Hi everyone,
I posted the other day about my Dad and his chemo med that he takes, but things progressed in the same day and Dad is back in hospital.
Since last August, my Dad has been admitted every 3 weeks like clockwork. I can see it coming, the change in behaviour and a certain look he has.
He was in hospital twice in December - all over Christmas and then went into a hospice end of January for two weeks and is now back in hospital.
Every time he goes in, he is diagnosed with a UTI, but I have been told that the infections have been barely seen in the bloods or samples.
Every episode Dad has lasts for two weeks - he sleeps constantly to start and then turns aggressive. He is unable to have a conversation and forgets faces, places, dates etc. When he begins to recover, he is never as well as the previous time. He has lost his appetite and dropped almost 1st 7lb since January. He is a healthy man and been active all of his life and has always had a good appetite.
In hospital and at the hospice he requires a special or security to sit with him for up to 7 days as he wanders and thinks he sees people he knows. This time round is the same, but much worse. They carried out a memory test and he failed. He believes it is May in 1977 - the year his father died (I checked the death certificate tonight). He believes he is at work and is calling out names of people he worked with from 25 years ago. He knows something is wrong and is scared, but can't control it.
He had a head scan yesterday and it is clear of any cancer. He has stage 4 RCC which has spread to liver, lungs, adrenal glands and spleen. The scan shows damage from previous strokes.
All they have said is his tests are clear and they believe his behaviour is the cancer. I disagree and I can honestly see a mental health issue, but they won't help me or investigate. When he was in the hospice they said it was mental health, but he isn't being helped further. They think his behaviour is normal. I know my Dad and this isn't normal. He is deteriorsting so quickly because of these episodes, yet the cancer is shrinking. They just won't listen and I don't know what to do. I have to give him the best quality of life he deserves, but they fob me off. He hallucinates frequently, he see his dog yesterday who died 6 years ago, he told me all of the people in the hospital weren't real and actually went to poke a patient today to find out. His eyes look glazed all the time.
Has anyone ever experienced this and can anyone advise on what I can do and say tomorrow to get them to investigate further? I have to help him as much as I can as he knows he isn't right.
Thank you and so sorry for the long message x