Hi Day1990

i can understand and empathise totally with you! I lost my Dad last year to metastatic melanoma and was heart broken. My dad had melanoma for 5 year but was only poorly for the last 6 months or so...I took him to all his appointments and spent what time I could with him.

Although I miss him terribly I take comfort that I got to spend so much time with him and as you say some people don't get to do that, I lost my mam to cancer when she was only 49, my dad was 65 so al least I got longer with him.

I know you feel lost and scared but you don't know how strong you can be until you have to...just be there for your mam and appreciate any time you have now with him...nothing is guaranteed and who knows you may have longer than you think.

im sending you love and hugs xxx

Hi Day 1990,

I think you may have misunderstood.

An SCT can give 2-3 years Progression Free Survival, that is before the next relapse (disease progression).

As I understand it, it does not affect Overall Survival.

Furthermore, nobody can tell how long someone has to live; myeloma is a very individual disease with different responses to drugs etc.

Been trying to answer your post for days now but have only just managed to find the right words.

I was diagnosed with Myeloma in Oct/2016 and have had several lines of treatment. This then, is my 7th year and I'm now on palliative care with possibly a few months left; at least I beat the 4 year average.

Best Regards

Taff

I would suggest that you have a look at the Myeloma UK website as the information you have been given is incorrect.

The previous poster has pointed out that the disease is highly individual as are the treatments that may be offered. I know that this is the case as my husband was diagnosed with myeloma and had a stem cell transplant in 2020. He was not in hospital for a month either. He was back home within 10 days and we were on holiday in Greece 3 months later.

New treatmemnts are being used all the time and there are patients who have survived for many years after diagnosis. 

Hi Spiderdog,

I'm unsure if your post is a response to mine or to the original post.

Best Regards

Taff

Yes, you are right. It was meant to be a reply to the original post. I realised as soon as it was posted but couldn't find a way of deleting it. I won't be posting on this site again.

Hi Spiderdog,

Thanks for the confirmation, I'd hate to think I was posting wrong information and just wanted to make sure. I hope I didn't offend with my question.

I hope your husband goes on to have many, many years. I was told a couple of months in Oct/22 but I seem to be getting stronger.

Wishing you and yours all the best for the future.

Best Regards

Taff