Welcome to Cancer Chat LBOYLE205 although I'm sorry about the news your mum received the other day.

We have some information about treatment on our website which I hope will be of some help to you at this time but if you have any other questions or would just like to chat to someone about your mum's diagnosis then do give our cancer nurses a call. You can contact them on 0808 800 4040 when the phone lines open again on Tuesday. They'll be available between 9a.m - 5p.m.

[@honey-lily]‍'s husband has been living with stage 4 glioblastoma since May last year so I've just tagged her in this post in case you'd like to chat with her about this.

Let your mum know we'll be thinking of her and wishing her all the best with her treatment when it begins.

Kind regards, 

Steph, Cancer Chat Moderator

Hi im so sorry to hear about your mum , im caring for my partner of 11 years he was diagnosed with right frontal lobe anaplastic astrocytoma in feb 2018 had surgery in march 2018 he then did 6 full weeks of radiotherapy and then temazolamide but that didnt go to plan he was beginning to loose his balance on his left side gradually starting to get weak to the point he couldnt move his left side at all i thought he had a stroke ! 

He was admitted to hospital where he stayed for a week they upped his anti seizure meds and upped his steroids he then had a mri scan which unfortunately came back with bad news it said that the tumour had grown and started spreading towards the left of his brain and it has gone up a grade ( glioblastoma grade 4 ) 

Still weak and some mobilaty gained he came home and disgussed a new treatment plan of which we were hopeful , he had several bouts of pcv chemo then came down with an infection so treatment had to be on hold he had an abscess on his back which required lancing and draining he left hospital with a huge hole on his sholder which needed cleaning and packing daily eventually it healed after 6 weeks so chemo was resumed !

After maybe 3 more sessions of pcv he was struggling to walk his left leg was swollen very red and hot to touch i took hom to the hospital and they confirmed it was cellulitis he had to recieve antibiotics through a drip after 3 days the infection was still not better and his antibiotics had to be upped on that very day he had a slight seizure where his face was twiching fast i called the doctors and i was escorted out of the room i was called back in maybe 5 mins after he seemed okay just tired , the next day i went to the hospital i saw the neuro-oncologist and consultant they came to his room for a little chat a chat that i wish never happened , they said due to all his infections during his chemo treatment it wouldnt be right to carry on ( my heart had just been ripped out again) she said with all these infections he isnt having a good quality of life and she has stopped it and its for the best ! 

The bext day came more bad news we had to meet with doctors again to explain that due to no nore treatment he would need to start recieving palliative care because he was going to deteriorate very quickly 

After 3 weeks in hospital he came home he isnt very mobile he now has a bed in the living room as he struggles to walk up the stairs or even walk at all he has a frame to walk with and a wheel chair for outing but preferes to use a mobility scooter he is not the same person he used to be he is changing rapidly he needs constant help and supervision hes constantly tired doesnt leave his bed sometimes (( he has several broken vertebrae in his back due to steroids making his bones weak )) so i have to help him with his bottle to wee , when hes sleeping he snores so loud his breathing is irregular and i have to check on him several times in the night , he barely talks anymore his memory has deteriorated rapidly amd his speech is slow and slurred he has community nurse come see him once a week and a nurse from a hospice every week to check on his pain, its so heart breaking watching somebody you love dearly go through this i have 4 beautiful children with him 2 are only babies but i had to have the most awful conversation with my eldest 2 i had to tell them that daddy is really ill and he wont be here with us for much longer it was estimated 2-4 months left ! Its awful seeing all this pain , and all the anger it brings to familys its heartbreaking i know im not the one with cancer but sometimes i just need 2 mins piece and quiet from caring for my partner aswell as my 4 kids its so tiring and emotionally draining , its real hard coming to terms with this diagnosis from the beginning i knew it was incurable but i didnt associate incurable with terminal so when the said its terminal with his care plan and prognosis i was shocked because it all happened so fast everything was moving so fast and it still is the best thing you can do with your mum is love her support her comfort her and give her a sholder to cry on make her comfortable and let her know you will support her during these devastating times that is all i can do now and i have a rough few months ahead of me but i cant crumble because he needs me i have to stay strong and so do you ... im here if you ever need to talk all the best and sending you love .

So sorry to here about your partner! I am also here for you ️

Hi,

lim so sorry to hear your news. Here if you need a chat.

Hi, I’m so sorry about your mum. If you need to chat feel free.

Hi,

I can completely understand how you feel. My mum was diagnosed with exactly the same in Feb this year. She had surgery and has now nearly finished her radio and chemo. It's just awful isn't it- p,ease please reach out if you need a chat about it xxxx