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Mri scan for invasive lobular breast cancer

12 Jan 2022 22:00

Hi got my results back today I have been diagnosed with invasive lobular breast cancer. I have to have MRI scan to find out the size . Anyone else had to do this .

 

 

 

Mri scan for invasive lobular breast cancer

12 Jan 2022 22:20 in response to Moseley

Hi Moseley hope yr doing ok.

yes I was diagnosed in September with ductal cancer grade 2 then after surgery grade 3.

I also had an mri it's very common to get an exact measurement if the cancer and to see if there is anything else, it's a good way if combining the information from the ultrasounds with the mri before any surgery to ensure you get the right treatment and in the right order too.

from my mri it shown another lump that was just a cyst so they drained it at my next ultrasound, also I had something show on my thyroid but turned out to be nothing so even if things show it doesn't always mean the worst please remember that.

I am pleased they did it even though it meant waiting a bit longer for surgery it is worth it not to miss anything.

 

hope this helps

 

love Kiera xx

 

 

 

Mri scan for invasive lobular breast cancer

12 Jan 2022 22:56 in response to Moseley

Hi yes, I had MRI scan after being diagnosed with Invasive Ductal breast Cancer . Mine was 5mm Grade 2. Your team will pull together all the results and decide the treatment for you. One step at a time . You are in the best possible hands and the breast nurses and doctors are so caring. I'm 2 years after treatment and doing fine
Silver 

Mri scan for invasive lobular breast cancer

13 Jan 2022 00:06 in response to Kiera123

Thank you for your reply. Can I ask which kind of surgery you decided to have .

Mri scan for invasive lobular breast cancer

13 Jan 2022 00:08 in response to Kiera123

Thank you for your support. Can I ask what surgery the doctors recommend. 

Mri scan for invasive lobular breast cancer

13 Jan 2022 00:10 in response to Moseley

Hi yes I had a lumpectomy and node biopsies, well they actually remove the nodes. They took 3 which were all clear . 
The outcome of my surgery is that they removed  a 22mm lump and nodes which were sent for testing. I had an oncotype test done which is specific to ductal cancers and the result shown that I would benefit from chemotherapy because I have some micro vascular invasion so although my nodes were clear it has eroded some blood vessels in my breast therefore gaining entry to my body. I will also have radiotherapy and hormone treatment too. 
 

it is so important that they have all tests done to give you the best treatment plan. 
in regards to what surgery the consultant recommended he didn't, he asked me my preference and after all the tests he said it was possible, I'm sure if it wasn't advised he would have recommended a mastectomy, this is also what the tests establish.

love Kiera xx

Mri scan for invasive lobular breast cancer

13 Jan 2022 00:22 in response to Kiera123

Thank you x 

Mri scan for invasive lobular breast cancer

14 Jan 2022 10:37 in response to Moseley

Hi,

A couple of years ago, I was diagnosed with lobular breast cancer.  I was sent for an MRI scan but my surgeon couldn't understand why, because I had already opted for a full mastectomy.  He explained that a MRI scan is necessary where a patient wanted a lumpectomy because the lobular tumour is much harder to measure by other methods. Apparently it doesn't form a lump which is easily measured, it is more like a sheet of cancerous cells that spreads in the lobes of the breast.  Realising I'd had the scan unnecessarily annoyed me somewhat as I found the MRI scan the worst of all the scans, not painful but annoying.,  He later said it was a good job I had opted for the mastectomy because my tumour was larger than he expected at 4cm..

Good luck with everything, just for your further info, I am now doing absolutely fine and, apparently, cancer free!

Christine xx

Mri scan for invasive lobular breast cancer

14 Jan 2022 11:14 in response to Sheltie_Lady

Thank you for your reply.  Mine lump is 28mm on mammogram. I am aware that it might be bigger . Can I ask you did you need chemo after x 

Mri scan for invasive lobular breast cancer

14 Jan 2022 12:01 in response to Moseley

Hi,

I just had the mastectomy followed a month later by lymph node clearance, because my surgeon thought he had felt something in the sentinel nodes taken at the same time as the mastectomy. He had been mistaken as there was no sign of cancer in the nodes he stripped.

As I had a mastectomy there was no need to have rads and he said that because I was over 70 he didn't think I would benefit from chemo (Yay!)

I take the hormone therapy, because my cancer was oestrogen positive, which hasn't caused half the problems we are told about, but I refused the bone thickening bisphosphonates because on the NHS Prognostic Index it only offered an extra one percent probability of me living for ten years after diagnosis.

I have to say that my attitude to the whole cancer thing is one of acceptance, only because you see things differently the older you get but I can understand how someone much younger will have more worries and fears. 
Good luck, it won't be as bad as you are anticipating.

Christine xx

Mri scan for invasive lobular breast cancer

14 Jan 2022 14:57 in response to Sheltie_Lady

Thank you for your reassuring words .

Mri scan for invasive lobular breast cancer

14 Jan 2022 18:13 in response to Moseley

I am waiting for a scan, have had a terrible five weeks with an operation that was said to be for a papilloma (a duct removed without margins which had been the original plan, except around the thing said to be a papilloma). But turns out to be no papilloma at all and all cancer. Okay hat kind is something that the hospital are being very cadgy about and described as "nothing to worry about ductal and a little bit of invasive"  and when queried said to be papillary carcinoma in situ (rare) and also invasive lobular cancer but they still say only affecting one area but also that they can't say more to me  until after the MRI

its very scary as my GP tells me they are looking at mastectomy and lymph renoval but they haven't said that to me and so I am hoping the MRI is done and looked a lot more carefully than the ultrasound and also that they do both breast a and check the lymph nodes.

so far the hospital seem to have a real mess of the testing as all imaging said to be normal and we have lost some weeks already and longer to wait for the MRI

I hope yours is quick and new and wish you lots of luck with it 

 

Mri scan for invasive lobular breast cancer

14 Jan 2022 19:01 in response to Elaneh

Hi sounds like you have had a bad time .hopefully it will all be sorted soon . Thank you for replying. X 

Mri scan for invasive lobular breast cancer

14 Jan 2022 21:49 in response to Moseley

Hi I was diagnosed with ILC in November and had MRI with contrast. Mammogram showed only cluster of calcification and no tumour as someone else has explained cells don't form as lump so couldn't be seen. Results came back as 7cm tumour and now booked for ultrasound and CT.

Mri scan for invasive lobular breast cancer

14 Jan 2022 22:30 in response to Splash19

Hi thanks for your reply. Why you having a CT and have doctors informed you of what they doing .