My journey with salivary gland cancer

On Dec 7th 2017 I was dianogsed with cancer of the parotid gland, I could not have an operation as I had cancer in my skull, my consultant then informed me what I had was teminal.

I refused to believe this as I felt well in myself despite my dianogsis. As it was nearly xmas I couldnt start radiotherapy till Jan, my tumour had gone that big I could not see my left ear.

Having radiotherapy  was tough as it ceased my jaw and I found it hard to eat as my sessions were in the afternoon which I found hard eating my dinner.

When I finished radiotherapy I was on chemo for three months.

I had a scan after my second session of chemo this revealed the tumour was shrinking.

When I was at home I could feel the tumour shrinking and this would drain my energy completely for half an hour then I would be fine, despite my diagnosiss I continued to excercise and remain active.

Cut a along story short my final scan revealed the tumour had shrunk significantly and there was no cancer in my skull, I then had a PET scan and this revealed my tumour was clear of cancer.

On Sept 18th 2018 I had an operation removing the the tumour and the lymph node in my neck, I am currently cancer free and will have another scan Dec this year.

I want to inspire other people and despite what the consultants say if you believe in yourself and remain mentally strong good things happen I am proof of this. When I saw my surgeon he explained what happened to me is very unique, I remain very positive and each day is a blessing.

Hoping my scan in Dec shows I remain cancer free and I can enjoy this xmas to the max.

  • Wow well done you for being so strong and fighting like hell.  I hope you have a long and happy life.   Your post will inspire and help others to fight this sick disease.  Good luck!!!   Maggie

  • Thankyou so much for your kind words Maggie.

  • Wow !! This is an amazing outcome hope you are still well ! X

  • Hi Marie,

    I had a scan in Jan and it's clear. In June I am having a scan as I will be monitored every six months.

    I remain positve but every now and then I have to fight as doubts creep in my mind like what happens if the cancer comes back.

    I just think how lucky I am to still be here.

     

  • Hi indarspa 

    thats brilliant so happy to hear , your are extremely lucky , I have a lump in my neck which I think may be an enlarged parotid gland , I can feel it on both sides but my left side is a lot bigger I’ve had it for almost 2 years doctors say it may be a blocked salivary gland but I am really really worried about it I have awful anxiety and this really makes my anxiety terrible , but I have and ent app in 3 weeks so will hopefully find out what it is , I’m only 22 and can’t get the thought of C word out of my mind 

    sorry for rambling I’m really pleased I came across your post 

    take care 

  • Hi Marie,

    Two years is a long time is it painful?

    It's only natural to fear the worse, I had an aggresive cancer the tumour got so big I could not see my left ear. But I came through I always believed I would get better despite what the doctors told me.

    You must believe in yourself, and that you will come through this. Have you had a biopsy?

    I want to inspire people because I think anything is possible, after what happened to me.

    It could well be a blocked salivary gland, be positive. Salivary cancer is very rare especially for young people, I am considered young and I'm 46 now. This type of cancer usually happens to people in their late 50s to 60s so I was told.

    Please feel free to message me anytime if you need someone to talk to.

    Thankyou for reading my post I want to help as many people as I can

    Paul

  • Hi indarspa 

    thank you for your support , two years is how long I’ve know it’s been there I don’t know how long before it might of been there, it’s not painful atall , if I’m having one of my days where I prof and poke it every five seconds then it sometimes feels a little sore , I think it’s about 3cm that’s with my measuring so I’m not sure and I don’t think it has grown over time , you can’t see it protruding you can feel it though , everyone who’s felt it can hardly feel it but I know it’s there , my partner also has large glands in the same place as me , I sometimes wonder if some people just have bigger salivary glands that they can feel? 

    Mine isn’t moveable and it’s firm but not hard if you know what I mean , thank you for reading my posts I really appreciate it ️