Hi ya ...

Got everything crossed for you, brave lass ..but no matter what ... cancer sucks big time ...

If courage can keep someone going, it's you ... Chrissie

Cheers Chriss, can you cross them for my oncologist too, think he could do with some moral support!!!!

Ah it's certainly educational all this cancer lark that's for sure.

LJx

What an absolute bummer! There are no other words to describe it. I so feel for you. Sending hugs and best wishes for good outcomes. xxx

 Hi LJ,

Not again!

I really feel for you and, have nothing but admiration for your indominatible spirit. I hope that when your oncologist gets hold of  this colleague who is one of the 'great and the good', that he is a miracle worker too.

You could certainly do with some red herrings in the mix, so I hope that the 2 suspect lumps come back as the said red herrings`.

Thinking of you and praying that you can get this sorted.

Kind regards,

Jolamine xx

Hi [@TwinTwo]‍ , I am not good with words ( i am better with numbers!:)) but after reading your post, i want to write something hoping that this will give your some support/comfort.

Reading from your previous posts and advises u have given to many of us here i find that you are a very strong brave and kind person. You inspire me to be strong as well- which i need. I know you must hear this often but ( i am not being original here!) but keep on fighting- we can do this!

I hope your oncologist will figure it out what course of action asap.

Will be thinking of you.

Sending you hugs and love

SC xx

Hello, want to swear on here but it will only come out as dots, so no impact. Wow you are having a time of it! You were one of the first to reply to my first post when I was diagnosed and you had so many wise words... my port in my storm and here I am trying to find appropriate words of wisdom when all I can really find are loads of inappropriate swear words......

You have so much support on here so let us be your port in your storm....you deserve the very best outcome possible.....xxxx

Thanks GadgetGal.

I know we all have a wee cry when we first hear the word 'cancer', then we might cry again when chemo hasn't worked, cry again when the first complication comes along.  But it's at the laughing stage with how many complications are getting thrown into the mix.

Only thing I can relate it to is in 2000 a lot of my friends and relatives died (individual circumstances not all at the same time).  When the news is broken on the first 4 or 5 you have the 'normal' reaction, but by the time you get to the 9th it's so incredulous your brain just doesn't know what to do with the information I don't think.

What a bizzare world we live in, and with some very bizzare bodies!

LJx

[@Jolamine]‍ [@Foxdale]‍ [@Marlyn]‍ 

Thanks guys.  I totally get the swearing thing Marlyn, sometimes it's needed on here but I put a really mild (not even) swear word once and it still blocked it out :D

Foxdale, love the numbers thing!  I'm a mathematician so I also love numbers, they are a great source of comfort and they're constant (unless they're variable ;) )

And yes hopefully they will be red herrings Jolamine.  Although it has struck me that when they were first doing mammograms etc. they really struggled to rule out cancer in my right breast, so I'm wondering if maybe it had cancer all along and has now spread to my right hand side axillary lymph nodes.  Either way I know enough about it not being an exact science to not play the blame game.

Going to try and do some investigating as to where my previous 3 requests to be referred for early screening (the first one made 5 years ago) fell down.  I don't want to even look like I'm apportioning blame or trying to cause trouble as I fully understand why going by the standard procedure I could be knocked back for early screening and I fully understand why the standard age for mammograms is 50.

But it strikes me that genetic cancers are being missed in women whose families are very predominantly male, yet not so likely to be missed if your family is predominantly female.  Making it more likely women with male families will be missed.  Kind of thinking that genetic testing eligibility criteria should be relaxed a little for women whose families are predominantly male.  My mum having had breast cancer so young should have been enough to allow her to be tested and, if that wasn't enough, her getting a completely different breast cancer in the same breast <20 years later should certainly have resulted in testing.  Had that been done I'd have had mastectomies before getting breast cancer.  Had my early screening requests been approved my cancer would have been picked up (according to what they have said) possibly even when I first asked 5 years ago.  Noticeably my mum's 2nd cancer couldn't be felt.

I don't think anyone has made a mistake but I think the guidelines and rules need seriously looked at.  My twin is now going to be left without her twin all because of potentially erroneous guidelines and the ridiculous assumption that self-checking is enough.  I do not want this happening to anyone else so I'm going to do a bit of probing and maybe highlight that women whose families are predominantly male are being missed.

LJx

Hi LJ,

I am so sorry to hear this. Words fail me. I really hope this great and good man has some words of wisdom and suddenly your body is going to react favourably to your treatments. 

It sounds as if you have a lovely oncologist who actually cares and I do hope this pays off. 

Wishing you all good luck.

Thanks Dragonfly,

He is a lovely guy, he can only do his best and thankfully he isn't one of those that tries to pretend the profession has all the answers.  I've been incredibly lucky with the team I have both on the surgery side and the oncology side.

LJx