Mum unwell unknown primary

Hi All

hope your all well

Im not sure why im posting here I suppose im after some similar experiences/ advice 

my mum was a perfectly healthy 69 year old.

In Nov 21 she started complaining of heartburn which wasn't settling with gaviscon and lanzarople, we spoke to the GP and he was instantly concerned and referred us to gastro team for suspected stomach cancer.

after a gastroscopy coming back clear they did a ct and mri scan which showed suspicious area in the liver, MDT wasn't concerned and said to come back in 3 months, by this point it's Feb 22 and my mum is in a LOT of pain and is admitted to hospital.

During these months she also developed skin cancer on her leg and removed in feb which showed it was a sebaceous cirmona and some genetics tests showed she had a faulty gene and we waiting for the genetic testing team to confirm muire torre syndrome 

 

back to her in hospital after further tests it shows she has an aggressive type of breast cancer only 0.5cm in diameter at this point, however she has leasions in lungs liver and spleen. After biopsy from liver and lungs they show nothing and cancer cannot be confirmed

this bring us to last few weeks, she has lost a lot of weight and the morphine she's on is doing nothing and she's developed jaundice, mri shows a tumor in pancrease pressing on her bile duct which needs relieving with a stent ASAP however the hospital continued to give her blood thinners so now she has to wait till Tuesday for the surgery. Her bilburen levels were on 185 yesterday and are jumping up rapidly. Her liver is also struggling to cope and she's on heavy morphine dose.

she is tired and sleeping most of the time and doesnt have a appetite.

we are really concerned and are unsure what to expect. The doctors are incredibly vague with the prognosis and gave me hope by saying the lesions are bigger so another biopsy will show the primary however I don't see it as good news because her organs are full of this cancer and I feel like she's in her last weeks and her body will not be able to cope with chemo at this point.

 

has anyone had similar experiences? It's shocking to see how fast she has deteriorated and we are in helpless watching her and it's agony seeing her like this. She is 70 next Friday and I know it will be her last birthday but also feel as if she won't make it through to it. 
 

I would be greatful to hear similar experiences good or bad, or any advice anyone can offer

 

Thank you for reading and god bless xx

  • Hello, and first of all, may I say how sorry I am about your Mum's illness and the obvious distress it is causing you and your family.  I nursed my Mum when she had cancer, and at some point I realised that she was dying, and I had to almost demand that her Doctors tell me the truth, which they did:  They confirmed my worst fears, that there was nothing they could do for my Mum and she had a very short time to live.  The doctors told me that the cancer in my mum was in every organ of her body and there was simply nothing more that could be done.  Naturally I was devastated but I needed to know the truth and maybe you should do what I did, and insist on being given the whole truth about your Mum's prognosis.  Once again, I am so sorry for what you and your Mum are going through, Violet, x