Hello hurtandconfused; welcome to the forum.  I am so sorry to learn about your dad's diagnosis.  I don't have any personal knowledge of this but - while you are waiting for someone more knowledgeable who can help you - am attaching some information from this website which may answer a few of your questions.  Best wishes.  Annie

www.cancerresearchuk.org/.../mesothelioma

Thank you, Annie.

I feel like I've read it back to front, cover to cover. I'm really terrified for him and how it might be for him. I don't want to see him hurt. I feel dreadful but I'm trying to be positive.

EDIT: Is there anyone out there with any personal experience of this disease that I can chat with? I feel like I need the support. I don't want to lose him.

Hello Annie, Keep a positive outlook all is not lost. I was diagnosed same as your Dad last July, medical thoroscopy and biopsy found Epithiloid Mesothelioma. I had my wife and son with me at the time we were told and we all came away from being told really down and dejected as life was about to end for me. I am here reasonably fit and well 10 months later. I have undergone 6 sessions of Chemo at three week intervals from 25th September 2018 to 8th January 2019. The CT scan I had on 10th December 2018 showed my Tumour had shrunk in size from 27mm down to 5mm and we really believed in Father Christmas when the registrar told us this the week befor Christmas. This was after 4 sessions of chemo, so with another two to have my expectations were great for the next CT scan on 22nd March 2019. This however proved to be a dissapointment as the Tumour had mutated to be resistant to the chemo I was having I was told by my oncologist on 28th March 2019. Do not despair she said there are still things we can do for you. I have since been to the hospital and seen the registrar who assists a Proffessor there and I have been accepted for the MiST trial if the Biopsy I had last July shows positive results in Lab tests for the new Imunotherapy drugs they will use on me. Please keep a positive attitude and get your Dad to look on the positive side. All is not lost with this terrible disease I got just for going to work in a Power Station for 16 years from 1965 to 1981. If I get any more info from the hospital I will up date you. keep positive 

Hello,

Thank you Balaclava. That's really helpful.

Everything has calmed down now (a bit). We are more positive and I'm far less panicky. Unfortunately his results have been revised to 'inconclusive' so he has to have a surgery under GA for another biopsy. We are meeting tomorrow with one of the consultants to voice our concerns and to find out exactly what is going on. This is the most stressful part at the moment. We're not sure we should have been given that diagnosis without the review from the specialists happening first.

It's great to hear from you. I'm already making connections on the Macmillan site as well and I do recommend it as a forum source for you, too.

Keep in touch.

Sad for you being told "Inconclusive" and the surgery he now has to have. While I was doing the previous message to you the phone rang and it was the Hospital to inform me to attend on Wednesday 1st May to see the Proffessor and again on Thursday 2nd May to have a CT scan. I can only assume that the tests on my biopsy sample have gone well and I am now suitable to go on the MiST trial. MiST is an acronim for Masothelioma Stratified Therapy. So now hopefully the drugs they will give me (orally I understand), without attending the hospital except for 6 week CT scans will do me some good (and at least others who come after me) Good luck for your meeting with the consultants tomorrow, I hope all go's well, I have my fingers crossed for you.