died February 12th. It is an evil disease that strips you off all your dignity. My mum was the bravest person, we tried so hard to save her but failed.

    pancreatic cancer unfortunately is one that is rarely diagnosed early, more research is needed.

    we have set up a just giving page in hope we can help others not suffer like my poor mum did.

     

    www.justgiving.com/Concetta-Raucci