Mum has lung cancer but told cannot give timescale

Hi, im new here. I look after and care for my mum, working full time also.  Mum has lung cancer but Doctor said cannot give timescale as dont know how long it has been there.  It was early stage  as they offered radical radiotherapy but mum refused as shes in late 80s amd felt she could not cope with the side affects, and opted for quality of life remaining. Diagnosed in August 2017, slowly getting worse over the months but still having good days.  Im finding it hard as mum keeps making comment 'if im still here' when talking about the future.  Some days are ok, some not good.  Some days she copes with on the medication and other days she needs more. Im trying to look for signs of change but im not sure what to look for?  She gets tired easily, she seems to be suffering with stiff ankles when getting up in the morning, not sure if this is relevant?  Her appetitie is up and down and there have been episodes of incontinence.  I go to work, but dont want to be there, just want to be home looking after mum. Some days i feel like ive done a good job and shes doing ok and other days i feel like a faliure and im making things worse.  I feel selfish for feeling this way.  I worry about work and time off. Ive read some of the entries on here and have decided i will go off sick at some point to be home more but how will i know when to?  

  • Hi there ... oh my you must be mentally and physically exorsted ... your only human, and your doing more then a lot of others could not do , yet you use words like failure, and selfish. . Boy your being so hard on yourself ... I bet you must be around my age and l have trouble looking after me ... and have to space things out ...

    You will have days you feel down, it's only natural, but you look in your mirror and tell yourself your doing an amazing job ... not perfect, coz non of us are perfect .. we just do what we can when we can ...

    I know there's a  place on here you can look at end of life signs but the nurses do say it can be a hard read ... hopefully they will pop on with more info for you ... I only know from when I used to work in nursing homes some can hold on for a long time, others can pass quickly ...

    So please change those words to positive ones ... and I think what we all want on our last journey is just someone to hold our hands ... big hug you wonderfull daughter ... Chrissie xx 

  • Welcome to the forum Only_me although I'm sorry for the reason you are posting.

    I noticed that Chriss mentioned a page on our website that gives you some pointers about what to expect in the last weeks and days so I'm just following up to provide you with a link to that just here.

    Like Chriss has said it can be a difficult read so maybe have someone to support you when you read through it if you can or just make sure you're 100% ready to find out. 

    Do make sure you get in touch with your GP or other charities such as carersuk if you are starting to find it tough looking after your mum as they will be able to provide emotional and practical support to help you both at this time. We also have some information on our website about this as well.

    Best wishes to you both, 

    Steph, Cancer Chat Moderator