Mother died in agony

I am still quite raw with grief as my mum only died two days ago but I wanted to share my story to see if anyone can shed any light on how common these situations are. 

My mum was in decent health suffering with mental and emotional issues rather than anything else in the run up to her illness. She had been admitted to hospital with a chest infection. After a week of treating her it was clear they weren’t getting on top of things and eventually after a CT scan she was found to have a tumour in her colon and cancer had spread to her liver. We were told she had a few short months to live. 

As she was a frail 82 year old we were advised she should stay in a nursing home. There was not one that we knew available but there was a very smart care Home where she has stayed before for respite who offered us a residential bed but with nursing care from nurses who worked ‘down the corridor’ from those in residential and also with support from the palliative care team in the community. We thought we were sorted out and this was all for the best as we were convinced bringing her home might be too difficult.  

All was fine at the care Home until the end when my mum had a visit from the palliative care team to fit a syringe driver. That all went fine and my mum had 24 hours of peaceful rest with her pain under control. However after the driver was replaced the medication didn’t seem to be effective. We called palliative care to tell them as they had assured us of their attention in the event of any issues. They said they were on their way but never arrived. Nurses from the care home’s nursing unit were unable to help my mum as they said she was in the residential unit with nursing support only available for her oxygen supply. The nurses understood our frustration with this but felt their hands were tied even though they had diamorphine which could have helped her. My mum was writhing in agony and I called out to a nurse and begged her to help. Eventually she did and jabbed my mum with a 5ml dose of morphine- it was all too late and my mum died shortly afterwards, writhing in pain and calling out for help. Her passing which could do easily have been peaceful was very traumatic. The palliative care team has been diverted to a more urgent case we understand. I don’t blame them but watching my mum’s agony was horrific. 

 

Is this a common experience i wonder? To die in pain with not enough pain relief. All I wanted for my mum was to die in her sleep. 

No inquiry can remove the image of my mum in agony. 

 

  • Oh bless ya... that's so cruel,  and I wish I had words to ease it but words won't come close to how I feel for you ... I get so angry at these rules and regulations every one has to go by ... years ago they wouldn't have thought twice ... but everyone puts it down to being sued for everything, so they have to stick to stupid rules .. when is common sense coming back, to replace tick charts .. 

    You did all you could ... please don't feel bad, it's the dam system that let your mum be in pain ... all I can do is send you a huge great hug and at least she will never go through any more pain ... not that , that helps you at this moment in time  .. please take care of you now... be kind to your self ... thinking of you ... chrisie xx 

  • Hi I'm so sorry to hear this and not sure if you will see it but my mum has just passed yesterday and she went in such pain too, begging for help because of the pain in her stomach, she was diagnosed 8 wks prier with stomach cancer, the drs came, seen she was in pain and offered morphine patches and liquid, I'd asked for the syringe driver but because she could still swollow they said she didn't need it, the patch's didn't help or the liquid, she just kept crying saying she needed more pain killers, she was in total agony, managed to get them to come out again but she passed away about 5 min before they arrived, we were told the pain was that much that her brain shut down and that's why she passed, I am so upset with the way she passed, we were ready for the passing but not the agony, crying nd begging for the pain to stop, 

  • Dear Siltie8188, I'm so so sad that you have had to go through this. I can imagine how crushed you must be feeling - in this day and age for people to have to endure such pain is inhumane. It is three years for me now since I wrote about what happened to us and I have tried (and succeeded) to put the memories of that evening out of my head. Reading your post and re-reading my original entry reminds me of how hard it was but in reality I needed so much to forget this trauma in order to live that that is what I taught myself to do. I started the process by not really telling anyone else what happened- I feel like a coward for admitting this, but in all honesty I could not have faced causing others the trauma of knowing my mum's passing was so awful. I tried to bring my feelings to the attention of the care home, my brother spoke to them and explained our distress but at the time I let him deal with this. They assured us they would learn from our experience. For myself I have three sons who were 7. 11 and 14 at the time amd I knew that thinking too much about my mum's end could cause me to drown in sorrow and heartbreak which would not have been good for them. I'm not suggesting you do the same, just telling you what I had to do to cope with this deeply traumatic event.  I'm so so sorry that you are in this position and hope that you have support to help you come to terms with the end so that you can remember your mum and the love you shared. You didn't fail her. You may feel as I did that you let her down when she needed you but dealing with medical professionals at such an emotionally charged time in life can be impossible and frustrating. My father died 18 years ago yesterday, in a hospital intensive care bed, with all the medical support he might need around him but they couldn't save him. I have no reason to think that if my mum had been in hospital things would have been any better for her.