I am still quite raw with grief as my mum only died two days ago but I wanted to share my story to see if anyone can shed any light on how common these situations are.
My mum was in decent health suffering with mental and emotional issues rather than anything else in the run up to her illness. She had been admitted to hospital with a chest infection. After a week of treating her it was clear they weren’t getting on top of things and eventually after a CT scan she was found to have a tumour in her colon and cancer had spread to her liver. We were told she had a few short months to live.
As she was a frail 82 year old we were advised she should stay in a nursing home. There was not one that we knew available but there was a very smart care Home where she has stayed before for respite who offered us a residential bed but with nursing care from nurses who worked ‘down the corridor’ from those in residential and also with support from the palliative care team in the community. We thought we were sorted out and this was all for the best as we were convinced bringing her home might be too difficult.
All was fine at the care Home until the end when my mum had a visit from the palliative care team to fit a syringe driver. That all went fine and my mum had 24 hours of peaceful rest with her pain under control. However after the driver was replaced the medication didn’t seem to be effective. We called palliative care to tell them as they had assured us of their attention in the event of any issues. They said they were on their way but never arrived. Nurses from the care home’s nursing unit were unable to help my mum as they said she was in the residential unit with nursing support only available for her oxygen supply. The nurses understood our frustration with this but felt their hands were tied even though they had diamorphine which could have helped her. My mum was writhing in agony and I called out to a nurse and begged her to help. Eventually she did and jabbed my mum with a 5ml dose of morphine- it was all too late and my mum died shortly afterwards, writhing in pain and calling out for help. Her passing which could do easily have been peaceful was very traumatic. The palliative care team has been diverted to a more urgent case we understand. I don’t blame them but watching my mum’s agony was horrific.
Is this a common experience i wonder? To die in pain with not enough pain relief. All I wanted for my mum was to die in her sleep.
No inquiry can remove the image of my mum in agony.