Mother living with Unknown Primary Cancer

Hi there, 

This is the first time I have joined a forum about cancer, but I wanted to reach out to people who understand how I feel about my mother. She turned 61 last week, and was diagnosed around 10 weeks ago. We found out that it was unknown primary and there was no treatment available to her as she is just too poorly and the cancer is everywhere :( My father only passed this year in March also from heart dicease. I have to say this is the toughest year of my life so far..

2 weeks ago she was given steroids which gave her a boost which was great. It seems that things are starting to go back down hill and now she is just so sleepy all the time and I really am concerned this is her last 2 weeks if that! 

As I have moved back in with her to assist with the day to day things, I would really like to know how I determine how long I have. At what point do you know she will die? What signs do I look for? I really would appreciate honest answers :)

I feel for everyone on here but you should all feel so good for speaking out about your experiences. I have read some of the conversations and you are all so brave! 

Thanks for reading. 

Tara 

  • Hello Tara. 

    Welcome to the forum although I'm really sorry to hear about Mum's diagnosis. It sounds as if you've really been through some difficult times the past few months. 

    You mention that the hospital have said that Mum is too unwell for treatment. Do you know if she has been referred to the palliative care team or to a local hospice service? It sounds as though having some support in place to help Mum and to support you through the coming weeks would be very beneficial. If Mum hasn't been referred, or if you don't know, give her GP surgery a call and explain the situation. They will be able to arrange for a District Nurse to call or someone from the local palliative care service. 

    It's impossible for anyone to say how long you might have with Mum but I'm sure that you want to make the most of the time that you do have. Having a nursing team that you can call on will mean that you'll be able to spend more time with Mum and they will be able to support you as Mum's condition changes. 

    If you feel that you'd like to chat things through with one of our team of nurses then please do give them a call. They're available Monday to Friday 9am to 5pm on 0808 800 4040. We've also got some information on our website here that may be of some help. 

    Do keep in touch and let us know how you're both doing. Use the forum to offload, ask questions or chat to others. We'll do our best to support you through this. 

    Best wishes, 
    Jenn
    Cancer Chat moderator